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  1. J

    Daughter has PCD- Primary Ciliary Dyskinesia

    I recently posted a thread about my 7 year old daughter. She has symptoms of CF but very low sweat test results. One of you nice people posted about PCD- and that is exactly what the Pulmo Dr thinks she has. Everything that is written about PCD relates it to CF and says the treatment is...
  2. J

    Negative sweat test but lots of mucus

    Well our 7 year old daughter came back negative on sweat test. Which is a relief but leaves me puzzled. My neice is a carrier. We just found that out. My daughter has to "heeeave" throughout the day, every day, to work up the mucus and spit it out. It is just part of our daily life. I...
  3. J

    In memory of the four she lost...

    My first touch with CF was thru a friend. When I met her she told me her son was sick. He was 27. He had CF. He died shortly after. When we became close friends she told me of the other children she lost. One was an infant boy who died soon after birth. Another son died when he was...
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