Nathan is 10 weeks now. He is the exact same, we actually wouldnt have been none the wiser if he hadnt of shown high levels of protein in the newborn screening (not sure if this is a procedure they have in america).
He has had a lot of bowel movement problems, but in terms of absorbing fats and proteins from his food he appears to be doing that successfully as he is now 12 lbs, 4 ozs.
He is quite chesty occasionally but up until now there has been no infection. I dont think it matters, if this combination is mild, I think ill still be a wreck when he gets a chest infection, even though every child does.
has your cf doctor suggested using preventative measures anyway?
Here in Scotland, UK, I think it is normal for every child to start physio, regardless of the severity of the cf.
I know our consultant is doing some research on the gene combination, so i would be interested to see if the does and how it may affect females, as extending our family may be an option in the future.
hope you and your family are all well.