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  1. J

    CFRD symptoms?

    A quick google search brought up this handy informational page: < <a target=new class=ftalternatingbarlinklarge href="http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp">http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp</a> > Of course, ask your doctor. Good luck.
  2. J

    Skateboarding

    Longboard skateboarding is on the top of my current list of things I'm loving. It's not terribly trick heavy, (although I suppose the real trick is finding roads where traffic isn't an issue), just a lot of hoofing it up hills and carving or bombing down. I find it is very much like...
  3. J

    New MS drug, maybe for cf?

    There is an article on this at: <a target=new class=ftalternatingbarlinklarge href="http://www.pharmacytimes.com/newsfeed.cfm?id=29109 ">http://www.pharmacytimes.com/newsfeed.cfm?id=29109 </a>
  4. J

    Traveling with the vest..tips?

    Depending upon where in MN you're coming home to, you may be able to contact the University CF clinic and arrange a loaner or possibly make arrangements for single daily. Also, prior to 9/11 and the changes in airline security, I flew with the 103 many times and simply made arrangements ahead...
  5. J

    prednisone

    I would echo the previous poster, regarding the need to wean off properly with the consult of your doctor. I believe that I reduced my dosage by cutting the daily dose 2.5 mgs, a week at a time. Generally, it is used to control inflamation directly related to infection. In short bursts, it...
  6. J

    prednisone

    I would add insulin dependence and cataracts to my list of effects from low dose/long term prednisone usage. Which, for me, was aprox 10 years at 10-20 mgs a day. I would also add, that for me, the benefits at the time fully outweighed the side effects. And after finally reducing my usage to...
  7. J

    rollerblading

    If you have a good place to skate, Rollerblading can be a really great way to exercise, (providing you dont break a wrist, of course). It can be low impact or high impact and as opposed to jogging can be easy on the joints. Also, it can be a great deal cheaper than getting into cycling...
  8. J

    PHYSIO VEST??

    Two kinds: <a target=new class=ftalternatingbarlinklarge href="http://www.sourcecf.com/medpulse.htm ">http://www.sourcecf.com/medpulse.htm </a> and the more popular, <a target=new class=ftalternatingbarlinklarge href="http://www.thevest.com/">http://www.thevest.com/</a>
  9. J

    Moving to Minesota

    Murgie, I would also recommend that you call the CF clinic at the U of M to contact the social worker. Contact information for the clinic can be found at: <a target=new class=ftalternatingbarlinklarge href="http://www.med.umn.edu/peds/pacc/cfcenter/home.html...
  10. J

    energy

    I rely on choosing something that I really enjoy doing to motivate, (ie. energize), myself. The drudgery of exercise equipment or a gymnasium, for me, aren't worth getting out of bed for. The pleasure of fresh snow for boarding or skiing in the winter or a dry sunny day for biking or roller...
  11. J

    Ports -- Just Curious

    Almost to a fault, I am very protective of my port. As long as I am conscious, I can't see myself giving up the control of dealing with my port. There are a litany of things I don't have control over in my life. My port access and maintanence is not on that list. I felt the same way about...
  12. J

    SSDI/Medicare

    It is automatic after 24 months. Despite the weightiness of the website, I would still direct you to: http://www.medicare.gov/ Good luck.
  13. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  14. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  15. J

    vitamin C

    I have been taking 8 grams of vitamin C a day (4 grams in the morning and 4 grams at night) for about 10-12 years. I found my bowel tolerance level and backed off my dosage slighty to where I wasn't causing diarrhea. After becoming aware of Dr. Linus Pauling's ( http://lpi.oregonstate.edu/ )...
  16. J

    Male Cf'ers.....have you taken the test?

    At age 18, just to be safe, I had a sperm count done. It is a pretty straight forward microscopic assesment of one's ejaculate. Seemingly, if I had owned a microscope, I could have done it at home. As suspected, I am spermatically bankrupt. It saved me the hassle of a vasectomy. John, 41 w/cf
  17. J

    Need Exercise Advice

    Ooops.. sorry Dave, I meant, Dave, not Diane ....... <img src="i/expressions/face-icon-small-blush.gif" border="0"> ......
  18. J

    Need Exercise Advice

    Eric,Next to meds and the use of my vest, exercise is the most important thing in my day. As Diane mentioned, biking is an excellent exercise, whether in or out of doors. Within the last few years, I have had the fortune to recover previously lost lung function and I hold exercise largely...
  19. J

    How did you get B. Cepacia?

    Despite it's tediousness, I will post a link regarding cepacia and onions and agriculture all in one. The first couple paragraphs are more to the point, enjoy:http://www.cdc.gov/ncidod/eid/vol4no2/holmes.htmgood luck. John.g
  20. J

    Tatoos

    The MRI mention in a thread on tattoos sparked a question in my mind about the relationship between the two. Which in turn caused me to take a quick look around for an answer. Here are two links that might help anyone that developed the same...
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