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Hi there. Hoping someone can help me. Just arrived in Mexico and realizibg that I dont understand the new vest 105 from Hillrom with washable pink jacket. How do the tubes go in to the jacket? My previous jacket had little parts thst jetted out to hook the tubes on to. This jacket just has...

This Forbes article should help clear up Vertex's "data bungle" <a href="http://www.forbes.com/sites/matthewherper/2012/06/01/clearing-up-vertexs-data-bungle/?partner=yahootix">http://www.forbes.com/sites/matthewherper/2012/06/01/clearing-up-vertexs-data-bungle/?partner=yahootix</a> "<span>In...

Just wanted to report that I have been on Kaly for 10 weeks now and I just had my liver enzymes checked. They were perfectly normal. I will continue to check every 3 months and report back. So greatful to live in a non socialized medicine country where not only do I have access to Kaly quickly...

I am curious how many received their CF care from a pulmo that isn't a part of an accredited CF center? Do you feel you are getting the most up to date care? What prompted you to go out of the CF Center circle? I would have never considered a non-accredited center, but lately my center has...

thread on PDE5's is cut off, Ennio. why isn't there a permanent fix for this?

<strong><a title="allergies, allergy meds, black circles" href="messageview.cfm?catid=6&threadid=617322">allergies, allergy meds, black circles</a>is cut off.</strong> <strong>why does this keep happening?!</strong>

<span style="color: #000000;">Is anyone else not seeing all the posts in the "<a title="Kalydeco or VX-770 off lable use?" href="messageview.cfm?catid=4136&threadid=616436"><span style="color: #000000;">Kalydeco or VX-770 off lable use?</a>" thread? <span style="color: #000000;">I've seen this...

The past two weekends I have had a hard time getting in to the forums on CF.com. Today it took me a good 20 minutes or so of refreshing and trying over and over to get in. Are you doing work on the site, Ennio? If so, could you please alert us to when you plan on doing work on the site so we...

Hey guys - just wondering if any of you have been audited for CF Medical Expenses from your taxes?<br>I have been working and 100% fully self-supported for 8 years and 7 out of those 8 my medical expenses have been able to be itemized.<br>I take the CFF's guidance for including food consumption...

I have been searching the forum for the recipe for Mandy's green smoothie recipe.<br>Does anyone have it?<br>Thanks so much!

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/2010/02/using-avandia-in-treating-cf.html">http://noexcusesnoexcuses.blog...ia-in-treating-cf.html</a>

Good info on both VX-770 and VX-809 from Vertex's earnings call yesterday (this is different info than what I posted in the 809 post) <a target=_blank class=ftalternatingbarlinklarge...

I know we have been speaking about Sweden lately here and their aggressive stance with antibiotics. They also supplement heavily with essential fatty acids. This study shows their wise insight... <a target=_blank class=ftalternatingbarlinklarge...

Euro CFers, I have been learning more about a medication not available in the US, but available in parts of Europe: Bromhexine Can you tell me if you've used it and if so, how it makes you feel? Thanks in advance.

In case you are interested, I have a blog post about my adventures in hematology as of late. <a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/2009/12/adventures-in-hematology.html">http://noexcusesnoexcuses.blog...res-in-hematology.html</a>

FDA panel: Gilead Sciences drug to treat deadly lung infection appears safe and effective <a target=_blank class=ftalternatingbarlinklarge href="http://snipurl.com/tnf85">http://snipurl.com/tnf85</a>

Hi Ennio, I'm about to go edit only the text my signature and I know what's going to happen - all my HTML links are going to be messed up. Why does this happen? I know this used to happen on the boards, but it's still occuring in the signatures. Why hasn't this been fixed yet?

Hi guys, Many of you might remember that I had night sweats for about a year until I finally figured out I had nocturnal aspiration of gastric juice and resolved the issue in 2 days by increasing my PPI medication. Well, I'm on IV's again and I'm reminded that I have an unresolved issue on...

<a target=_blank class=ftalternatingbarlinklarge href="http://snipurl.com/t2mgl">http://snipurl.com/t2mgl</a>

Most of us know how disgusting hospitals can be. And for CFer's, we're particularly vulnerable for picking up C Dif, MRSA, and even Cepacia. This article is a powerful reminder of why we need to be HYPER vigilant when in the hospital. <a target=_blank class=ftalternatingbarlinklarge...