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  1. MissAlexsBP

    San Antonio Adult CF Clinic

    Hello! I was wondering if anyone had experience and what they were with the San Antonio, TX adult CF clinic. My husband and I are considering moving, but before we do, want to hear about the clinic! Thanks!
  2. MissAlexsBP

    CFF Article about the First Global Study of COVID-19 in Children With Cystic Fibrosis Reports Reassuring Outcomes

    https://on.cff.org/3gvBrYA :) Stay safe, everyone!
  3. MissAlexsBP

    Scottish government and Vertex reach agreement for Kaftrio

    Some exciting news! Scottish government and vertex reach agreement on Kaftrio! :) https://bit.ly/3il1CkF
  4. MissAlexsBP

    Inhaled Tobi vs. Tobramycin

    Hi everyone! My insurance recently made me switch from Tobi brand Tobramycin to generic Tobramycin (both inhaled). During the last few Tobramycin months (cycled with Cayston) I have started to feel achy and have a drier, more persistent cough than I remember while being on Tobi brand. I am...
  5. MissAlexsBP

    Liver Enzymes and CFTR Modulators?

    Hello! I am a moderator on the cysticfibrosis.com Facebook page and posting on behalf of one of the members of our community. Our member writes: "My son is 26 and started #Trikafta earlier this year. His pft’s went from upper 70’s to 98%. Now 2 weeks later his dr told him to stop immediately...
  6. MissAlexsBP

    When did you decide to stop going to work?

    Hi all! When did you make the decision to stop working? I am currently 29 years old and my PFTs are in the 60's and during good appts mid-70's. Currently I work around 20 hours (retail), however, that still leaves me tired and I'm finding it hard to manage keeping up with all of my nebs...
  7. MissAlexsBP

    Remedy for sore stomach muscles from coughing

    Hi everyone! Does anyone have any remedies for sore stomach muscles from coughing? Just wait it out? It feels like I have done several crunches, however, I've just been coughing. Thank you!
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