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I'm finding the zithromax maintenance dose of 500mg three times a week is giving me recurring vaginal yeast infections, about every 6 to 12 weeks. Does anyone take the supplement, acidophilus everyday? And if so, how much do you take? How many times a day do you take it? When I'm on IV...

I want to share something with everyone here because recently in chat it's dawned on me, not many people know about this. I grew up going to the CFRI's Cystic Fibrosis summer camp. I looked forward to it every year when I was a kid. What many people don't know is, it's still going on! It's...

I was just informed my DEXA scan has showed increased bone loss. I still have osteoporosis and my CF doc has recommended I visit with my primary care physician to discuss different treatment for my osteoporosis. I'm currently on Boniva and it's no longer increasing my bone density. Does anyone...

I'm looking to buy a small portable nebulizer compressor. I've heard about the Pari Trek and the Pari Pro Neb Ultra II. Is there any reason I can't use the Trek for 3+ hours a day at home? And of course it would be small enough to pack for a vacation as well. What kind of compressor do you...

I've had a rough two years. They haven't been horrible but I can't seem to get out from under "infection" stage. I go on IVs, I feel better, my cough is near nil, I go off IVs and less than two weeks later, my PA is "flaring up" again. I try and ride it out sometimes, other times I hit it with...

I just got the results of my most recent sputum culture taken about 10 days ago. I had no PA, which is weird, but I had a new (for me) gram negative bacteria called Aeromonas salmonicida. Has anyone cultured this before? This is the first time myself and my doctor have seen this one. I did a...

This year, I started wearing oxygen at night. My first travels are planned in one month. Guess what, my insurance does not provide oxygen travel arrangements. When I travel I become a self-pay patient. The good news for me is that I only require 2-3 Liters of O2 at night, say, up to 12 hours...

I had an appointment for an exacerbation on Monday. I've been given some oral antibiotics and should be good to go in a few days, I hope. But my question stems from my PFT. The doctor's office used to have my predicted FEV1 at 3.19L. I noticed everytime I went to clinc my predicted was lower...

Has anyone heard from Bonnie in the last couple days? Bonnie, if you're out there, let us know how you're doing. I hope bedrest is treating you well.

I have CF myself and I have 2.5 year old twins. 7 years ago my husband was tested for the CF gene, 26 mutations I believe, and it came back negative. I was satisfied with that and went ahead to pursue a family with him. It wasn't until I got to this forum a couple months ago that I learned...

Hi Kelly, Did you have your ultrasound today already? I'm anxiously awaiting an update from you. I hope you got to see a beautiful sac in there....or two???? My first u/s wasn't until 6.5 weeks when there were heartbeats. I'm surprised they are going to peek in this early, but I always welcomed...