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Geezz.. A hundred bucks for 15 days of Zyvox. Just curious - How much has everyone else paid for their Zyvox CoPay? I can't imagine how expensive the IV's must be!

Hey Everyone! <br><br> Talked to my dr the other day about scheduling a port placement for Sept. I've never had one, only had piccs. I am excited about the port but I'm a bit nervous too. Not sure how many days I need to take off. I was planning on having it done on a Wednesday or Thursday so...

I hate skipping parts of my treatment. But as we all know, sometimes it's just unavoidable. Today I got stuck at the pharmacy longer than I planned and still needed to do some things around the house, run errands, etc. Working full time and trying to fit in everything we need to do every day can...

We finally got our Wii Fit yesterday. I love it! If anyone is interested in a fun way to exercise, I highly suggest this! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

hey Everyone<br><br> How long does it usually take you to get back to your normal routines (Hypertonic Saline, Pulmo, Vest, Exercise, etc) After a bleed?<br><br> I bled some yesterday morning while breathing my Pulmozyme before work. I felt kind of gurgly all day, you know the feeling. I layed...

I had a bit of an allergic reaction last Friday when I got my allergy shot. It wasn't immediate - my arm starting getting itchy several hours later and then it kind of "welped" up. Over the weekend it got a little bit of a knot in there, but it went away by Sunday evening. I didn't call my dr...

Does anyone ever get a chemical like taste in their mouth with Tobi? I'm trying to figure out what is causing mine. I started Tobi about a week ago, but the chemical taste has only been in my mouth for a couple of days. What causes this?

I CAN'T STAND doing my vest first thing in the morning. I normally do my vest for about an hour every night. I can tolerate waking up to HS only, but for some reason, both of them together is just too much. What do you hate waking up to?

Hey !! <br><br> I have to share this because I'm so happy! My normal that I breathe on my little plastic peak flow meter is 250. The highest that I have ever gotten was 305. Tonight, I blew a 320! I'm sooo proud. I was expecting a 250, since I just started Tobi, and I'm always SOB with Tobi. It...

Tonight for some reason I watched the Real World awards on MTV. They paid tribute to Frankie and Pedro. Just wanted to let you guys know.

So I started walking and exercising a few weeks ago, and I have felt so much better! Woo Hoo! I've even gotten past the phase of feeling like my lungs were going to burst from being out of breath. I cam easily walk now without feeling like I'm going to die! :-) Lung function is back up to 40%...

Hey everyone<br><br> I was curious about what other people do on here about the food situation when it's time to do vest and breathe Hypertonic Saline. I have to wait like two to three SOMETIMES FOUR hours after I eat before I can do my treatment. If I don't, I'll PUKE. <br><br> Anyone else have...

HELP! The "winter blues" have got me down! It's starting to finally get a little warm around here, and I'm DYING to go outside!!!!!! My last doxycycline pill is on Thursday... When should I go outside again? My soul needs sunshine... <br><br> Anyone else feel like crap because of this weather...

What's up with them calling at any time they want, coming over whenever, and thinking you have nothing better to do than to sit around and wait on them to call or come over?<Br><br> They think sick people have no life. They called earlier saying Don't do any of your Meds until you hear from us...

Taking the poll just now made me think - Do any of you consider HS airway clearance? I think it can be considered airway clearance since it makes us cough up so much stuff. Just a thought! <img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif"...

When do you find exercise to be the most beneficial in regards to your treatment order?

Hey Everyone<br> Went to the doc yesterday and my FEV did go up a little bit. It was like 28 percent or something and now it's 33. So the IV's are working a little so far! <img src="i/expressions/face-icon-small-happy.gif" border="0"> I told my doctor that I want to start exercising but not sure...

I haven't really felt very good the last few weeks, and I knew that I would probably need to get back on IV's or something to get me back to my usual self. <br><br> Please keep in mind that I've only done IV's twice in my life, the second time was last Oct, the first time was back when I was...

My picc was removed back in Oct, but I had a few post - picc questions for you guys.<br><br> 1 - How long should any pain last in your picc arm? My arm doesn't hurt all the time.. This may sound weird, but sometimes when I put on lotion with my picc arm or if I were to hold a bottle of windex...

Happy Friday Everyone!<br><br> I was wondering if anyone else uses "Heat" to help break up or "melt" their mucus? <br><br> For example, before a treatment, or when I am waiting on Albuterol to kick in, I'll drink some hot tea and place a heating pad on my chest. It seems like this helps melt the...