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This site used to be a successful place for people with CF. We had the occasional trolls that joined, some with disease by internet proxy. But of late, this amount of spam created, moron's trying to sell products, sex, it's just sad.

AI is a program. It's at the mercy of its creators. The results will only ever be what the content writers say it will be. Even when they have enough power and memory to begin to generate their own neural network connections, STILL it will only do what the originators permit. and THAT is...

That's not true! You won't get more sick because you stop working. I do MORE today, Because I stopped working. Increasing difficulties is a way of life in a genetically degenerative disease. You cannot always avoid issues. But many are, depending on many things to include, but not limited...

all these years... i'm still here and still think about those we've lost... :cry:

I went with the medicare advantage plans. you have to watch those though, you might need to switch plans like i did because the plan i had dropped my CF clinic hospital's pharmacy from their plan. There are multiple copay assistance options. do a search for copay assistance programs. i was...

Yes. Pharmacy decided to swith me to 3% normal saline for injection in 15ml vials, as if it was the same thing! Then they lied about it and said it was what the doctor had ordered for me. I've been told there is a 3.5% hypertonic solution available.

I signed up at https://copays.org/portal/#/login 'register' to apply and create an account. I haven't tried to get a reimbursement yet, I'm just getting things set up for next year.

i've done much better on zenpep. creon gave me several bouts with fibrosing colonopathy and constant bloating. zenpep is much better. understanding the fat contents of what you are eating and how many pills of which strength to address the fats consumed is of great importance. i have two...

:cry:

What insurance plans are you on that cover trikafta while on Medicare? Or did you give up Medicare to take a separate policy?

been on trikafta for almost a year, no purge.

Thank you Imogene!

The link no longer was working

what does the PDR day about abilify . An austistic child my not be capable of voicing concerns when they've experienced side affects! kalydeco is in the PDR. but not trikafta yet.

Ask the Dr to mark your perscription for TOBI as 'medically necessary' 'dispense as written'. The insurance company and state laws allow for the substitution of drugs for generics if they don't mark it as dispense as written. i've found the generic tobramycin, depending on the manufacturer...

I have a similar experience. Dizziness too!

what if tomorrow comes? What if tomorrow comes? All your life you're told, that you will never grow too old. Your life defined by a DNA strand, mutated uncontrolled. "Don't expect to be able to do, like others without this disease." "You can't", "You shouldn't", "You must not", of these we...

Dr. Daniel Layish - Orlando Fl. - http://www.cfpulmonary.com/services/cfpg-adult-cystic-fibrosis-center/ Tell him his 60 yr old non-compliant obese cf patient sent you (That's what TGH Tampa CF Clinic said about me when they refused me to come to their tampa clinic.) Dr. Layish has been...

Here is a description of "Zenpep (pancrelipase) is a combination of three enzymes (proteins): lipase, protease, and amylase. These enzymes are normally produced by the pancreas and are important in the digestion of fats, proteins, and sugars." Opinion Only! - Yeah, it was 'common' that the...

try switching to zenpep switch to Zenpep. looks like it should be on the formulary. ok, the link didn't work... https://www11.anthem.com/ca/pharmacyinformation/