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  1. J

    CF and Work

    Hi Radies, I relate completely to what you are saying. I worked for a very small (12 employees) company for a year and did not disclose my cf. I was covering for a woman on a long maternity leave. The nature of teh position meant I had to keep in close contact with her and we became v close...
  2. J

    Leaving

    Two of the most intelligent and high contributing posters leaving, that's a shame. I have no idea what's happening but I'm going to email you because I would hate to mss out on future discussions/ advice!
  3. J

    CF related Sunburns? (Not caused by antibiotics)

    Come to think of it my dietician did mention that my vit D levels were the highest she'd seen in her cf patients! All my vitamins are always well within normal (if not in the upper) range, with the exception of vit A as retinol, vitamin A as carotene is absolutely fine but retinol is a bit low.
  4. J

    CF related Sunburns? (Not caused by antibiotics)

    I amabout 75%Irish blood, with some Italian from my father's side. I live in a mild rainy climate with barely any sunshine but AS SOON as the sun is out I start to tan and will go very dark if I stay out in it! I like it! Although I have to be careful because after a week sun bathing on vacation...
  5. J

    Can somebody tell me...

    <em>Here is my intro to genetics...if you are interested read on, if not it may work as a sleep inducer <img src="i/expressions/face-icon-small-smile.gif" border="0"></em> Hi, you might find it interesting to learn a little about "Simple Mendelian Genetics". This is the way genes are passed from...
  6. J

    Can somebody tell me...

    <em>Here is my intro to genetics...if you are interested read on, if not it may work as a sleep inducer <img src="i/expressions/face-icon-small-smile.gif" border="0"></em> Hi, you might find it interesting to learn a little about "Simple Mendelian Genetics". This is the way genes are passed from...
  7. J

    Need Reccommendations

    Muchlove I'm so sorry to hear about this struggle. I would agree with the others that playing around with enzyme doses could help, try increasing gradually over a few days and see if it helps. In addition try to note if there are certain foods that bring on BMs more so than others. Your body...
  8. J

    Need Reccommendations

    Muchlove I'm so sorry to hear about this struggle. I would agree with the others that playing around with enzyme doses could help, try increasing gradually over a few days and see if it helps. In addition try to note if there are certain foods that bring on BMs more so than others. Your body...
  9. J

    Happy with myself

    That's awesome well done!!! I hope I'm still running when I'm 40...actually I will still be running when I'm 40 <img src="i/expressions/face-icon-small-smile.gif" border="0"> I know training ain't much fun but crossing a finish line makes it soooo worth it <img...
  10. J

    Happy with myself

    That's awesome well done!!! I hope I'm still running when I'm 40...actually I will still be running when I'm 40 <img src="i/expressions/face-icon-small-smile.gif" border="0"> I know training ain't much fun but crossing a finish line makes it soooo worth it <img...
  11. J

    PICC line

    No the tip is well into the atrium, I saw it on the scan monitor flailing about with ever heart beat. Apparently this is the latest recommendation to avoid PICC-associated narrowing of the vessels. I specifically asked why it needed to be in so far and that's what the radiologist said. The...
  12. J

    PICC line

    No the tip is well into the atrium, I saw it on the scan monitor flailing about with ever heart beat. Apparently this is the latest recommendation to avoid PICC-associated narrowing of the vessels. I specifically asked why it needed to be in so far and that's what the radiologist said. The...
  13. J

    PICC line

    I'm curious to know if anyone else feels heart palpitations from a PICC line which extends into the heart atrium? I was told it could happen and won't cause any damage but still...it bothers me to think of my heart getting involved when it's such a well behaved organ!
  14. J

    PICC line

    I'm curious to know if anyone else feels heart palpitations from a PICC line which extends into the heart atrium? I was told it could happen and won't cause any damage but still...it bothers me to think of my heart getting involved when it's such a well behaved organ!
  15. J

    Best birth control?

    A couple of things regarding some of these comments that I have learned when asking the questions you are asking- -the patch may not be as effective in cf due to increased salt on the skin - they really aren't sure whether the pill is affected by malabsorption- the problem in cf is more due to...
  16. J

    Best birth control?

    A couple of things regarding some of these comments that I have learned when asking the questions you are asking- -the patch may not be as effective in cf due to increased salt on the skin - they really aren't sure whether the pill is affected by malabsorption- the problem in cf is more due to...
  17. J

    complicated situation..

    Hi Clarice, Firstly, well done for making contact about this. CanI give you some urgent advice? What you are experiencingis a warning call from your body- it is not liking your lack of attention and believe me you are playing with fire. I had a blissful, practically cf-free childhood and...
  18. J

    complicated situation..

    Hi Clarice, Firstly, well done for making contact about this. CanI give you some urgent advice? What you are experiencingis a warning call from your body- it is not liking your lack of attention and believe me you are playing with fire. I had a blissful, practically cf-free childhood and...
  19. J

    How many PICCs before Port?

    I don't have a port but I have what I've been told are "crap veins", which has often been closely followed by a pitying look and "probably cos you've been accessed so much"...cue my exasperated response...BUT I HAVEN'T! Relatively speaking i've had quite little access. Didn't get an iv until age...
  20. J

    How many PICCs before Port?

    I don't have a port but I have what I've been told are "crap veins", which has often been closely followed by a pitying look and "probably cos you've been accessed so much"...cue my exasperated response...BUT I HAVEN'T! Relatively speaking i've had quite little access. Didn't get an iv until age...
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