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  1. C

    Newly Cultured NTM/MAC

    I got a call from my CF doctor yesterday. She asked how ive been feeling as ive had a drop in my 02 saturation over the past week or two (from 99% to 92% on 2 Liters of 02). I told her I havent had any fevers and my sputem hasnt been dark green or taste like it does when im having my usual flare...
  2. C

    What to expect with Kalydeco

    I have the mutation 2789+5g<-A, which is one of the mutations currently FDA approved with Kalydeco. I got a call from my doctor with the wonderful news and went in to fill out the paperwork and should be expecting the medicine anytime now! Im curious as to what effects should I expect from...
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