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DAMIEN HAS GONE DOWN TO THE MID 80 S THE LAST FEW TIMES WE WENT TO THE HOSPITAL AND IT TAKES ABOUT A WEEK TO SAT IN THE 90 WHILE AWAKE AND THIS LAST TIME HIS SATS AT NIGHT DIDNT GO ABOVE 92 UNTILL WE WERE ALL BUT DONE WITH OUR 14 DAYS. DOES THIS HAPPEN TO MOST EVEYONE WHEN SICK

Well Damien and I just got home from the hospital here in Oaklahoma. Dr Royall told us during our stay Damiens culture result said muciod pseudo. <img src="i/expressions/face-icon-small-confused.gif" border="0"><img src="i/expressions/brokenheart.gif" border="0">Now I know because of his last...

Damien and I are mov8ng to Yukon Oaklahoma where my family lives. I am so nervous about changing clinucs, but I really feel better about not having to drive 500 miles round trip to get to his docs. Single stay at home mom that Iam and on very limited income so the finacial strain and the mental...

Damien was recently in the hospital and his o2 was very low and they did a broncscopy and he had so much puss and mucas in his lungs only tested positive for staph . Has anyone experianced this in there young child. After thewy sucked al that stuff out his o2 ststs went up quite a bit. Is this...

I dont have the link to send pictures with posts? does any one else? I want to send a picture of Damien in his vest.

I just wanted to let people know how much we love our Incourage vest. Damien did cry the first time using it. The second time he cried for about 1/2 the time . Now he doesnt cry at all he makes flipper noises in the Karoke machine and also it puts him to sleep. We love it it fits great and Doug...

We got a call from respritch saying our vest will be here Friday or Monday ! Iam to excited ! It did not come today so monday then were to call to have someone come show us how to use it. Do you that have it like it. Give me some feed back

Damien seems to be behind in speech. He understands what you say and will respond like he should. He can hear the door if it makes the slightest sound when its time for brother to be home from school. Yet he says momma over and over but nothen else. He has said words. Damien is 19 months old. He...

I will be doing my first Great Strides walk as an individual walker on April 14th. I was wondering how long the walk is. Do kids with cf walk? Please give me the run down. I cant find this info on the Great Strides site. I look forward to it and I cant wait.

I am confused as to why he cultured P.A in November told this at Decembers visit. We took another culture and started Tobi 4 weeks 2x daily. We just got home yesterday and I asked if we would Tobi even if he cultures clean of P.A . He did culture clean in December. I said how we hadnt done any...

Damien did a culture in November. This December 18th we had clinic. I was talking with Dr. Radford and she was looking at her reports and said lets get a culture. And in conversation I mentioned last culture and she looked and said he did have one in November. She said excuse me and went and got...

I would like to know who has sufferd any hearing loss from iv Gentamicin. Does anyone refuse to be treated with it? Do you know of another antibiotic safer. Why do use it with such chances of hearing loss? I post in adults thinking I can get more info from people who would know first hand being...

Damien has been on antibiotcs 3 times for a ear infection in 7 months and he just has done a round of ziromax. Our cf doctor prescribed that. I feel it was easier on him than amoxicillan and alot less of it. He is pulling hes ears and grabbing hes head, I mean hes starting to I do belive that it...

I am feeling so hopefull and excited for Damien and I we got signifigant weight gain and took the biggest jump up on the growth curve yet! I have held my ground and kept giving it our best. And our doctor said if he gaines as much as he did last month we will be at 50% I cant belive it. We were...

Hi all, Damien was admitted on the 8th at clinic. We did 10 days of iv antibiotics and he is so much better no more cough. Lots happier and is eating all those things I had tried to feed him. I am amazed at the diffrence in hes additude towards trying the solids.I had only been at the toddler...

I recieved this sample months ago from our cf doc and of course hes nose cleared. And now we have clear runny nose. Funny thing we get in the car and it stops running. Anyway is this med for allergies ? Has anyone used it before?

I feel I am in a whole new place. I cried all day and feel better than i have in a year. Dr. R said Damiens pulmonary function is normal . On the print out of the results it says interpretation.Normal pre and post volume flow volume loop and lung volumes. THERE ARE ALOT OF% FVC,ml FEVo.5 ml FEV...

Darn Iam still in Adaults need to be in families.Not writing it over oops.

Well we are going to clinic friday and to take hes fev.5 after. We will also be refusing to sign consent for a g-tube at this time. I feel he is doing well. I will ask her if she is basing hes percintile on height to weight not months to pounds. I know Damien will still not be at 50 % but that...

Damien is prescribed previced 15 solutab in morn and zantac 1.4 ml at night. Well I think he gets headaches and he seems to grab unable to focus on hes playtime Damien is an extremly intelligant child and seemed to be able to see and focus at about 6 weeks. It is one of the first things my...