Search results

It has been quite awhile since I have posted here. Last fall I took the advice of my Rheumatologist and saw a pain management specialist. I am in constant pain. I wake and my joints burn, my muscles hurt across my chest and back- IBprofin just did not cut it anymore, I was taking more Prenisone...

<P>Another CF friend shared this article with me and I ordered a bottle from a well know site that offers pharmacuetical quality supplements. I would like some input on this topic. I would like to hear from those of you who have tried it, what you think and also what you think about the...

The social security administration preparing for a government shutdown.....this makes me so nervous. <a target=_blank class=ftalternatingbarlinklarge href="http://voices.washingtonpost.com/federal-eye/2011/02/social_security_administration.html">Link</a> I sure hope it does not affect our...

I would love to hear some advice and stories on how and if any of my fellow Cysters and Fibros have increased or maintained their FEV1's. Have any of you beat the odds and gone against the decline by following a certain regimine or exercise program? What have you focused on to do this? I have...

I am having a hard time getting the search function to work on the site...so I will just ask. Can any of you share your experiences, good or bad, with inhaled vancomycin? I have just been prescribed it on my off months of Tobi to help control staph. I would love to hear anything anyoneh as to...

I have been on IV antibiotics for 3 weeks now- Tobramycin and Meropenem + oral Keflex. I am feeling great- lung wise. BUT I am having some weird side effects. I have a horrible metallic taste/loss of taste in my mouth. Everything sweet tastes salty and I can hardly taste anything....even hot...

I recently have started home ivs to treat and exacerbation of PA. I am on Tobramycin and Meropenem...both of which I have had in the past and have never had an issue. Since I started on Friday I have had fevers, which can be broken with IBprofin,(100.0-101.0) and chills....extreme fatigue...and...

I have a box of Pro-Cal packets from vitaflo. (Flavorless, powdered protein, carbphydrate, and fat food and drink enhancer) The packets are completely sealed, not expired (5/2011) and I believe I have 100 of them. I have them delivered monthly to me...but this time around they sent me WAY too...

I have a box of Pro-Cal packets from vitaflo. (Flavorless, powdered protein, carbphydrate, and fat food and drink enhancer) The packets are completely sealed, not expired (5/2011) and I believe I have 100 of them. I have them delivered monthly to me...but this time around they sent me WAY too...

I am at my witts end and need advice/direction/help. I have had one of the worst CF years of my life. I have been on IVs both in and out of the hospital countless times. Because of this, I cannot work currently. My side photo business is practically non-existant at this point and I cannot work...

I need to vent- I guess there is not much advicce to be given on this topic. I am sick yet again...with the NASTIEST tasting mucus I think I have ever had. With each cough, some comes up, I gag, then puke. I haven't held anything down in a day. Just started Bactrim and cannot get this horrible...

I have to share.... Today is the first day of going completely sugar and carb free. I self-diagnosed myself with Yeast Syndrome and it really does all make sense. I have been on and off IVs all winter long and have had an antibiotic overload. Now for the first time ever I have wheezing and my...

Reasons I am so in love with my port. 1. No more PICC lines. The sheer agnony of finding my veins and actually getting them to take the picc line was a nightmare for me. The very thought of having myself accessed within a matter of a few nearly painless minutes makes me giddy! 2. IV abx when I...

I am trying to figure all of this out! I got pretty sick a few weeks ago- my FEV1 had dropped to about 63%. I am typically around the high 70's low 80's (on a good visit!) I culture Staph (not MRSA) but have been on many many doses of Bactrim this winter, so I was put on IV Zyvox. A week later...

For those of you that suffer with chest tightness, and some sort of "asthma component" with your CF...how long did it take for you to notice a difference after starting on Advair? Was the difference significant?

I am so frusterated. Last week I went on IVs yet again...for the second time in 2010 already <img src="i/expressions/face-icon-small-sad.gif" border="0"> They put me on Zyvox (up until this point I have been using Bactrim and Keflex). It just does not seem to be working, but then again it...

Have any of you had Zyvox to treat your staph lung infection? If so, what were your side effects? Did it help you increase FEV1 and get better? After months and months off and on Bactrim, my doctor mentioned this abx today and said we may try it if I don't improve within the week. I am just...

Alright...I am looking for some personal tips and advice from all of you! I am currently on some strong abx. I know that these make you sensitive to the sun....but for how long after you stop are you still sensitive? I am planning a vacation and would hate to end up with sun poisoning! What...

I went on home IV antibiotics yesterday- Bactrim and Keflex. Both I have been on before with no problems. I think they are stronger doses this time because they are making me so sick. Since my first dose yesterday I have been vomiting and queasy. My doctor gave me an rx for something to...

Hi everyone! Tomorrow I will be going on IV abx and will be using my port for the first time. What are your experiences with ports and abx? Does it still cause the same irritation on the nearby skin (like with a picc)? What should I expect? What about showering? I would love any stories...