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If there are any CF CAREGIVERS out there that want to earn $150 for a 90 minute survey, please let me know! You have to be willing to go to NYC on Monday, June 10th sometime between 7am - 8:30pm for the survey. Thanks!!

Hi guys! My 30th birthday is approaching, and to celebrate this entrance into CF senility (just kidding, I am extremely fortunate to be seeing this decade!), I wanted to raise some $$ for CF. I'm thinking of doing Great Strides and putting together a team. This part is easy. I also wanted to...

<div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; ">Hi guys!<div style="color: rgb(34, 34, 34); font-family: verdana, tahoma, arial, helvetica, sans-serif; font-size: 10px; text-align: left; "><br><div style="color...

Hey guys, My RT asked me to volunteer for this video for Advance Respiratory magazine on airway clearance for busy adult CFers... Just thought I'd share! (I'm about 2 minutes in) Kris <a target=_blank class=ftalternatingbarlinklarge...

Hi guys, Ok - I'm sort of a sinus newbie. I've always had sinus issues technically - I had a CT scan 10 years ago, and the Dr said I was bascially breathing through a pinhole. I've never felt pressure and pain before though... until this past year. It seems every time that I am off...

Hey guys!, I've been trying to find this article for a while now, and I figured before spending another few hours googling, I should check with you all!! I've seen articles published in 1989 or soon thereafter when they discovered the gene responsible for CF that talked about a cure being...

Hi guys, Ok - I know this topic was done before - but I wondered if anyone had ideas for some with an adult slant? Like in regards to marriage? Career? Wedding? Even parenthood? I may use a top 10 list for a talk I'm doing, so don't share or warn me if you don't want me to use your ideas...

Hi guys - Received this email from the CFF today (as I'm sure many of you did). I'm sure a lot of you would like to send a letter. I'm going to send it off to my friends and family to write on my behalf as well.... Kris Dear Advocate, Have you or someone you know had a personal...

Hey guys, I know there has been a lot of CFRD talk lately, and I've been reading it all and really appreciate some of the links that people have posted. I still have a lot of questions when it comes to this topic - but it seems like the medical profession doesn't have cfrd totally figured out...

Hi guys, I read this passage in an article in the Irish Examiner about the recent funeral of Siobhan Ryan: Curate, Fr Anthony McSweeney, who recited the Cystic Fibrosis Prayer, said while her life was too short, Siobhán was an inspiration to her family and many others. This makes it sound...

Hi guys, First of all, I'm engaged! For about two weeks now... I'm still in a bit of a state of shock. We still haven't set a date or anything; but I've already begun thinking about wedding favors... ha. In leiu of favors, my cousin donated money to the American Cancer Society in honor of...

I know the other thread was closed; but I wanted to discuss some of the odd things that you can be denied transplant for. It alarmed me to read the part about narcotic use that nick9742 posted. I have a CF related arthritis that once in a while flares up, and makes my entire body so...

Hi everyone, I'm a bit freaked out right now and was wondering if anyone could help me. For those of you that don't know I am 25 w/CF, dx at 3 mos. I have slight CFRD, CFRA, and Hypothyroidism. I haven't been having a great winter between the arthritis and hemoptosis. I've been having...

Hey guys, I have a question I was hoping someone could help with. I have occassional bleeds -- not a big deal. Sometimes in the fall they come more frequently than other seasons, I imagine because it is so dry. I've never coughed up enough to need to go to the ER. Lately though, it seems...

Hey guys, First, a huge thank you to everyone who gave me travel advice on my recent business trip to Singapore and Australia! Uli -- you were spot on with the dogs in Australia -- I didn't have any food, and didn't get searched. Moxie1 -- Both hotels had a hot pot, so I was able to boil my...

Hi all, I feel horribly trite for posting this message after crying my eyes out for a bit reading the last few threads. But, I do need some advice, and if I'm going to get good advice - here is the place. At the end of this week I am travelling on business for one week and going to Singapore...