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  1. M

    Doing it solo, need help!

    Hi All, I’m divorced from my son’s father & my son was recently diagnosed w a mild variant CF. There are no signs of enzyme deficiency or malabsorption, and his mutations suggest those will not be issues for him. So I’m looking only at preventative treatment for lung disease. The doctor has...
  2. M

    uncommon variant, what to do- need advice? 3849+10kbC->T and 5T

    My 6 year has mutation in 3849+10kbC->T and 5T He had a 48 result in sweat test These tests were recommended due to 2 years of sinusitis (unresponsive to antibiotics) and the discover of nasal polyps ON the CFTR2 site, it says only 3 people on their database have this variant We are waiting on...
  3. M

    6 year old with mild CF (?)

    Hi All, Glad to find an active community for support. Jeez has this been a tough couple of weeks. My son has had sinusitis for 2 years. Antibiotics were tried multiple times. Pediatrician said it was a bad cold or recurrent virus since he started school (and there were known recurrent viruses...
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