About my eye clinic check up

S

Swedishstar84

Banned
Hello everyone!
Most of you know about my fungusinfection and that the fungus destroyed my eyes badly. I went to my tx center 2days ago and everything went fine. But i am sure you all know or have had the feeling sometimes, when u feel it going to be good etc. I had the feeling my eyes got better to i had my check up at the hospital, i don't t know if i should say its worse because i don't really remember what it was last time, but i got disapointed.because i was thinking it was better and think my left eye was better ( 3-4% last time) and now i could not see the letters (A,B,C etc) hardly the nurses hand very close. I don't know what to do and itS nothing they can do <img src="i/expressions/face-icon-small-sad.gif" border="0"> but my right eye was the same. Ok happy about something .

Just needed to write about this feel a bit down.

Hugs /Marie
 
S

Swedishstar84

Banned
Hello everyone!
Most of you know about my fungusinfection and that the fungus destroyed my eyes badly. I went to my tx center 2days ago and everything went fine. But i am sure you all know or have had the feeling sometimes, when u feel it going to be good etc. I had the feeling my eyes got better to i had my check up at the hospital, i don't t know if i should say its worse because i don't really remember what it was last time, but i got disapointed.because i was thinking it was better and think my left eye was better ( 3-4% last time) and now i could not see the letters (A,B,C etc) hardly the nurses hand very close. I don't know what to do and itS nothing they can do <img src="i/expressions/face-icon-small-sad.gif" border="0"> but my right eye was the same. Ok happy about something .

Just needed to write about this feel a bit down.

Hugs /Marie
 
J

JustDucky

New member
(((Marie))), I have been following your journey for the last 5 years and you certainly have had it rough! I'm sorry that your left eye has decreased in vision, but happy that your right eye hasn't changed. Hang in there, I pray that your eyes remain fungus free and that the vision doesn't get any worse. Sending hugs your way

Jenn 40 w/CF
 
J

JustDucky

New member
(((Marie))), I have been following your journey for the last 5 years and you certainly have had it rough! I'm sorry that your left eye has decreased in vision, but happy that your right eye hasn't changed. Hang in there, I pray that your eyes remain fungus free and that the vision doesn't get any worse. Sending hugs your way

Jenn 40 w/CF
 
B

beleache

New member
Hi Marie,
Im sorry you didn't have the results you were hoping for <img src="i/expressions/face-icon-small-sad.gif" border="0"> Its very hard to have our hopes turn into disappointment.. Thoughts, Prayers & {{{hugs}}} to you..
<3 joni
 
B

beleache

New member
Hi Marie,
Im sorry you didn't have the results you were hoping for <img src="i/expressions/face-icon-small-sad.gif" border="0"> Its very hard to have our hopes turn into disappointment.. Thoughts, Prayers & {{{hugs}}} to you..
<3 joni
 
S

Swedishstar84

Banned
Thank you both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> i feel better now but this with My visionproblem spcially after an check up. Things comming over me and i feel sad for awaile. Even if i know they can not do so much about it. Thank you again for your support <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Swedishstar84

Banned
Thank you both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> i feel better now but this with My visionproblem spcially after an check up. Things comming over me and i feel sad for awaile. Even if i know they can not do so much about it. Thank you again for your support <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
I

Imogene

Administrator
Love you Marie! Just remembering the wonderful time we had in NYC you and me and Joni...and your sis and mom!
Hugs and Salt and Light!
Jeanne
 
I

Imogene

Administrator
Love you Marie! Just remembering the wonderful time we had in NYC you and me and Joni...and your sis and mom!
Hugs and Salt and Light!
Jeanne
 
M

myohmymary

New member
Hi, i may sound way off, but are eye problems a part of cf? My daughter Allissa is 7 with ddf508. She has had every problem (less pulmonary) that they say "isn't likely". I really like to be hyper aware of anything that could possibly arise, I think it gives me a better chance at staving it off. Thanks, Mary
 
M

myohmymary

New member
Hi, i may sound way off, but are eye problems a part of cf? My daughter Allissa is 7 with ddf508. She has had every problem (less pulmonary) that they say "isn't likely". I really like to be hyper aware of anything that could possibly arise, I think it gives me a better chance at staving it off. Thanks, Mary
 
S

Swedishstar84

Banned
Hey i would love to come to NYC again<img src="i/expressions/face-icon-small-smile.gif" border="0">
They tx doc's don't know if the fungus are from my old lungs or not. The fungus could also have came due to low immunsystem after My tx. So only unlucky this happend 4months after my tx. but glad they find the fungus at last otherwise i wouldn't be here 5yrs later <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
S

Swedishstar84

Banned
Hey i would love to come to NYC again<img src="i/expressions/face-icon-small-smile.gif" border="0">
They tx doc's don't know if the fungus are from my old lungs or not. The fungus could also have came due to low immunsystem after My tx. So only unlucky this happend 4months after my tx. but glad they find the fungus at last otherwise i wouldn't be here 5yrs later <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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