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I could write a book on this, like many people involved with cf could! I can give you this little bit of insight though - trust me, after awhile, this will come to you like brushing your teeth everyday does. You just learn to do it and it becomes a normal part of your life. Yes, its very scary...

Dishwasher - all parts, even the masks and those aerochambers used for inhalers - I use the china/crystal setting and the air dry setting. Then I put a clean dish towel in a big bowl and place all the parts in there to dry. Then when dry, I put all the parts together and have them categorized by...

OK, you are all making me feel absolutely ridiculous now! LOL...we just got out of a 10 day stay and I knew we were gonna be confined to the room cuz of the MRSA in the lungs.....so I did pack like I was staying for a bit....laptop, word searches, "med list" (they always ask and all the...

I don't think all cf babies are....its like 15% of cf babies are born with the meconium ileus. My guy's obstruction caused quite a stir as he got into great trouble just a day after I had had an ultrasound. He had stopped moving - just like that. Went in to OB and he said we are having a baby...

I heard most recently that they are no longer giving benefits to people with CF automatically due to the nature of the disease being terminal/life threatening. I heard they are coming up with new criteria such as you must have been in the hospital 3x that year and had PFT's that were very low at...

Hello! My 11yr old son w/cf suffers with adhd and bipolar. So for the longest time, all the stimulant drugs made him aggressive because he wasn't being medicated properly given the diagnoses of the bipolar. When I did find the right psychiatrist, it made all the difference! But back to your...

Since the cf'er is my son... "He's My Son" by Mark Schultz and "I Don't Want To Miss A Thing" by Aerosmith are my choices :)