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Also posted in the Adult section, but I didn't want any of you to miss it: Hey fellow Canadians! The Adult Cystic Fibrosis Committee (ACFC) has an open position - Ontario Vice-Regional Representative. You can check out the details here: http://www.cysticfibrosis.ca/en/index.php I'm currently...

Hey fellow Canadians! The Adult Cystic Fibrosis Committee (ACFC) has an open position - Ontario Vice-Regional Representative. You can check out the details here: http://www.cysticfibrosis.ca/en/index.php I'm currently waiting for a double-lung transplant in Toronto and have been blogging about...

I posted this in the adult category, but don't want to miss any of you that are going through or will go though or have gone through the same thing. I've been on the transplant list for 1 week in Toronto, Canada and I've started a blog for my hometown, family and friends to follow. I'd love it...

Hey guys. I've been on the transplant list for 1 week in Toronto, Canada and I've started a blog for my hometown, family and friends to follow. I'd love it if you'd take a look: http://livelaughlungs.blogspot.ca/ I'll be doing my best to educate and raise awareness for both CF and organ...

I guess I should give some history. In January I had double pneumonia, was in hospital for 3 weeks on IV's and was sent home with 2 more weeks of antibiodics. I went back to clinic for a checkup, before the antibiodics were finished, and because there were still crackles she extended those...

I can't believe this actually happened! I was at an HMV today with my husband and I was coughing (it's really bad right now cause I have an cold). And this man looks over at me, smiles and says "<b>That sounds like a marijuana cough</b>"!!! WTF????!!! I can honestly say this is the 1st time I...

At my clinic apt Friday my oxygen sat level was 93%. Normally I am 98-99%. I just wonder if this is something I should be worried about, or if this is normal?? I should add that my FEV1 is 30% - I struggle with trying to improve this. Just looking to be more educated, thanks!

Hi everyone. A friend of mine's sister (with CF) was told by her doctor that she has stage 3 CF. What exactly does that mean? I've never heard of it referred to in stages - beyond end stage. Your help would be great.

Does anyone bloat after they eat? I get really bad, so bad I could be mistaken for pregnant. I'm actually on pills now that I take before I eat every meal. Just curious to see if this is a problem for anyone else.