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    this sickness is getting to me?

    <br><font color="#000000" size="3" face="Times New Roman"> </font><font color="#000000" size="2">I got the called from the CF nurse yesterday that Josh tested positive for a pseudomona, she said there was a little in his culture. Last week at his check up the doctor added in Spirvia. She called...
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    Home again, home again ziggady zig

    <P>Josh got out of the hospital today, day seven. His lung functions are up from 61 to 63. The doctors thought that was improvement. He had a PICC put in on Thursday and will be taking Cefepine (tid) and Tobi (qd) at home. Home healthcare was here earlier. We are both kind of tired as it was a...
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    grades are down UPDATE

    Josh managed to take his finals this week. I did talk to the principal and he will make accomodations for finals with a letter from his doctor. If he tanks his finals they will adjust them to reflect his normal work. He missed two finals today. I got the letter today; the CF  clinic social...
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    Josh is n the hospital

    <P>Josh was admitted to the hospital yesterday evening. I took him to CF clinic one week earlier than the 4 week check up as he was coughing more.  Lung functions were at 61. He will be here for about a week, maybe he will be disharged as early as Tuesday. His PICC line ws put in today and...
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    School grades are down

    This may sound like "the dog ate my homework" but I have noticed that Joshua's grades have gone down over the last month. He is not in danger of failing anything for the year but his performance is not what it has been over the previous quarters. He has been on antibiotics since his visit to...
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    worried about Josh

    About a month ago Josh had his regular CF checkup and his lung functions were down below not sure, I think 70 to 75. His doctor put him on antibiotics and increased his xopenex to three times a day (switching to the solution at night), and increased the use of his acapella to 2x a day. He had...
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    2% Bactroban as nasal rinse

    I saw a sinus specialist at Hopkins today who works with CF patients. I still have no diagnosis; the adult CF clinic sent me to her as they don't think I have CF. I was using pulmicort in my nose for the last month and today she switched to bactorban 2% mixed in a neil med solution, twice a day...
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    Insurance update/ Xopenex not covered

    I just received a letter in the mail stating that as of January 1 United healthcare will no longer cover Xopenex "as it is the same as "albuterol". I was told that albuterol has a shorter life years ago by Josh's allergist so he would have to use it more frequently on a daily basis. Also when I...
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    VERY CONFUSED ABOUT SYMPTOMS

    Hi, My son Josh as CF and his clinic doctor thinks that I do also. We both have very similar results on nasal potential differential testing, always have sinus headaches (well he doesn't so much now with treatment), and have a history of asthma/lung problems. I saw a doctor at the adult CF...
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    abnormal CF and nasal potential testing

    This is also posted under family: My son Joshua has atypical CF diagnosed in Sept. of '06. He was diagnosed by nasal differential potential testing at age 12. I finally, after two years of waiting, got a NPD test today. I have many of the same symptoms as Josh......chronic sinus problems, chest...
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    abnormal CF and nasal potential testing

    Hey Group! My son Joshua has atypical CF diagnosed in Sept. of '06. He was diagnosed by nasal differential potential testing at age 12. I finally, after two years of waiting, got a NPD test today. I have many of the same symptoms as Josh......chronic sinus problems, chest congestion, cough if...
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    posting problem

    How do I get the paragraph spaces to show when I post? I put in space between what I assume are paragraphs but they don't post that way.
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    My Neighbor's Second Hand Smoke

    We live in a town house that is semi-detached. My neighbors share a common wall with us and have been there for at least four years. Mr. D is a heavy smoker and has been since we've known him. He has some respiratory issues and his doctors and wife have tried to get him to quit. REFUSES...
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    He Did it but he has pneumonia

    Well he did make the trip and stay the whole time. When he got back last Friday his peak flows were a little low. On Friday I called the CF clinic and the decision was to continue the bactrim for an additional two weeks and call in four days if he didn't seem better. My Tuesday night and...
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    HE DID IT

    I am so proud of the two of us for working so hard so he could go with his class to North Bay. He was able to stay the entire 5 days like the rest of his class. He came home Friday afternoon. The nursing staff was wonderful....made sure he took all of his medicines and even knew how to use the...
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    worried and disappointed

    I feel like a unloyal friend to you guys because I haven't been checking in and posting. Now that I need some support to end this worry I'm turning to you. School and clinical practicum are really keeping me busy. Josh has had a coug since the weekend, horce sounding voice a good bit of last...
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    Fecal elastace test: Normal

    Poop test was normal, yahoo!!!!!! Vitamin D was down again so he will be starting that again as soon as I get the Rx in the mail. I just got a 90 day supply of pulmozyne from the mail oder pharmacy gor $35; They claim it cost my insurance $4447. OUCH!!! I feel like I got a <img...
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    how do I make those little smiley faces show up?

    I can't make the faces show up. I click on the left side where it reads symbols. Than I try to copy and paste the faces but they won't paste. What to do? What to do?
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    six week check up and looking good

    Hi all, Josh had his check up on Wednesday, the day before Thanksgiving. The only problem with this time is that the pt team wasn't in and the doctor was a bit rushed. We had a 3:30 appointment. Oh, yes, and not all of his labs were in. I now know to get those done right away. His lung...
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    I like the new posting page

    Having all these little guys ( the faces)nice and handy is way cool. Uhhh, I spoke to soon. How do I use them
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