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  1. C

    Who are you in a nut shell

    who are you in a nut shell My name is Becky. I'm 38. Diagnosed at age 30. Been on here for a few years on and off. average weight. do not have failure to thrive. Lungs are 38%. O2 at night. Had to stop working 4 yrs ago. Have dog, Bailey Cat Sam. The cat and I have the same birthday...
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    Who are you in a nut shell

    who are you in a nut shell My name is Becky I'm 38 I live in Mich. I was dx at age 30. My weight is 180. I am 5'9" Yes it seems I dont have the weight issues most cf'ers do. I did in my 20's. My pfts are 42% We have chosen not to have children. I have been with my boyfriend for 17yrs. Yes...
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    HEARING LOSS

    Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...
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    HEARING LOSS

    Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...
  5. C

    HEARING LOSS

    Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...
  6. C

    HEARING LOSS

    Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...
  7. C

    HEARING LOSS

    Hi everyone I havent been on in forever. But now suffer from the same as Joe is speaking of. I dont have as much of the osilopsia as I first did. I had to go to a vestibular rehab class. I do know now that this is caused from years of Tobi and one Iv of gentamycin. They are from the same family...
  8. C

    Oxygen Question

    I am on O2. I have a concentrator and a small tank called a spirit. Melissa have you tried putting the concentrator in another room? That's what I do. I have a 50ft O2 hose. The spirit tank has a continuouse flow on it. So when I'm somewhere where it's quiet I can put it on that setting as to...
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    My christmas stocking gifts - funny..!

    Bahamas sound GREAT! As I look out the windw at 35degrees, Rainy, evening. <img src="i/expressions/sun.gif" border="0">
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    Does anyone use a bipap

    Thanks everyone. Youve been a big help with all my questions. Hopefully my O2 just needs adjusted. I really don't want another noisy peice of equipment. But I'll take it if it makes me feel better longer. I do get tired during the day, and have very vivid dreams but no nightmares. My dreams are...
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    The "First" Holiday

    I do hope your all feeling a bit better today. I know how hard it is to think about having fun when you feel so bad. I know for me I have a hard time because I lost my step dad (whom is the only dad I knew) he loved the holidays. After he passed none of my family wants to get together. It's been...
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    Finished my semester today...

    Definately the image made me giggle. But it just shows your strength. Congrats!!<img src="i/expressions/face-icon-small-happy.gif" border="0">
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    Does anyone use a bipap

    When you had your sleep study did you have to spend the night or was in 1/2 the night or what? Is there other symptoms of high CO2? I don't seem to get headaches. I'm currently on O2 at night but havent been sleeping very well lately. So the cf doc wants me to go to a sleep study. I was also...
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    Dr Phil

    Blah, blah, blah.... You obviously care. Your having a fit about it. <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    How many CFers are home owners?

    My boyfriend and I are homeowners. We are not married nor plan on it as his health insurance is nothing for a cf'er. So we really cant. But we did the next big step, own a home 4yrs ago. I was also working and in better health back then. Since then I have had to go on disability last yr. So it...
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    Dr Phil

    Sean, I wasnt just talking of the Dr. Phil comment. I'm not that shallow. I just feel you reach a bit to far to think some of the things you say are funny. You don't know me as I don't know you but I'm always smiling trying to make people laugh i person but the things you say at the times you...
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    mood swings....ladies any ideas??

    My mom had terrible mood swings her dr recomended she try a soy based estrogen as they don't like to give prescriptions of estrogen tablets anymore because there bad for the heart. Anyway she's much better now. Phwewww.. Heeehheee. She gets then from the health food store. Of course ask your doc...
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    Dr Phil

    I started to cry, it is very surreal to watch someone with the very disease you have to go through so much devastation. Espeically when they showed her standing with the lungs they took out. It makes you think. They did a good job explaining cf and all the parts of the body that it affects. The...
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    What do you take for pain meds??

    Sean, you really desire attention don't you? Every topic you feel you need to respond to in a way that actually shows your maturity level.
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    Dr Phil

    I think any exposure is better than none at all as it has been for years. Some of his stuff is a bit ridiculous but I still watch as there's not much on at 3pm. HeeHee. Hopefully its an informative show on the disease and transplant but I'm not getting my hopes up. Take care everyone.
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