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  1. L

    Help Australia Get Kalydeco approved!!

    Hi All, It has been a very long time since I've posted here, but I'm back today to ask a huge favour. Our application for federal government funding for Kalydeco has been deferred and we are running a social media campaign in the hopes of pushing our government to move faster. There is a...
  2. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  3. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  4. L

    eFlow mesh/heads

    No it's not! Good grief, you are being even more ripped off over there than we are here <img src="i/expressions/face-icon-small-sad.gif" border="0"> $350 for ONE mesh?!?! That is ridiculous. Does your insurance cover that?<br><br>Back to the drawing board for me I guess...<br>
  5. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  6. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  7. L

    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
  8. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  9. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  10. L

    Researching for my book on CF

    What's your home town in Aus? I'd be interested in your program, I don't tolerate HTS though..
  11. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  12. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  13. L

    Need an answer ASAP re: coughing blood

    Thanks! It's been a while for me and, well, coughing blood freaks out the best of us I suppose. Can't get through to my stupid clinic though, just when I need them, grrrr. I hope that's what it is.
  14. L

    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. Anyone know what this is? I called my clinic but I think...
  15. L

    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. Anyone know what this is? I called my clinic but I think...
  16. L

    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. <br /> <br />Anyone know what this is? I called my clinic but...
  17. L

    New User: My Fiance has CF She is 28. Any similar scenarios?

    Congratulations on your engagement!! Please don't let CF stand in the way of your love and relationship. In answer to your question... I'm 28 and had a baby just 3 months ago <img src="i/expressions/face-icon-small-smile.gif" border="0"> It really depends on your fiance's health, as there is...
  18. L

    New User: My Fiance has CF She is 28. Any similar scenarios?

    Congratulations on your engagement!! Please don't let CF stand in the way of your love and relationship. In answer to your question... I'm 28 and had a baby just 3 months ago <img src="i/expressions/face-icon-small-smile.gif" border="0"> It really depends on your fiance's health, as there is...
  19. L

    New User: My Fiance has CF She is 28. Any similar scenarios?

    Congratulations on your engagement!! <br /> <br />Please don't let CF stand in the way of your love and relationship. <br /> <br />In answer to your question... <br /> <br />I'm 28 and had a baby just 3 months ago <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />It...
  20. L

    Where/how can I get an eFlow?

    Hi, I need an eflow. Badly. I want to buy one online from USA and have it shipped to me in Australia but can't find how to make this happen (Pari's website has zero information about how to purchase??). Apparently the place that stocks them in Australia is way overpriced. Do any of you...
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