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Anyone else finding it difficult to get a hold of cromolyn sodium (aka Intal)? I'm trying to figure out if it's just my pharmacy, my geographic location, or if it's everyone. Thanks in advance for your insight <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img...

Anyone else finding it difficult to get a hold of cromolyn sodium? I know not many adults use it, but I'm hoping those who are seen at Minnesota or any others who use it might be able to give me some insight. I'm trying to figure out if it's just my pharmacy, my geographic location, or if it's...

Hey guys, Wondering what disposable nebs you guys use that are approved for Pulmozyme use and where you get them. I have been ordering Hudson Updraft nebs from Emergency Medical online which has worked out well. But my insurance isn't covering them now and I'm a full time student so spending...

Why we fundraise.... as explained from the Business side of things.... <a target=_blank class=ftalternatingbarlinklarge href="http://www.businessweek.com/technology/content/apr2008/tc2008042_241404_page_2.htm">http://www.businessweek.com/te...8042_241404_page_2.htm</a>

Hey guys- A dear friend of mine just donated $500 to the CF Foundation. He is an incredible guy, very generous, and I want him to know what an impact his donation will have on the CF community. Here's where I am hoping you can help - I'm hoping each of you could post here (or PM me if you...

So, I'm always full of comments but I'm hoping you guys will give me a piece of your mind on this one. I have had nightly night sweats for the past 3 months. Sometimes I just wake up and it's a little bit of sweat and rarely it's so much that I have to change my clothes because I'm so drenched...

So as most of you know, a high FEV1 doesn't necessarily mean that there aren't other issues going on with your CF lungs. I'm thinking of parents as well who say their kids have high FEV1's and perhaps don't feel the need to be as compliant with meds and don't see the need for prevention...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.reuters.com/article/healthNews/idUSN2961792920080129?pageNumber=1&virtualBrandChannel=0 ">http://www.reuters.com/article...virtualBrandChannel=0 </a> <b> Second-hand smoke harm assessed in cystic fibrosis </b> By Will Dunham...

<b>Saltwater 'cures kids colds' </B> Chicago - For parents worried about how to treat children's colds now that some medicines have been called into question, the answer may be a dose of salt water. A nasal spray made from Atlantic Ocean seawater eased wintertime cold symptoms faster and...

Hey guys, I just sent out my first email to EVERYONE i know to join my Great Strides walk in May 2008. I've set my BHAG (Big Hairy Audacious Goal) for my group for $10,000. Yup, you read right. $10k. And it's going to happen.... I want to know what your BHAG is. This isn't a "I'm better...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.timesonline.co.uk/tol/news/uk/health/article3177646.ece ">http://www.timesonline.co.uk/t...th/article3177646.ece </a>

Some of you may have seen this Nike ad...... I think it's incredibly powerful and really rang true with what CFers go through. But it also reminded me how there is always someone worse off then me.... and I have no excuses to not exercise. ---------------- rilliantly shot by Academy...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.reuters.com/article/scienceNews/idUSPAR27336920080103?feedType=RSS&feedName=scienceNews&rpc=22&sp=true ">http://www.reuters.com/article...ceNews&rpc=22&sp=true </a> "women who reported more positive emotions had lower blood levels...

CF is tough. And it sucks. And it's just plane horrible to deal with. But on occasion I think a new perspective can be incredibly helpful. When I went to visit Warwick in Sept 2006 the first thing he asked me was to list 3 good things about CF. I was so taken aback I was speechless. I flew...

So I'm going to Japan in May for a consulting project. First thing on my mind - I know how my vests work in Europe, but how will they function in Asia? So I decided to write to Hillrom and Respirtech to figure out which one to bring with me. I find each reply very interesting. Decide for...

So the holidays get me thinking about things I'm grateful for. Two people that always get me exercising are Chaggie (Chris) and Q. I remember Chris mocking me at my 18 minutes of elliptical time about 9 months ago. He told me to go for 45 minutes. I told him he was insane. Chris kept...

I think most with CF will find the link at the end of this post amusing. Some background first to put this into context..... I myself was bout 8lbs overweight for about 2 years. Doesn't sound like much, but I'm 5'2 with a small frame so it's a big deal..... Warwick, when I went to visit him...

I have no clue where Fred lives, but this sounds pretty serious. Hope Fred is ok <a target=_blank class=ftalternatingbarlinklarge...

I'll admit - I'm not as proactive in this area as I should be or as I would like to be. It breaks my heart that so many CFers (and other people for that matter) have to wait so long for organ doation. So, <b>Here's my challenge to everyone on this boad</b> - by next Sunday, July 15 , get 10...

Hey guys, Got a text from Jen last night. She was in the ER all night (I'm sure many of you have read her blog/thread about vomitting mucus and just really not doing well). I am hoping you all will keep Jen in your toughts and prayers today and in the coming days. She is a fighter and...