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    Pancreatic Issues and Orkambi

    So I am having stomach issues since I started taking Orkambi. It seems that when I increase my dosage of zenpep these issues subside on their own. Yesterday, I asked my doctor if I could up my dosage of zenpep, currently 13 per meal, by 1 or 2 pills and was told that I could not. His response...
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    Open frontal sinus surgery

    Hey, I was wondering if anyone could shed a little more light on the recovery time after an open frontal sinus surgery? I am going to have this done next week and I just want to try to get as much info about what to expect before this happens. Any information would be appreciated. I was told...
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    Transplant/cepacia

    I was wondering if there were transplant centers out there that are willing to do a transplant with someone who has cepacia? I have had it for 25 years. Doesn't really cause me a lot of trouble but I wanted to know if there are options for me when that time comes.
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