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Amazing news Carol! So happy for Connor, he needed good news. I will continue to keep you both in my prayers. I hope he has a great summer full of fun and good health. Take care, Janelle

You are in my thoughts and prayers. Praying you begin to breathe easy and the medicine restores your health to better than before you got sick. God bless, and please keep us posted.

So sorry you are having such a rough time. It must be so frustrating to try and get caught up and stay caught up when you have been having a hard time with your health. My son has an IEP, but he is in a life skills setting at school. One good thing with him being in this type of setting is...

Hey Beaz, thank you for the reply. I did just check out that formula, and it has milk and soy, and he is allergic to both. The allergies are a big issue to find formulas to choose from. I am aware of 2 he can have. Thanks again.

Thank you both. He actually had a gi appointment yesterday. We are increasing the feed time with adding the duocal. He did say we cannot increase the concentration of the formula because it could actually cause dehydration. He said that he and the cf team do not know why he is having such a...

Thank you so much Beaz. Dr Weiner is actually one we are considering along with Dr Spaher. My son is familiar with Dr Spaher from inpatient stays, and he is great also. we are scheduled to see Dr Spaher at the next clinic visit hoping my son will be comfortable with him , but was told if we...

Oh Carol, I am so sorry Connor is having such a hard time. I know he went through such a terrible ordeal a few months ago, and I don't blame him for being so frightened. Poor kid had had a bad run lately. I will definetly keep him and your family in my prayers. jacob had the same issues with...

Hi. My son had his port placed last April, so it has been a year, and he loves it. His is placed high on his right chest. His sticks out a good bit because he is super thin. I think the more meat you have, the less noticable it is. I believe it was a week before he could really lift or...

I voted. My son like yours has cf and autism. Good luck!

Deepest sympathy for the family. Keeping them all in my prayers. God bless.

Thank you Aboveallislove. That was so kind to say. And yes his heart is his best piece. He is such a sweet kid. Never complains. I am so grateful that i have been blessed with him. He has taught me more in 18 years then i could ever teach him in my lifetime. He definetly was my saving...

Abovesllislove, yes it does sometimes feel like we are doing all the work, lol. We are able to see all of the pieces , and boy does my kid have a bunch of pieces. All in all, i guess it could be a heck of a lot worse. Checkinng into probiotics. kosdancer, thanks for easing my mind about the...

Thank you both. He does have an appointment with his gi doctor the end of the month, and i will see what he thinks. I think there must be some reflux going on. He also has had sore throats off and on the last couple months. If it comes back, i am going to ask that he have another swab. He...

Hi guys. Got my sons culture results today, and the only thing that grew was e coli. They said they do not treat it. The nurse also said it probably is due to him refluxing. He is on reflux medication already. He did have a drop in his pft's at clinic, but his doctor was not overly...

Hi randogirl. My son has had his port for a year, and we love it. His is placed through his jugular vein, and sits above his right chest(nipple). Like you he is very underweight,and you can see it sticking out through all his shirts. But he has developmental issues, and is a guy, so it does...

Hi. Was wondeing if any of your kids go to the cf clinic at children's hosp. pgh. My sons doctor unfortunately is retiring in July, and we need to choose a new doc. withen the practice. I have 2 doctors i am considering, and 1 that is a definate no. Besides being a great doctor, we need one...

Hey Belivingjesus! You have definetly helped me, and am glad i am getting to know you. I did not read all of the posts from the other thread, but I am sorry that you were hurt and felt unwanted. That is so not the case with me. I am very grateful for the support you have offered me on this...

Thank you Aboveallislove. I am not sure what i said to upset this person. After looking back on other comments on other posts from them, i saw i was not the only one who had this type of encounter with them, nor do they have cf or care for soneone thst does. Which is fine. I love this...

OMG. You are crazy. I sharded an experience and the information i received from his doctor regarding it being a contradiction, and thats it. I am done discussing this period, i do not have the time.

i never said it was an absolute contradiction, i said it was a contradition. Again i only SHARED my experience and the FACT that it is a contradiction. The people discussing this with ME are intelligent, and able to ask their dentist or health care provider before making THEIR own decision...