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  1. M

    I need your input please

    I need your input please. How long does your Dr keep you in the hospital for a tune-up? Do they send you home on IV's every time or do always stay the whol 14 days. My new Dr has a different approach than Im used to. He likes his CF patients to come in for a tune up for the first 4-6 days then...
  2. M

    A child with cf is needed for a paid study

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  3. M

    dumb question

    Does having CF mess up pregnancy tests? Maybe by not allowing hcg to be detected as soon as healthy women would? I am 3-4 days past my normal luteal phase and still getting neg hcg tests. I know alcohol is not detected correctly in my breath. I did an experiment a few years back with it. Our...
  4. M

    Do any of you ladies that have had IUI's live in the Los Angeles Area?

    Can anyone refer me to a good fertility clinic in the Los Angeles area. I might need to see one if this month isn't successful and just dont want to pick one out of the phone book so to speak. TIA
  5. M

    How do you make it work??

    I am trying to get myself motivated so to speak to embrace being a house wife and doing better at it.....how do you keep yourself motivated to do the things at home that need to be done? Please give me tips that you use...also list what your responsibilities at home are ie: paying bills...
  6. M

    any ideas?? -- Updated with another Q??

    Yes its me again...lol. My hubby and I are trying to get pregnant and I am getting impatient. I need all the ideas I can get. I am getting ready to turn 36 and am getting nervous that this is taking too long. I am using the ovulation monitor and am on my second month trying that. I am starting...
  7. M

    Coughed a black piece up

    I am currently in the hospital for a tune up. I caught a really bad cold and it went straight to my lungs within two days and turned into pneumonia. Well last night I was up all night coughing my head off. Well not really lol but it sure felt like it. After coughing gagging and almost throwing...
  8. M

    Does anyone see a regular pulmo for their care??

    Without getting into details about why I want to switch Dr's, I would appreciate any help you all can give me. I was wondering if anyone in the Los Angeles area sees a regular pulmo for their CF care. I would like to find one that someone can recommend to me. I want someone experienced with CF...
  9. M

    cbe monitor

    My hubby and i just ordered a clear blue easy online and it should be here in a few days. We bought it because we arent sure if i ovulate every month for sure. We are very excited to take this next step in baby planning. We will try this method for a few months to see if it works. If not we will...
  10. M

    Question about colistin and eflow

    I am a new user of the eflow and have some questions. First off i just want to say i love my eflow!! Its amazing! I used it for the first time with the colistin awhile back and stopped because it made me nervous. After nebbing the colistin i got a strange "wet" feeling in my lungs. It felt like...
  11. M

    extremly sore breast

    For about a week now i have had extremly sore breast. It hurts to even role over in bed. My concern is that my cycles are normally 35 days. That means i should not have even ovulated yet. I am expecting ovulation in the next few days. My breast dont normally get sore until after i ovulate. My...
  12. M

    i have the "vest" and cant use it

    What can i do with it? I have had it for years but have hardly used it. I cant use it because of my hemoptysis problems. I have to avoid cpt on my upper left side which is impossible to do with the vest. Can i sell it? And if so how much should i ask for it? I would rather sell it than donate it...
  13. M

    finally i have a e-flow!!

    This thing is amazing! I cant believe its silent! Oh the things i get excited about lol Do you like yours? Any suggestion you can give about it would be appreciated. Since its new to me, i need tips from the pros. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  14. M

    CF awareness earrings

    I have created some cf awareness earrings. Come check them out. 2% of all my profits are donated to the cff. www.khristysbeadery.com
  15. M

    fondreflections (jenny)

    I havent been on here much lately. Life in general has kept me busy. But in general my health is good. I started exercising this week. Ive been riding my bike on the trails by my house. I forgot how much my butt hurts from the bike seat when i first start to ride it rofl!! I have searched for...
  16. M

    are you struggling with cost of infertility treatments?

    Is there any other cysta that is frustrated with the fact that these treatments are so expensive. I mean having a child naturally is expensive alone but then we have to add this extra expense just to make it all possible. I was thinking that maybe there is a way to raise money to support us in...
  17. M

    Frustrated and confused

    First off I want to say hello. I have not been on here for a long time. I do miss all of you!!!! I have come to a strict realization that hubby and I cannot get pregnant on our own like so many of you. Its so frustrating and emotional draining. I am at the point of calling fertility clinics...
  18. M

    RE and insurance

    Forthose of you that have seen an RE what insurance do you have?? I only have Medicare and GHPP. Is there a chance that an RE would take medicare? If not how much are the office visits? Lets say I had to take clomid and do an IUI how much would I be looking at roughly with the office visit?
  19. M

    Breaking News!!!!!!!!!!!!!!!!!!!!!!!

    I received this email from CFF.org. <b>It sounds so promising!!</b> March 25, 2009 The Cystic Fibrosis Foundation announced today the initiation of a Phase 2a clinical trial for VX-809, a compound designed to treat the basic defect in cystic fibrosis - a faulty gene and its protein product...
  20. M

    For those of you in the Los Angeles area

    I was just curious to know if anyone that lives in southern california sees a pulmo instead of a cf center? I was seriously considering this but dont know where to start. If you see a regular pulmo, would you reccomend him/her to someone else? How long have you been seeing this Dr? When you get...
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