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Please help support us in our campaign to have Kalydeco placed on our PBS - which makes the drug financially accessible to all who need it. It has been under reveiw recently and the PBS committee have deferred their decision in order to discuss further with Vertex. We are running a social...

<a href="http://www.clinicaltrials.gov/ct2/show/NCT01531673">http://www.clinicaltrials.gov/ct2/show/NCT01531673</a> For DF508

http://www.facebook.com/groups/153375788050316/<br>

http://investors.vrtx.com/releasedetail.cfm?ReleaseID=620638<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br>

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/6-10-Vertex-Plans-to-Provide-VX-770-Early-Access.cfm<br><br>Vertex are going to make the 770 available for people who have critical disease.<br>

> > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 With a Specific Type of Cystic Fibrosis Showed Profound Improvements in Lung Function (FEV1) and Other Measures of Disease Through 24 Weeks > -Mean relative improvement in lung function of 17.4% and mean absolute...

> > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 > > March 29, 2011 11:30 UTC > > Phase 3 Study of VX-770 in Children Ages 6 to 11 With a Specific Type of Cystic Fibrosis Showed Profound Improvements in Lung Function (FEV1) and Other Measures of Disease Through...

....its now 14+mths that I have been on my Trial CF Med and I cant tell you all how amazing it is. My lung function is at an awesome 87% still. My Lung volume (FVC) is 113% above normal values. I haven't been seriously CF sick now for this entire time. This is the greatest gift ever. Thankyou God

Hi Check my post on the adults forum....

Hi everyone.... This is so exciting!!! My son has been on the 770 trial for the last year, I cant talk about it on open forum but you should get my subliminal message here!! dDF508....get on this trial if you possibly can!!!! <a target=_blank class=ftalternatingbarlinklarge...

Hi I know theres a post below, but it is an old one and I thought some may not have a look...just wanted to post this link, Connor is really struggling at the moment, please think of this family and pray for a peace and painless last couple of days for him.... I just pray that his mum, dad...

Hi We're into summer and they're revving up the H1N1 again, asking people to be immunised. I'm wondering how you all got on in the US and other countries? Did you find it was as bad as it seemed to be or was predicted to be? I know we have lost a few members in your *US* winter...do you think...

Hi everyone Could you please keep a young friend in your prayers....he doesnt come on the forum, but goes to church with my son. He is 17 and received the call last night. We heard the op was to go ahead at 12:00am...Christmas morning here!! Havent heard anything else yet, but I understand he...

Hi all S, my 13 yr old, has been complaining of stomach pains for the last few days (four days). He tells me that when he passes a stool the pain reutrns. He's been passing loose stools, a few times a day (which is unual for him, it's usually less), and says that the pain returns afterward...

Hi Just heard a news report that a h1N1 vaccine may be available here on the 7th September. Now that I've read and heard more about the side effects of a previous H1N1 vaccine and the tamiflu, I'm not sure if I would encourage my kids to have it. Obviously my adult children will make up their...

Hi My 12 year old son has just been diagnosed with type 1 diabetes (not cfrd) and also has CF. Just wondering whether there is anyone else out there who has type 1 also, and how things are going for you. He has been really healthy from a CF point of view, hadn't had any antibiotics for 18...

Hi bengismum Hope you read this post. There are messages of encouragement and support on the families forum (under title baby needs our prayers I think) in case you havent read them. Hope things have improved for bengi...you are in our thoughts and prayers.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>MCGrad2006</b></i> Well I have had my eflow for 12 months now, using it for the aztreonam study that I have been in. My PFT's hit the highest they have been in over 6 years last summer after only a few months of using the...

Hi Just curious about the use of NAC...from what I understand (could be totally wrong ofcourse!) NAC prompts the cells to produce glutathione...is this correct? I wonder whether the use of NAC gets better results than GSH (Glutathione, oral/nebbed)? Does anyone know? Does NAC do something else...