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    This could be it...

    So sorry for your loss. She was much too going to go. My heart goes out to you and your family especially your brother. May she RIP xox
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    I'm after a BLOG

    Thank you :) Is she still on here? I've inboxed her, ill wait for a reply.
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    I'm after a BLOG

    Hi, I haven't been on this page for a couple of years. I found it hard to deal with the losses of some great friends I made here, which were very supportive. Anyway, I'm after a blog created by Amy aka save ferris I think may have been her username. Can someone please help. hope all you oldies...
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    Australian Kalydeco Campaign - New Petition

    Help support the Australian Kalydeco campaign please!
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    PFT's are down for no real reason

    Hi Amber, losec is usually prescribed to patients with reflux. But, in our case her docs give it to her to lower the acidity levels in her stomach so that the enzymes are absorbed better. no, we don't take any other inhaled meds besides the pulmo. The docs have never thought it may be asthma...
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    PFT's are down for no real reason

    My 8yr olds pfts dropped from about 114 to 100 as well. No real reason as to why? No sickness or infection or bugs. Docs said it could be due to her weight being so low. We have always been o the 5th centile and only just got to the 10th, still very low but better than before. So yes, lower...
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    mild staph

    We have just cultured mild staph as well. Our docs always seem to treat it even in its mildest forms.......not sure as to why some docs treat it and others don't. It's kind of a worry :/ Even when we culture h influenza we get treated! I personally think its because my dd shows symptoms such as...
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    Whaa the best way to keep neb cups clean?

    I agree with Terry, pull them out with tongs as soon as you've switched the stove off. They dry much much quicker. I personally wouldn't be letting the water cool, and then pull them out. Also we were only boiling for 5 mins until we spoke to our clinic docs. They said to kill all germs you...
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    Want to donate VEST

    .I'm in Australia and we don't have access to vests here :/ Not sure why...........
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    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    We got a 10% increase just starting pulmozyme once daily. I thought the kalydeco treats the root of the problem ie no enzymes, no physio, a major improvement in overall health etc I may be totally wrong......haven't read up on all that much info on kalydeco regarding ddf508
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    CF WIVES SUPPORT GROUP

    Would like to join fb group too. Pm me, please <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    CF WIVES SUPPORT GROUP

    Would like to join fb group too. Pm me, please <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    karate

    Yes, hopes and prayers that much better days come........soon. All the best to you!
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    karate

    Yes, hopes and prayers that much better days come........soon. All the best to you!
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    karate

    No shoes at all are allowed at all on the dojo............. So it's probably cleaner than most peoples homes.................ever thought about how much dirtier our shoes may be, sticking our feet in them very day or slopping around in a pair of flip flops day in day out!
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    karate

    No shoes at all are allowed at all on the dojo............. So it's probably cleaner than most peoples homes.................ever thought about how much dirtier our shoes may be, sticking our feet in them very day or slopping around in a pair of flip flops day in day out!
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    karate

    Running man, totally agree. Very well said <img src="i/expressions/face-icon-small-smile.gif" border="0"> Mindy, bare feet never crossed my mind I guess that's because the place we go to is so damn clean I could kiss the floor <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Not...
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    karate

    Running man, totally agree. Very well said <img src="i/expressions/face-icon-small-smile.gif" border="0"> Mindy, bare feet never crossed my mind I guess that's because the place we go to is so damn clean I could kiss the floor <img src="i/expressions/face-icon-small-tongue.gif" border="0"> Not...
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    karate

    Wow, that's one weird doc you have there. Karate is an awesome form of fitness ESP for a cfer. It's my child's second year and she LOVES IT?.......... It's very physical and she sweats like crazy. Not so much contact involved from what I have seen, but has definitely helped with confidence and...
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    karate

    Wow, that's one weird doc you have there. Karate is an awesome form of fitness ESP for a cfer. It's my child's second year and she LOVES IT?.......... It's very physical and she sweats like crazy. Not so much contact involved from what I have seen, but has definitely helped with confidence and...
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