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    chemlawn/trugreen

    we want a lovely spring lawn; but, I'm not sure about using something like this. Is it safe for CFers. They also have a trugreen natural product that is all organically based but no week control. Anyway, do any of you use this lawn service with no problems?
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    chemlawn

    is this safe for CFers??
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    Cepacia

    I have a "distance" friend who has had recent cultures that grow a gram negative species and results have come back statig that it has been identified as belonging to the burkholderia cepacia complex family. After months of analyzing it and more cultures it has been determined to be a...
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    dry runs

    I know that you can expect a dry run; but, what is generally typical? Are there averages out there....2,3,4....or is that an unknown. I was also wondering what happens when you get as far as taking imunosuppression meds. Does that leave you vulnerable for a bit of time and having to be careful...
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    Avent IQ

    OK...I have serious concerns about the water reservoir on this sterilizer. Am I being paranoid. There is no way to disassemble and get to the water changer. How do you make sure that it is clean under there and not growing stuff? I am all for simplicity; but, I was disappointed when I got this...
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    Avent IQ

    I know there are threads about this. I am FED up with sterilizing on the stove top. I just need to do something different. I want to get an Avent IQ bottle sterilizer. I know that some of you like it. When I order this, do I need to make sure that it is one that is BPA FREE or are they always BP...
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    Avent IQ

    I know there are threads about this. I am FED up with sterilizing on the stove top. I just need to do something different. I want to get an Avent IQ bottle sterilizer. I know that some of you like it. When I order this, do I need to make sure that it is one that is BPA FREE or are they always BP...
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    attending a CFers

    I don't know how to do this. I know it sounds odd; but, I don't know if I can go. This was a young woman in the community who my husband and I had worked with on some fundraising events. I know we need to go...my husband needs to go. I just really don't know how to emotionally. I've never been...
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    Exercise

    Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a...
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    PFT's and time of day

    I know my PFT's vary depending on what time I get them at. Here is kind of an interesting research study on PFTs and time of day. Could there be a better time for you to schedule your next clinic visit? <a target=_blank class=ftalternatingbarlinklarge...
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    quality care

    I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...
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    Eflow

    I have a Pari Eflow as part of the AZLI study. I have already contacted my center....so they will call back soon. I just wondered if anyone has had this happen or has any suggestions.I am in a study so the eflow service dept. said they can't answer any of my questions<img...
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    Pharmacy fun

    I have been in need of Colistin for nearly 2 weeks. I started out with my local specialty pharmacy who normally fills this for me with no probs. I was told by some ding-dong there that they NO longer make it. Not knowing that there were other manufacturers of this product and not knowing she was...
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    bizarre CF Munchausen case

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.chestjournal.org/content/121/5/1704.full ">http://www.chestjournal.org/content/121/5/1704.full </a> I just found this kind of interesting. This woman faked her CF and had been engaged to a CFer who passed away so she knew enough...
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    Collistin

    I was just told by a person at my specialty pharmacy that they are no longer making Collistin. Please tell me this is not true. I don't know how accurate this information is. I was told by CVS that it is on back order and by my regular distributor of it that they quit making an ingredient for it...
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    traveling

    I put this in the adult section; but, I thought some of you parents might have some tips in this regard with all the summer traveling that goes on with families so I thank you in advance for any help. You would think I would have this figured out after 40 years<img...
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    travel tips

    We are going to FL in the fall. I am not great about sterilizing nebs on vacation. Now with having more meds and more nebs I am wondering how you all sterilize nebs when you are in a hotel room. I think we will have a microwave; but, no stove. I do have respiratory cleaner; but, then how to...
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    my puppy

    Some of you may know that I got a puppy a few weeks ago. He got very sick a couple of days after we got him and he almost died; but, I nursed him and took very good care of him and he made it. Then he got pneumonia from kennel cough and I had to nurse him again and actually give him manual...
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    GreatStrides

    I have always tended to get my feelings hurt by my immediate family. They have never been big supporters of the CFF.....never contribute to the walk.....very little support when these events come around. I am sure there are others on this site who have had the same experience. They live far away...
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    Dogs

    Any good suggestions for a cute, small, allergy-free pet? We are putting in a fence today and I am so excited that we finally get a dog after 10 years of waiting! My Sheltie died about 10 years ago and we never replaced her. So if you all have any good suggestions for an easy dog to take care...
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