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https://www.independent.co.uk/news/health/people-royal-papworth-hospital-sam-university-of-cambridge-copd-b2469768.html?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter

https://directorsblog.nih.gov/2021/03/02/antibody-response-affects-covid-19-outcomes-in-kids-and-adults/ Collecting samples from kids with cystic fibrosis....

https://news.yahoo.com/5-old-cystic-fibrosis-recovers-014213266.html

Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to the academic institution to assist in covering the cost of tuition and fees. In selecting...

https://coronavirus.jhu.edu/vaccines/us-states

http://cysticfibrosis.com/large-scale-cf-survey-on-personal-health-and-wellness/

From Francis Collins Blog: For people with severe COVID-19, one of the most troubling complications is abnormal blood clotting that puts them at risk of having a debilitating stroke or heart attack. A new study suggests that SARS-CoV-2, the coronavirus that causes COVID-19, doesn’t act alone in...

Can CRISPR Repair CFTR in Cystic Fibrosis Patients? Read More:

Follow the Link to read Vertex Joining with Moderna to form a gene editing pact for Cystic Fibrosis https://beta.firstwordpharma.com/story/5108129

Thanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!

It is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that causes COVID-19, continues to spread across many states and reaches into both urban and rural communities. This growing community spread is hard to track...

Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff! https://nymag.com/intelligencer/2020/07/anthony-faucis-boss-on-why-things-could-be-much-better-soon.html?utm_source=pocket-newtab

NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug. The deal means that CF patients in England will be among the first in Europe to access Kaftrio...

https://pharmaphorum.com/news/celebrations-as-nhs-england-agrees-deal-for-vertex-cystic-fibrosis-triple/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=f0c462094c-EMAIL_CAMPAIGN_2019_09_24_10_10_COPY_01&utm_medium=email&utm_term=0_a54496134b-f0c462094c-431716241

Lauren Brenneman and Jeanne Barnett will be speaking at the Roche Virtual Summit out of Switzerland Tuesday June 23. Video

https://www.linkedin.com/posts/jeannebarnett_urban-sentinel-june-2020-edition-activity-6674590419717808128-VXjj Lauren Brenneman and my article on breathing techniques, huff coughing, and mask wearing...Top 10 tips for Covid-19 from our respiratory community! This is a great start as we reach...

Love you Corey! Thanks for sharing! Salt and Light, Imogene

As you can see from our survey graph...many of you are able to access your healthcare team through TeleHEALTH Please take advantage of this new method of care! Because of COVID-19 many of your health care providers are able to get paid for this method! Salt and Light, Imogene

Why am I not surprised that LittleLab4CF would write us the best thank you note ever for our survey! LittleLab4CF was our 100th participant and he graciously received his $25 Amazon Gift Card! 'Thank you for the Amazon.com Gift Card! I NEVER win things by chance, but it's a wonderful gift. My...

This video is from the chief COVID-19 doctor Dave Price at Cornell Weill Hospital in NYC. He is on the front lines taking care of the most sick patients. He is almost giddy....he thinks avoiding this disease is SO possible. Take away: I what all CFers already know and do 1. Wash your hands...