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Hi there, I am Joni 61 y/o .. I was dxd @ 44 y/o but was sick w/ cf symptoms starting at about the age of 16.. I was a skinny little girl & had some heath issues younger than that , but cf really started rearing its ugly head when I was 16.

Wow, Looking over some old blogs brought back many memories .. Ty for posting this ..

Hi Rosie, It is normal to feel down every so often when dealing w/ CF. Have you thought of seeking professional help ? I did after I had renal failure & it did help me. Is there anyone you can talk to about how you are feeling ? Maybe a Priest/Rabbi ? A close relative ? You shouldn't...

Hey Leo, Welcome to CF.com :) I asked one of my southern Cysters about her center , here's the info .. There are only 2 Cf centers in Alabama- the Adult CF clinic at UAB (University of Alabama at Birmingham- Kirkland Clinic building) and the children's clinic at Childrens Hospital (also in...

Good question... I will be looking forward to answers. My only bad experience w/ a asthmatic exacerbation was when my dr. wanted to stop my Advair to see how I could handle it. I ended up in hospital for a week on IV steroids ..

I would think your new ENT will want a CT scan of your sinuses. Did you get scoped by your previous ENT ? If not you probably will. They spray something in your nose to numb you. Then stick a scope in (it shouldn't hurt) & can see a lot plus get cultures if need be. Sometimes besides oral...

Sorry, No ideas .. I just wanted to congratulate you guys on getting married ! Glad to hear Lucas is home (although I didn't know he wasn't lol) Take care Betty :)

Tell everyone to run for cover lol

Dalton Dingus passed away today :( My thoughts & prayers are with his family & friends.. Breathe easy little one (U)

I have similar problems. I have bought the strechie skinny jeans which i love. I also bought a pair of bell bottom maternity jeans that look great on me ! I didn't want to go that route but finally did & as long as the shirt/sweater is long enough its fine :)

Hey Leah, So glad you didn't have to have surgery ! Ty God ! I had a similar experience last Christmas. 2 days before Christmas Eve I was in terrible pain. Went to my local hospital (big mistake) & it was discovered I had a blockage. Thank God the surgeon that i was assigned listened to...

Every CFer is different. And there are so many things in our lives that can cause different problems. I guess my questions to you would be, Are you happy w/ your dr./clinic ? Are you being compliant w/ your treatments ? Are you exercising ? Even w/ doing EVERYTHING Possible we can still...

Hi Ben ! Welcome back :)

I wish i had the magic answer for that Chrissy, but I dont think there is an answer .. I was a late diagnosis.. I do try to be as pro active as possible. I am currently in a pulmonary rehab program, I think exercise is SO important. I have loving & supportive family & friends & most of all...

I had my first 2 sons when I was 23/27 & my last 2 sons when I was 38/41 ! I wasn't dxd until I was 44 , so in a way it was a blessing in disguise that I didn't know I had CF at that time because I don't know if the outcome would have been the same. Just sayin' if you are "healthy" & your drs...

Thank you everyone ! :)

Many new ppl here at cf.com & just wanted to let you guys know that today I am 61 years old ! I pray that all my fellow Cysters & Fibros reach my age & way beyond ! :)

Yes it is Jeanne ! 61 & counting , God willing :) Ty <3

I may be missing this somewhere on the site but dont see it posted. Brad King has passed :( May he RIP & Breathe easy now. Thoughts & prayers for Brads family & friends <3

Merry Christmas Jenny :)