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    Help Australia Get Kalydeco approved!!

    Hi All, It has been a very long time since I've posted here, but I'm back today to ask a huge favour. Our application for federal government funding for Kalydeco has been deferred and we are running a social media campaign in the hopes of pushing our government to move faster. There is a...
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    eFlow mesh/heads

    Where do you all buy your mesh/head pieces for eFlow in the USA? There is only one supplier in Australia and they have a huge mark-up, I want to buy some and have them shipped here as our dollar is strong against the US dollar at the moment.<br>
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    Need an answer ASAP re: coughing blood

    I just coughed up a big chunk of blood, it was dark and clotty. I don't know what this means, I've coughed blood before, but it was bright red. This was different, I thought it was a chunky plug and was very surprised to find blood. Anyone know what this is? I called my clinic but I think...
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    Where/how can I get an eFlow?

    Hi, I need an eflow. Badly. I want to buy one online from USA and have it shipped to me in Australia but can't find how to make this happen (Pari's website has zero information about how to purchase??). Apparently the place that stocks them in Australia is way overpriced. Do any of you...
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    General Anaesthetic

    I'm due to get my wisdom teeth out in two weeks under GA. Anyone else had this done? Anything I should be concerned about re: the GA? Do they put you on a vent for it? I have no idea...
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    Tell me what your child's sweat test was like?

    Can anyone tell me what their child's sweat test was like? My DD is having one this week. It's just a precaution on my request as although DH had genetic screening done (and did not carry a common gene) we couldn't get an Ambry panel done for DH in Australia, so there is an outside chance he has...
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    Parents with CF

    How do all the parents with CF out there cope with the demands of parenting as well as looking after your own health? I'm loving being a mum to my little Abby (now 12 weeks), but sometimes it's so hard to find the time to get everything done! Nothing could have prepared me for just how much...
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    Breastfeeding troubles

    Hi All, Has anyone else breastfed a bub with dairy protein intolerance? Were you able to keep it up with the dairy-free diet? I am 99% sure Abby is not tolerating dairy in my diet, she has been having green, mucousy, sometimes bloody poos (sorry TMI). After initially panicing she might have...
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    It's a Girl!!

    Hi All, It's been ages since I posted on this forum, but just wanted to announce my happy news that my baby girl arrived on Tuesday 11th May <img src="i/expressions/face-icon-small-happy.gif" border="0"> For those who'd like to know she was 3.18 kg (7 lbs) and 48 cm long. Delivery was...
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    Muscular pain with coughing

    Hi, I'm having another exascerbation and I think I've done myself some muscular damage coughing too much. For the past couple of days I've had pretty severe pain and muscle spasms all down the sides of my stomach (not chest) with any forceful breathing out (coughing, PEP, nose blowing...)...
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    Fluidy feeling in lungs

    Hi, Last weekend I got a dreadful cold with a very productive cough. I had alot of rattling/rumbling feelings in my chest when breathing (just from the junk moving around and out I guess). As usual the cold triggered an exascerbation, so I went to the Dr on Tuesday to do something about it...
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    Pain relief

    Hi, I know I am a bit ahead of myself here, but just wondering if anyone used the gas as pain relief in labour? Does it irritate our lungs? I'm asking b/c my biggest concern with labour is having trouble with breathing/asthma. I don't use HTS b/c I get too inflamed by it, so not sure what...
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    Exercise

    So I went swimming today for the first time since last year (it's spring here). I did 10 laps and it took me an hour. After the first lap I was coughing a fit and an old lady came up to see if I was OK, I said I had asthma, but would be OK. A few laps later the life guard came up and asked if I...
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    Priorities when preggers

    Hi, Just wondering whether I should prioritise sleep or exercise at the moment. I am 12 weeks and so so tired all the time. By the time I commute home from work and get all my treatments and exercise done (and eat!) it's already late. The only thing I can think to do is cut back on exercise...
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    Exascerbation

    Hi, I am having a hard time and need some advice. My cough has been bad for the past five weeks (basically since I found out I was pregnant). I saw my Dr a couple of weeks ago and he put me on HTS to see if it would clear the infection. It seemed to work well for a week, then the cough was...
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    How early did you get high blood sugar?

    Hi, I am in my 7th week of pregnancy and have CFRD. Previous glucose tolerance tests have been positive, but my BSL is usually fine (I'm not on insulin) and only gets elevated when I am unwell. Over the past week I have had increased BSLs two hours after eating (ranging from 9-12). I'm not...
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    Pulmozyme

    Hi, So, I am seven weeks pregnant! To make a long story short, DH and I have been TTC for over two years, and were about to go down the IVF path. 8 weeks ago we moved to Sydney and somehow (miraculously!) managed to get pregnant naturally. Anyway, we are in a new city and only just got into...
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    Hernia?

    I think I developed a hernia when I moved house last week. I have a spongy bump about the size of a 10c piece which is a few inches below my sternum. It doesn't hurt or anything, but seems to pop out when I cough or sneeze - I can't stop myself from pushing it back in... Has anyone else had one...
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    My Lady Macbeth Hands

    I think I am developing some kind of Shakespeare-esque handwashing obsession. It's winter here and swine flu is all over the hospitals (where I work) - I have been washing my hands after I touch just about anything! They're all red and cracked, but it's better than getting the flu <img src="">...
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    PICC Line

    Hi, My Tobra nebs and other abx are not working and the Dr is thinking about bringing me in for IVs. I haven't had IVs for nearly 11 years, and am a bit edgy about the whole thing. Last time I went in Picc lines were very new to my hospital (I was amoung the first few people to get one in my...
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