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  1. M

    65 Roses Ball at Boomer Island

    In honour of May CF Awareness Month there will be a party tonight at Boomer island. This will be in the middle of the night for me so I hope I will be able to be there... But, I'll try for sure! This will be me tonight <img...
  2. M

    For Liza

    I thought I'd post a seperate thread... I can imagine it must have been scary. Like Margaret I was wondering how you found out, when Anna didn't show any symptoms. Did they do a regular bronch? Thinking of you and I hope the solumedrol did the trick. It is good to hear that she is feeling good...
  3. M

    Flu shot

    I went and got my flu shot this afternoon. I always get it from my gp. Everyone from the age of 60 and those with lungproblems, diabetes (really everyone with a higher risk of flu) gets one that is payd for by our insurance. Anyway, I called my transplant clinic cause my immune system has a...
  4. M

    MRSA and lungtransplant

    That's my question really... Would tx centers still transplant you when you were culturing mrsa? Thanks in advance
  5. M

    MRSA

    That's my question really... If you've been diagnosed with MRSA. How did they treat it? Which antibiotics? And for how long? Did the treatment work? Thanks in advance...
  6. M

    Welcome home Oliver!

    Charlotte moved into the neonatal unit yesterday so she could feed Oliver every time. If all would be ok he would probably be ok to go home on Wednesday. But... I got a text a while ago and Charlotte said they are coming home today! Isn't it the best news <img...
  7. M

    Happy news on the pregnancy board!

    Sorry, I just had to post it here too <img src="i/expressions/face-icon-small-smile.gif" border="0">
  8. M

    Charlotte's baby boy is here!

    Oliver Malcolm is here! Welcome to this world little man. He was born weighing 4lb at 15.44, May 22 No other news yet... When I know more I will update. Anyone who'd maybe like to sent Charlotte a card can pm.
  9. M

    Can someone help me?

    I posted a question in the Weblog's section and was wondering if anyone can help me? It's about backgrounds to your blog, some of you have it so maybe you could tell me where you can get them and how you can add them to your blog? Thanks in advance!
  10. M

    Update on Charlotte, she is in the hospital

    Charlotte was admitted to the hospital a few days ago. They have found out now that she has hospital contracted pneumonia. She probably got it when she had to stay in ICU. She was bluelighted to the hospital cause she had a very bad asthma reaction to oven cleaner. She was intubated and on the...
  11. M

    haley, congratulations on your wedding!

    Congratulations sweetie! I hope you have had a fabulous day, that it was all you imagined and more Love, Marjolein
  12. M

    Combivent

    I know it's not a very common med for CF.. Combivent is a neb with Ventolin and a long working puf combined. It is nebulized. I was wondering if anyone has a clue on how long it is supposed to work? I ask this because I feel a little short of breath and did my pft's and they were lower then...
  13. M

    Today is the day

    It's 6.50 am and I just woke up, in about 45 minutes I have to leave for the ferry. Wish it would be that I would be going to America for the day! But instead i'm here,still sitting in my bed with my laptop before I have to run <img src="i/expressions/face-icon-small-wink.gif" border="0"> <b> TO...
  14. M

    Side effects with tx meds

    A question for everyone post tx Does anyone know about joint pain and muscle weakness/aches as a side effect from one of the tx meds? I had joint problems pre tx but that was gone after i had my tx. It's back now and more too. My muscles have been weaker over the last 2 months too and doesn't...
  15. M

    Charlotte is in the hospital

    Hi all I just wanted to say that my very good friend from the UK, Charlotte is in the hospital. It's the longest she has been in since Abigail's birth and it's mother's day today (in the UK)! She has been having problems with her lower back for a while now and she has not been able to move...
  16. M

    IMPORTANT interaction between drug and fruit!

    <a target=_blank class=ftalternatingbarlinklarge href="http://altmedicine.about.com/od/druginteractions/a/pom_interaction.htm ">http://altmedicine.about.com/o...a/pom_interaction.htm </a> Christy posted this link on another forum i'm a member of. Pomegranate might very well have the same effect...
  17. M

    Bruises on my knees/lower legs

    So i have a question. For the past few months i have noticed bruises on my legs. Sometimes only one but the week before Christmas it was so bad i had 5 on my one leg and 4 on the other. Most around/ on my knees but on my lower leg too. Doesn't matter if it's the front, inner- or outside. I now...
  18. M

    Please keep Kaylee in your thoughts

    www.caringbridge.com/visit/kayleemaze this is her site. Please keep her in your thoughts and maybe sent a message to her and her family
  19. M

    ADEK's

    I have a question.. We don't have ADEK's overhere. I have all my vitamins seperate. Or not all i must say, i have A and D together. With my anual blood check-up for vitamins they found that the level for vitamin E low. I had to up that from 200 mg a day to 300. The other vitamins were ok. No...
  20. M

    To theDUDE

    Hi there First of all, welcome to the boards! I hope you'll find here whatever you need and that you'll like it here. starting a new thread is fairly simple ones you know where to look. I little above the forums, just above the pictures from CFtube you can see a lot of links. It says 'new...
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