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    OW OW OW OW OW

    HELP ME!! Ok I'd almost forgotten how painful these are. Does anyone else get bowel blockages? What do you do? I got my husband to get me some Golytely and I've drank about four glasses now. Earlier on the pain was so bad I HAD to take a dilaudid, but now I'm worried that that's going to...
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    Prednisone

    Hi everyone, Many of you know me because I used to post a fair bit last year and I had a blog with some comics on it etc. Anyway, my health took a major nosedive in November when I broke my ribs and now I'm listed for transplant (I was listed May 13th) here in Vancouver, Canada, where I'm...
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    Homeless Junkie Panhandlers...

    When you see a homeless person on the corner and he asks if you can spare a little change, do you help him? What about if you know he's addicted to meth or heroin? Do you feel compelled to help because you know about suffering from your experiences with CF, or do you feel that it's totally...
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    Canadians with eFlow

    Ok, Having searched around on the internet on Pari's website, and several Canadian pharmacies, as well as the Canadian Cystic Fibrosis Foundation and the many posts on here, I haven't yet found the information I need. Do any Canadians on this website use the eFlow? Do I have to order it from...
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    General Debate

    <img src=""> Sorry moderators, you can erase this one. I was just being dumb.
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    It doesn't matter

    Wow, I'm amazed that this topic has still gone on! I was hoping it would just kinda fade away into that nebula of past topics, and that nobody would ever search for "Nothing...never mind"! Basically, what I had originally posted was that I was <b>deeply offended</b> by the abortion post, not...
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    POSSIBLE CURE?

    Go here: <a target=_blank class=ftalternatingbarlinklarge href="http://www.timesonline.co.uk/tol/news/uk/science/article1690544.ece ">http://www.timesonline.co.uk/t...icle1690544.ece </a> Neat eh? What do <b>you</b> think? Chris
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    Does anyone NOT use the vest for physio?

    I thought I'd put this out there: A NON-vest (<b>not by any means ANTI-vest though</b>) thread! I do an hour in the morning and an hour at night of physio. I do my nebs first (Ventolin, Pulmozyme) and then I do PEP while lying in various drainage positions. In between sets of the PEP I do...
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    Hilarious Leg Spasms When You Cough

    Sometimes when I cough really hard, or am having a bit of a coughing fit, my leg starts spasming and shaking! It's like either Thumper from "Bambi", or else a dog getting scratched where he likes it. I think it's hilarious, and my physiotherapist said last time I was in the hospital that she...
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    How Much Sleep Do You Need?

    Does anyone else find they sleep a lot, seemingly more than an average healthy person? I find I need about 9 hours of sleep at night, and then I usually take a 2 hour nap in the afternoon. I wonder if this is because our bodies are always fighting infections and trying to save energy...? Chris
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    Your sputum colours...

    Just curious to see what colours people cough up when they have flare-ups and how that correlates to what they grow. I realize that this may be gross for some people, but I'd like to know. Myself, for example: I grow Cepacia, Staph and Pseudomonas and when I flare up it's yellowish-gray...
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