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I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out...

I have never taken ADEks, but my last labs revealed low Vit D and A levels, so i had a sample bottle about the place and took that. Now it's gone and I am back on my prenatals because apparaently my insurabbce doesn't cover ADEks and I don't have an extra $30 a month for them - SO are there...

A friend of mine is a nursing student and has to do this case study for class, I told her i would help, but there are some things I don't know. If you know any of these answers and have the time to type them, I'd appreciate it! I already did a lot of it, but some of the transplant stuff I...

I finished up my first ever round of IVs about 10 days ago. Right after, I felt great. I hardly coughed at all and when I did my vest and HTS hardly anything was coming up. I hadn't realized just how full of gunk I had actually been until it was gone! I could laugh without coughing, which I...

So yeah. The PICC is out, but now I am covered in hives. Apparently, I am allergic to Fortaz - a cousin to augmentin, which I already knew I was allergic to. This pretty much sucks. Just FYI - for years I felt like augmentin made my brain swell- I got these crazy bad headaches, but everyone...

My PICC insertion really hurt - a lot. I mean, I have no comparison as it was my first, but it seemed pretty painful. Then it bled quite a bit the first few days. I have an insane amount of brusing. I wonder if the IV nurse effed something up in there? But I am posting because from the site...

Every so often I go through a stage where I get worried about all the meds I take and what their effect on my Cf body will be. So I experiment with stopping this or that and see what happens (never enzymes though, oh no, me and enzymes are like a stamp to a letter). Anyway, when I was pregnant...

So from my fellow mommas, I need help. I am going on Vanc and ceftazidine on Monday - or next week at least. I know Vanc is an L1, but I can't find anything on ceftazidine. My doc thought it was OK, but I want to double check - does anyone know???? I can't find anything with Hale - but...

So, I am going ot inquire about home IVs on Friday when I go to my clinic apt. but i called my (crappy) insurance company today to find out what I needed to do and if they would pay, and the lady said my doc has to write a letter of medical necessity. She then asked me if I was home bound as...

If you know me, you know that I am very much procrastinating a probably much overdue bout of IVs. I'm an IV virgin - never been poked - lol. Anyway, I am going to call and make a clinic visit and depending on my PFTS and sputum culture, I might suggest a run of home IVs. I actually think it's...

I thought I was just getting old , but I saw in someone's siggy they had "cf related arthritis." Could this be what I have? I have a constant ache in my hip joints, my neck,and occasionally in my fingers and wrists. It sucks. Arthritis does run in my family, so I thought this was just the...

I have a clinic apt tomorrow but i had my lab reports (blood work) sent to myself since sometimes my clinic stinks and they don't have the lab reports ready. Anyway - here are my questions: 1) what is this IgE test for immunoglobulins? What are they looking for here? 2) It looks as if my...

I have a clinic apt on Friday and I had my labs done earlier in the week - I had the report sent to myself as well and I see that my vitamin levesl are super duper low. My vitamin D is at 21 - normal being 30-52, my retinol vitamin A is at 0.28 (normal is 0.30-1.20) So.....I have been taking...

I have three boys sitting in the living room playing PS2 - I need adult interaction!1 <img src="i/expressions/face-icon-small-smile.gif" border="0">

1) re: TOBI Is TOBi purely maintnance or does it have a cumulative effect? Meaning, will I notice more improvement the longer I do it? I ask because I am now on my 2nd cycle and I feel like crap: more congested than ever, wheezy. I have found using my albuterol before and after a treatment...

Marlee is one year old today!! At this time last year (815) etting into a hot shower and really starting into my labor. She was born an hour and a half from now at 9:48 am - 13 minutes after we arrived at the hospital! <img src="i/expressions/face-icon-small-smile.gif" border="0"> We've been...

This is sort of a spin -off of the church/illness thread as in spirituality and disease, but that thread came at an appropriate time for me after having a conversation with a friend the other day. Brief (I'll try anyway) synopsis: my friend is very into natural remedies - almost to the point...

I have no idea if anyone is even in the area, but, if you are a nursing mom or a breastfeeding symapthizer and are aware of the incident at an Applebees in KY, we are having a nurse out in South Bend, IN tomorrow (9/8) at noon at the Applebees on Ireland (southside). This is going on nationally...

I'm sure this has come up before, but I am sitting here doing the vest - which never makes me cough - and wondering if I cough more/less/the same as everyone else? So tell me about your cough - how much would you average you cough in a day? When do you cough most? What kind if cough is it? I...

<b>I copied and pasted this from a TTC group I belonged to when, well, TTC!</b> Here is a post I found on the IVF-C website. I laughed so hard at it. So, what do you think people would say to you if you were paraplegic instead of infertile... * As soon as you buy a wheelchair, I bet you'll...