Search results

  1. C

    Another Feeding Tube Question!

    I have read through a bunch of feeding tube threads already but have some more questions. I don't think I'm in desperate need of this, but my doctor, nurses and nutritionist keep bringing it up and want me to think more about it. I kind of want some of your advice on whether to do it or not...
  2. C

    Tune Ups - but not sick?

    How many of you have gone in for tune ups when you don't even feel sick, but you're just really short of breath, your numbers are down, lost weight, etc? You'd think if you have all that going on you would feel 'sick', but it doesn't always work that way. I think it's b/c of what we get used...
  3. C

    Ugh, almost deaf....

    Okay, it's saturday, midnight, and I'm stressing out about my hearing right now. Even if someone is a few feet from me, I can't necessarily hear them. It's gotten really bad in the past 3 days! I feel like I need to stop all my MAC meds tomorrow (Sun) until I talk to my doc on Monday. But I...
  4. C

    Anyone use Clofazimine?

    I did a search to find out who else on here has used this med, but I didn't find anything. I only know of Jane's boys who have used it. Anyone else? I'm eager to hear about more people's experience with it and any side effects you've had. There are some pretty ugly potential reactions listed...
  5. C

    Life Insurance

    WHOOOOHOOO - I am so excited!! I was able to sign up for life insurance today!!!! This is awesome. It's near impossible to be accepted for life insurance with cf, but today I got some. $5/ month, 7 year term on $50,000 and I can extend it to long term later. That is SO worth it. It's with...
  6. C

    Another CFRD question.

    I'm glucose impaired so I'm cutting way down on sugars to help put off becoming cfrd. When I work out or get overheated I can get dehydrated and feel light headed quickly (I'm sure the same for many of you too). One of my tricks has always been to make a glass of gatorade, from the powdered...
  7. C

    $271 Million for Research on Stem Cells in California

    Check this out........ <img src="i/expressions/face-icon-small-smile.gif" border="0"> <b>$271 Million for Research on Stem Cells in California</b> <i>By ANDREW POLLACK</i> Published: May 8, 2008 LOS ANGELES - California has awarded $271 million in grants to build 12 stem cell research...
  8. C

    4 CF Successes on Capitol Hill

    Most of you may have already gotten this info in your emails today, like me, but I just wanted to post it here too. Here's the CFF's letter about it all: "Dear Friend, We have some exciting news. We are pleased to tell you that, over the past seven days, <b>Congress and the President took...
  9. C

    Am I feeling good or is it a facade?

    For the past several years I do all my treatments/vest the way I'm suppose to, not like when I was younger and skipped often. When I was younger I could hardly tell I had CF whether I did treatments or not. My question is when I'm late on a treatment now, or skip one I feel it and it effects...
  10. C

    UFC Fight Tonight

    Anyone watched UFC tonight? <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. C

    What to get a 6 year old?

    My niece is 6 years old and going in for heart surgery (she does <b>not</b> have CF), and we want to get her some fun gifts while she's recovering. I'm figuring since she'll be in ICU for a few days we might just wait to have the gifts sent to her house once she's back. She'll have about a 2...
  12. C

    BeautifulSoul - are you there?

    Has anyone heard from Amber / Beautifulsoul? I bet a lot of people here would love to hear that you're doing well if you still come here. How has life been after both txs? I hope you're doing well. (OT, or PM material - I know)
  13. C

    What to get a 6 year old?

    My niece is 6 years old and going in for heart surgery (she does <b>not</b> have CF), and we want to get her some fun gifts while she's recovering. I'm figuring since she'll be in ICU for a few days we might just wait to have the gifts sent to her house once she's back. She'll have about a 2...
  14. C

    Trouble spots in your lungs

    When you're laying down at night, do you guys have one side or the other act up and make you cough when you roll over? I find that when I lay on my right side, that that works best for not coughing - most of the time. Then <i>sometimes</i> when I roll over to my left side, it will trigger...
  15. C

    Frustrated with my vest.

    I've had a half chest version for years now and it's been okay. It probably doesn't fit perfectly right though so I've been starting to ask about getting a perfect fitting one. When I went to Denver for a doctor visit, their pulmonologists picked out a child's large Hill rom vest for me and...
  16. C

    Anyone using Blue Shield PPO?

    Just wondering if anyone who lives in California uses the Blue Shield Spectrum PPO Plan 250, Premier Plan? I'm curious to hear if it's been okay for you. Thanks.
  17. C

    Happy Bday letsrockcfem!

    Here are some extra bday wishes in the adults' section. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Have a good day Emily! <img src="i/expressions/present.gif" border="0">
  18. C

    Republicans & Healthcare

    If you're voting republican, I'm very curious as to how you feel they can help the healthcare situation. I just don't understand. Please share why you believe Romney or McCain will be the best person <b>in relation to healthcare</b>. Considering everyone on this site is effected by CF...
  19. C

    Atrovent

    This is my second day of taking Atrovent for the first time. The label says don't expect to see results until 2-3 weeks into it. I feel like I could tell a really big difference within the first 8 hours (it has helped keep my bronchial tubes open <i>way</i> longer and that first night I could...
  20. C

    Impaired Glucose

    I know I've been "borderline" diabetic for a few years, but that's the extent of what my doctor has ever said to me. I've never been told to change anything or worry about it. Last month I took a 2 hour fasting-glucose test, and yesterday they told me I have impaired glucose. I don't know what...
Top