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I apologize if this isn't in the correct section and/or it's a repetitive question. I was a late diagnosis case- diagnosed at 29--only one in my family (that I know of) that has CF. I am pushing for my siblings to get tested, but it hasn't happened yet. Anyway, one of my nieces (my sister's...

Hi Everyone,<div><br></div><div>I started Cayston on July 30th along with Cipro. I cannot handle TOBI which is why my doctor wanted me to try this for my recent culture of pseudomonas. So it's been about ten days now and I have been feeling great, but yesterday I started getting really tight at...

Hi all, I was wondering if I could get some advice on what to expect in terms of genetic counseling. I was recently diagnosed this past May and I am engaged to be married this coming June. My soon-to-be husband and I have talked about children shortly after we get married as we have been...

Hi all, I just wanted to get some feedback to see if this is a common experience. I was recently diagnosed at age 29, and my normal treatments were pulmozyme and the flutter. For the past two years leading up to my diagnosis I only cultured staph. Anyway my lung function had been decreasing...

I have emailed my doctor about this, but unfortunately she is out of the office until next week..I live in New York City and the past two weeks my cough has become increasingly more productive. Some nights I am up with sinus issues, acid reflux and more of a cough than I ever have. During the...

I am newly diagnosed so I still have a lot of questions and many of them have been answered on this wonderful website <img src="i/expressions/face-icon-small-smile.gif" border="0"> My next doctor's appointment isn't until the end of August and I have this as a note, but wanted to see if I could...

Hi all, I just wanted to gain some insight on this. I was just diagnosed last Wednesday and have told my close friends and immediate family as they were aware of the pending diagnosis. I want to tell people at work (I work in a small office with about 40 people, very close quarters) just...

Hi everyone, I have been a part of this site for awhile now and have been most appreciative of everyone's support and information. I got my diagnosis today. I have the deltaF508 and rare mutation Q1291R. Has anyone ever heard of this? or have it? As you can imagine I will have many...

Hi everyone, I have been a part of this site for awhile now and have been most appreciative of everyone's support and information. I got my diagnosis today. I have the deltaF508 and rare mutation Q1291R. Has anyone ever heard of this? or have it? As you can imagine I will have many...

hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i...

hello, i am new to this forum. i am a 28 year old female, who has had a chronic cough for over a year. i have had numerous CT scans, and chest Xrays. i had chronic sinusitis and had surgery in april. i had the surgery b/c a few doctors believed that the blockage was causing my infection.i...