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Squeezeable applesauce!!! This may be my new favorite thing in the whole world. I thought about all the CF moms and dads as soon as I saw it. Here's the link to check it out, and see if a grocery store near you has it: <a target=_blank class=ftalternatingbarlinklarge...

I was looking on another website, and someone was talking about when their child was diagnosed with cf, and they said something, but i'm not sure if it's true. They said that 90% of parents with a CF child file for bankruptcy, and 90% of families break up due to the stress. This seems really...

We went to the clinic for Alexa's 1 year visit, and I brought up the topic to her doctor and RT. They told us that they don't like to put children aas young as her in the vest, b/c it scares them, and makes them fight it as they get older. I don't think that I buy this, and I would love to have...

Alexa hasn't really been pooping in the last day and a half. She went to the clinic yesterday, and everthing was fine, but then she only had a tiny little poop in her diaper late in the day. Today she makes the poop noise and face, but when i look in her diaper, it's still just a tiny little...

this is the first montage i've ever done! tell me what you guys think <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/shared?p=4e1d35d3a21b9d1a657fb7&skin_id=701&utm_source=otm&utm_medium=text_url">http://www.onetruemedia.com/sh...tm&utm_medium=text_url</a>

From everything I've been learning these past few months, I know that Dr. Warwick is the best when it comes to CF care. Don;t get me wrong, I love my clinic, but I do wonder what I could learn from him, and how much of a difference in Alexa's health it would make.. How did you guys go about...

Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy...

I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know...

We went to the cf clinic on october 2nd, and they couldn't see us b/c we weren't able to get a referral from her pedi, but they weighed her anyway, and she was 11 lbs even which put her in the 5th percentile. We were concerned, and if the weight didn't pick up, they were going ot take her off...

I took Alexa over to the cf clinic yesterday, and she's gaining weight, but not fast enough, so they said we should start her on rice cereal. She's almost 4 months, and I think that this is a really good idea. They told me to give her the cereal once in the morning and once at night, bu tmy...

I started to feel a little warm this evening, and I took my temp and i'm at around 100 degrees... I dont' want to be around Alexa, especially b/c of the CF, but also b/c she's only 2 and 1/2 months old. I had her dad take her tonight, but if i'm still like this, what do i do when he goes to work...

there is a woman over on the newly diagnosed board, whose granddaughter was just diagnosed with CF If i remeber correctly, the baby is under a year old, and tehy just finished up genetic testing on her. The part that doesnt sound right to me is that her CF clinic told her that she dosen't need...

hey everyone....this is totall off topic, but Ikea is doing some kind of main street makeover contest..and my hometown is is in the running!!! the voting ends tomorrow, and we're in second place, and only off by about 100 votes! If any of you have some time, it would be awesome if you could...

The nurse from my cf clinic called today......alexa looks good she says, we have to go back in on monday to check her weight and start the formula study she's on. They did a throat culture on her, adn she cultured e coli.....but i'm under teh impression that most cf babies culture this, and that...

jst wanted to put a few pictures of Alexa up......she'll be 5 weeks tomorrow....the time really does fly by! <img src="http://i27.photobucket.com/albums/c178/aura7781/digitalcamera069.jpg"> <img src="http://i27.photobucket.com/albums/c178/aura7781/digitalcamera112.jpg"> <img...

I take alexa back to the cf clinic in about 2 weeks, and i was wondering, for those of you who knew about the diagnosis from the beginning, what is the most aggressive preventative treatments for a baby this young? I know CPT, but what else should I be bringing up to the doctor? I want to get...

This may be a little long winded, so i'll say sorry now...... Ok, so Alexa was diagnosed with cf (ddf508) before she was born, and we're doing everything we can to keep her as healthy as possible for as long as possible. The thing I'm actually confused about is my boyfriend, her father. The...

so, i just started alexa on enzymes 2 days ago, and her poop color has gone from like a yellowish spicy mustard color, and now it's a darker greenish color.......is this normal or should i be worried? I'm guessing this is from starting the enzymes, but i'm not sure......

So, Alexa was born on 6/12, and I have our first appointmnet with her at the cf clinic on 7/3......is this waiting too long? I dont want to not be doing treatments that she needs, but they made it sound like waiting the few weeks was ok. Also when i do go in, what should i be askign them about...

WEll, my lil girl alexa was born june 10th at 12:22 am......she was a good weight, 7lbs 7oz, and had no blockage of the bowels......she's beautiful!!! I'd post a picture, but i'm not sure how......we take her to the cf clinic next week. Any advice for the first few weeks of raising a cf baby?