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I think Chris was a dork who (by doing one of the tackiest things possible, evangelizing a sick atheist) ended up in a hole, and didn't realize he needed to stop digging. I also think the whole incident was hilarious, and had I been around to reply in real-time, would have enjoyed the joking...

Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.

They said virtually nothing about what they have. Whereas, for the antiviral drug they're developing, it's going to enter stage II clinical trials, they didn't even mention the preliminary stage 1 studies for anything CF-related. Sounds like yet more vaporware.

It's linked to from my blog at www.save-allan.org/wpblog now.

That's right, folks, thanks to Cullen Browder and the crew at WRAL-- Raleigh's CBS affiliate--my story was immortalized on the airwaves and is now travelling, at light speed, towards other planets. Once it reaches the homeworld of an advanced civilization that has the technology--and desire...

I will post an update on my journal at <a target=new class=ftalternatingbarlinklarge href="http://www.save-allan.org/wpblog">http://www.save-allan.org/wpblog</a> in a few minutes. The pain is definitely down, but there are lingering issues that will likely keep me in the hospital for a few more...

Speaking of which, I forgot: Last year, I got some rather annoying inflamed joints on my hands and feet just prior to three different hospitalizations. The symptoms seemed to appear way before I knew anything else was wrong. At one point, a diagnosis of CF-related arthritis was suggested, but...

It's been a long time since I've been able to tell the not-infections from the actual ones. From my anecdotal recollection, it would manifest as a combination of factors--increased sputum, fever, weakness, loss of appetite/weight, shortness of breath, more time spent sleeping, less effective...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Emily65Roses</b></i><br>I am inclined to think it goes both ways. Those who exercise regularly have better PFTs. But also... Those with better PFTs are *able* to exercise regularly. <hr></blockquote> No kidding. I used to think it was all in...

<i>The Haunted Mansion</i> was also, amusingly, a nice movie. Along with <i>Pirates of the Caribbean</i> (which was even more impressive) I used to think that book-to-movie (or worse, video-game-to-movie) adaptations were doomed, but I'm really surprised at how Disney was creative enough to pull...

I like education. I have a rather broad view of it that recognizes the value of skilled trades and general creativity as much as "book smarts." If I were to design a school, creativity and skillful implementation of novel ideas would be rewarded, quite probably more than rote memorization. (For...

I conceded that the clinical definition would include anyone who had whatever CF was, according to doctors, at the time. I suspect using it that way is misleading, much like our classifications of "race" (in that there's more variation within a supposedly single disease, or single "race," than...

I've read both the topics in question, and find them extremely entertaining. As an adult, though, I'm sure Chris can speak for himself without needing his views clarified by others. Now, whether he feels that God, the invisible pink unicorn, the flying spaghetti monster, his invisible healing...

<blockquote>Quote<br><hr><i>Originally posted by EB24</i> I think you are the type person that would find something to complain about and not be happy, no matter what.<hr></blockquote> That's what facts were invented for; to dispell misconceptions like yours, adapted after a cursory skim of...

(1) I may as well admit that I just HAD to look at this topic. (2) I'm revealing that not because I'm a perv--although I am--but because I had pain in the nipples, myself (as well as a couple of cysts, only one of which remains after stopping the corticosteroids). Are you on any steroids, right...

My mom took me to Florida with one, in recent memory. I don't remember what year it was, but it was after I'd gotten severely ill, and couldn't get around that much on my own. They led me around the Miami Seaquarium and some other places with it, and I can't say it was too annoying. Nowadays...

I honestly can't believe this is a serious question. Perhaps we need to rephrase it, a bit, to make it more obviously ludicrous. I don't think the question is <i>"Would you take your old, comfortably familiar life with CF, or a new, hypothetical one which you don't know anything about?"</i>...

You're a much stronger woman than I am. <img src="i/expressions/face-icon-small-wink.gif" border="0">

No, I haven't. I'll keep it in mind should I ever come across it.

D'oh, you're anonymous, no PMs. Anyway, have you considered buying from an online pharmacy, if it isn't covered? Even the much-maligned CF pharmacy should be able to help you out.