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    Breathe Easy ihatecf (Rami)

    I just wanted to let everyone know that ihatecf (Rami from Lebanon) passed away on 4/15/14. He fought hard until the end. Breathe Easy Rami.
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    Need a Lung Transplant

    Hi everyone. I know I havent been up here much. I've been quite sick in the last year. I am now on O2 24/7 at 4-6 lpm. I now have CFRD. MyFEV1have dropped to24-27% (depending on the day).I am constantly on IVs. My CF has progressed much faster than we anticipated. The Drshave told me I am in my...
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    CF Telethon

    Our local television station put on it's Annual CF Telethon last night (8/13) and they were able to raise $408,075!!! This is a new high total for them. Just wanted to share the good news!
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    Poll - sleep position vs. worse side...is there a connection??

    I was talking to a friend yesterday & we both realized that the side we sleep on is considered our "worse" side. I have always been told that my right side was worse than my left side, even though x-rays show that the damage is pretty equal. When ever I have bleeds - it is on the right. My...
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    Cayston

    Okay, I just tried Cayston for the first time. I am using the Eflow that they sent with it. I started the Cayston & in less than 2 mins the Eflow turns off and says the dose is complete. Is that right?!?! I started the Eflow again, it got more medicine from the neb & in less than 1 min it cut...
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    NC Medicaid & enzymes

    I was wondering if anyone knew about this or not. It sounded like they are on the list because the FDA hadn't approved them. However I know that Zenpep & Creon have gottn approval but they are still on this list that went into effect July 1, 2010. I have a friend who called me about this & since...
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    Glow in the dark Puppy

    Meet Ruppy, the glow-in-the-dark puppy. The cloned beagle -- her full name is Ruby Puppy -- and four other pups glow because they have genetic information from sea anemones, a breakthrough scientists hope will help in the study of human diseases..... <a target=_blank...
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    In the hospital

    I am sitting here at Duke. Hopefully the stay will be short and I can go home on IVs. I've been feeling bad for the past week, really going down hill this weekend. My cough increased, production up, night sweats, coughing up some blood, SOB without doing much, not wanting to eat, really...
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    IUD

    I wanted to know if anyone has an IUD but has never had a child? I am interested in them but last time I spoke with my GYN, she said since I havent had any children it would really hurt to put it in. I wanted to know if someone without children first had one put it and how bad did it hurt? I am...
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    In the slammer

    I was admitted to Duke on Tuesday. There is talk about me going home on Saturday, but we will see. I have written what's going on in more detail in the "In the Hospital" section. Take care.
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    In the slammer

    I am here at Duke. I was admitted on Tuesday. Sorry I havent given an update, I've been really busy & tired. They are giving me Zyvox & VFen by oral abx. I am also on Colistin and Fortaz by IVs, every 8 hrs. They are treating me for MRSA, mucoid & non-mucoid PA, & Aspergillus. They have done the...
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    Aspergillus

    I just found out today that my culture from Duke grew Aspergillus. I know NOTHING about this. I honestly wouldnt have found out about it if my local pulmo Dr. didnt call my CF Dr about how I am feeling right now. My CF Dr mentioned it, so my local pulmo Dr called me back and asked if I knew...
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    Port Surgery

    I just wanted to let everyone know that I am having my port replaced tomorrow. It will be done in Interal Radiology....which is a first for me. My last 2 were done in the OR. They say that Interal Radiology is better and easier on the patient. I will be sedated, but not knocked out. I hope...
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    Bruises

    I was wondering what is the best way to cover bruises on my legs? I am in a friend's wedding on 8/9 and the dress is tea-length, sleeveless and low-cut. Due to my recent heprin use with IVs & basic issue with CF, I have a lot of bruising, mostly on my right leg. We are wearing sandals with the...
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    Lung Flare Up & Joint Pain

    I was wondering if anyone has experienced joint pain when a flare up starts? The reason I am asking before I went into the hospital a few weeks ago, my ankles were hurting really bad. I figured I had turned them the wrong way or just over used them, and since I have Fibromyalgia it doesnt take...
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    I'm Home

    I got good news this morning. I am now sitting at home! Woo Hoo!! I get to sleep in my own bed! I am still on the IVs and with the PICC in. They told me it was okay to wait and get another port after I am well. My Tobramycin levels are okay, but they will be drawn again on Weds. I was told my...
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    Still in Lockup

    Hey everyone. I havent been online because I have been so tired. I originally was suppose to go home on Saturday. However, my Tobramycin levels were really high. So, that had to be fixed. So, we took levels 3 doses later, still high. So tonight we took more levels, so tomorrow we hope they will...
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    New Addition to Our Family

    Back in January I introduced our little girl, Piper. Now I want to introduce our little boy, Bodie. He is 8 weeks old, Boston Terrier. <img src="http://i35.photobucket.com/albums/d178/blindhearted/Misc/Bodie/Bodie.jpg"> Believe it or not, Piper and Bodie are getting along. I did not have any...
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    Hospital Bound

    I got the call from my FNP at Duke that they want to admit me in before July 4th. I have been fighting the same 2 bugs growing in my culture since October. I've done multiple oral abx then IVs. I just finished IVs two weeks ago. I was on Vancomycin and Tobramycin for two weeks on, one week off...
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    Pet Owners : Need Advice

    DH and I are getting a male Boston Terrier on Monday. He will be about 7-8 weeks old. He will be living in the house. We have a 17 month old female Tuxedo cat that we have had since Jan. The cat doesnt really care too much for children because the house she was at before here, the kids gave her...
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