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  1. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  2. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  3. J

    Pulmozyme or Hypertonic Saline

    I would get an eFlow if your concern is time spent doing treatments and do both. The "certain type of mucus" is bunk as far as I know because it breaks down white blood cells in the mucus, which is present in every CFer as far as I know. eFlow info: <a target=_blank...
  4. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  5. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  6. J

    Will my insurance pay for Cayston?

    Did you call your insurance company to ask them if they cover it and at what percentage/co-pay? I should think they would have a better answer for your particular insurance than any of us not knowing what insurance you have. You can't just switch insurances because of one medication - that's not...
  7. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  8. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  9. J

    Does anyone see a regular pulmo for their care??

    I doubt there is more than 1 accredited/certified CF center in the city, but if there is, they should both be good. Check the CF Foundation site for their center locations.
  10. J

    Negative sweat test results

    a) do a full-panel genetic blood test b) run him around like a wild animal outside before another sweat test Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  11. J

    Negative sweat test results

    a) do a full-panel genetic blood test b) run him around like a wild animal outside before another sweat test Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  12. J

    Negative sweat test results

    a) do a full-panel genetic blood test <br />b) run him around like a wild animal outside before another sweat test <br /> <br />Since sweat tests aren't 100% correct either way, might as well get the genetic test.
  13. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  14. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  15. J

    Loss of taste

    Now I remember: It's Doribax (doripenum) that makes that taste for me - same family: <a target=_blank class=ftalternatingbarlinklarge href="http://www.rxlist.com/doribax-drug.htm">http://www.rxlist.com/doribax-drug.htm</a>
  16. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  17. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  18. J

    Have you seen a improvement in your FEV1 with Cayston if so how much??

    My highest PFTs in over 3 years was on my 30 minutes post-Cayston PFT during the trial after 28 days on Cayston, which took me from about 31% to 38% in a month, but then I bombed on the next drug trial I tried and had to start my PFT build-up all over again. Expect it to go down on the off month...
  19. J

    Loss of taste

    Yes, IV meds have a tendency to affect things like that, but the oral would be the first thing I'd look at as a cause. I just can't remember which IV causes metallic taste, but I don't think it's Tobra because I'm on that one every time and we alternate second drugs and I don't get bad taste...
  20. J

    Loss of taste

    Yes, IV meds have a tendency to affect things like that, but the oral would be the first thing I'd look at as a cause. I just can't remember which IV causes metallic taste, but I don't think it's Tobra because I'm on that one every time and we alternate second drugs and I don't get bad taste...
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