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Bad Breath
- Thread starter djotroy17
- Start date
Yes, especially whenever an infection is brewing...I know I have said this before, bacteria have different smells and tastes. Personally, the grossest smelling/tasting bacteria is Achromobacter, smells like rotting garbage and I can't get that smell out of me...no amount of sprays or deodorizers subdues that one. Next of course is PA....awful stuff too, my daughter can smell me from across the room whenever I am in a flare...like now, my dog is the only thing that will sit next to me for any length of time. I have a killer PA infection, my breath smells, I can taste it with each inhalation and exhalation...awful. Not much helps, but I do suck on some strong candies like cinnamon or red hots. It works for a short bit.
Hugs, Jenn
Hugs, Jenn
Yes, especially whenever an infection is brewing...I know I have said this before, bacteria have different smells and tastes. Personally, the grossest smelling/tasting bacteria is Achromobacter, smells like rotting garbage and I can't get that smell out of me...no amount of sprays or deodorizers subdues that one. Next of course is PA....awful stuff too, my daughter can smell me from across the room whenever I am in a flare...like now, my dog is the only thing that will sit next to me for any length of time. I have a killer PA infection, my breath smells, I can taste it with each inhalation and exhalation...awful. Not much helps, but I do suck on some strong candies like cinnamon or red hots. It works for a short bit.
Hugs, Jenn
Hugs, Jenn
Yes, especially whenever an infection is brewing...I know I have said this before, bacteria have different smells and tastes. Personally, the grossest smelling/tasting bacteria is Achromobacter, smells like rotting garbage and I can't get that smell out of me...no amount of sprays or deodorizers subdues that one. Next of course is PA....awful stuff too, my daughter can smell me from across the room whenever I am in a flare...like now, my dog is the only thing that will sit next to me for any length of time. I have a killer PA infection, my breath smells, I can taste it with each inhalation and exhalation...awful. Not much helps, but I do suck on some strong candies like cinnamon or red hots. It works for a short bit.
<br />Hugs, Jenn
<br />Hugs, Jenn
gracebazzle
New member
Yes. I get really bad breath when my PA is flaring, pretty much like everyone else said. I know how you feel though because my boyfriend is like "WHOA that stinks" lol we joke about it so it's ok, but I know how it can make you feel self conscience. Don't worry though, there seriously is nothing you can do about it except treat the infection and brush and rinse! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess a positive thought would be it's an easy way to tell if you are getting a flare up.
gracebazzle
New member
Yes. I get really bad breath when my PA is flaring, pretty much like everyone else said. I know how you feel though because my boyfriend is like "WHOA that stinks" lol we joke about it so it's ok, but I know how it can make you feel self conscience. Don't worry though, there seriously is nothing you can do about it except treat the infection and brush and rinse! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess a positive thought would be it's an easy way to tell if you are getting a flare up.
gracebazzle
New member
Yes. I get really bad breath when my PA is flaring, pretty much like everyone else said. I know how you feel though because my boyfriend is like "WHOA that stinks" lol we joke about it so it's ok, but I know how it can make you feel self conscience. Don't worry though, there seriously is nothing you can do about it except treat the infection and brush and rinse! <img src="i/expressions/face-icon-small-smile.gif" border="0"> I guess a positive thought would be it's an easy way to tell if you are getting a flare up.
Herne Webber
New member
I think all of the mentions of oral hygiene are probably missing the mark. For most of us, clearly we are doing **much** more than other people orally, and yet we still have horrid breath much of the time. I am only partially affected, having just one CF gene, but my sister and I have had the thickest mucous of any people I have ever met, and when it gets truly awfully thick, my breath is disgusting, like a rotten animal in the street (not exaggerating). Craig has had to have me put a pillow over my face at some times if I am going to watch television with him, because it was so bad, he vomited. Yeah. That was a thrill.
I had asked my former primary care doc, an infectious disease specialist (I have HIV) if I could be a CF carrier, and if so, if that could be related to my mucous and rot-breath, and he just waved that off, like I was being a hypochondriac. I have gotten that a lot in my life, since I have dermographia, and discovered that on my own, and also tested positive for Epstein-Barr Virus and XMRV (a virus possibly linked to some cancers and chronic fatigue), which viruses I also figured out I had on my own, later confirmed with tests. Hypochondriacs believe they have everything they hear about. I am simply body conscious, because I have always had problems with my breath, with my sinuses, with tonsillitis (removed at 5 with my adenoids), then nasal polyps (my adenoidal tissue, apparently, removed at age 10), then finally an adult diagnosis of asthma, then I had avascular necrosis of my hips (unknown etiology) at age 33, necessitating their replacement. Perhaps the ER steroid I got for an asthma attack in combo with low Ca absorption caused the hip degeneration?
I only JUST got my CF gene result back from 23andme, the genetic testing site, so this is all new to me, but when I looked up the symptoms for the newly created designation CRMD, I was shocked to see a list of basically most of what I have had to deal with forever, and not a single doc had thought to check me out for CF! I discovered saline solution for my sinuses on my own, and ibuprofen for lung inflammation on my own, and OTC guaifenesin to thin out my mucous on my own, and cupped smacking on my chest (or Craig doing it on my back) on my own (before finding out it was also used for CF patients) - and then I got the 23andme result, and again had to figure things out on my own. The new diagnostic criteria specifically states that everyone with even one copy of a CF gene needs to be checked annually, especially since I have had symptoms of no known cause for decades. I am so tired of having to figure things out on my own!!! Maybe I will finally get a medication that can thin my chest mucous, and perhaps a proper look at whatever bacteria or fungus may be causing the stink? Since my parents were both unaffected (as far as can be seen), my own mother is dubious! We have no people with CF in the family (that we know of), but since finding this out, I have told everyone to be screened for this specifically if they think they might have issues.
I had asked my former primary care doc, an infectious disease specialist (I have HIV) if I could be a CF carrier, and if so, if that could be related to my mucous and rot-breath, and he just waved that off, like I was being a hypochondriac. I have gotten that a lot in my life, since I have dermographia, and discovered that on my own, and also tested positive for Epstein-Barr Virus and XMRV (a virus possibly linked to some cancers and chronic fatigue), which viruses I also figured out I had on my own, later confirmed with tests. Hypochondriacs believe they have everything they hear about. I am simply body conscious, because I have always had problems with my breath, with my sinuses, with tonsillitis (removed at 5 with my adenoids), then nasal polyps (my adenoidal tissue, apparently, removed at age 10), then finally an adult diagnosis of asthma, then I had avascular necrosis of my hips (unknown etiology) at age 33, necessitating their replacement. Perhaps the ER steroid I got for an asthma attack in combo with low Ca absorption caused the hip degeneration?
I only JUST got my CF gene result back from 23andme, the genetic testing site, so this is all new to me, but when I looked up the symptoms for the newly created designation CRMD, I was shocked to see a list of basically most of what I have had to deal with forever, and not a single doc had thought to check me out for CF! I discovered saline solution for my sinuses on my own, and ibuprofen for lung inflammation on my own, and OTC guaifenesin to thin out my mucous on my own, and cupped smacking on my chest (or Craig doing it on my back) on my own (before finding out it was also used for CF patients) - and then I got the 23andme result, and again had to figure things out on my own. The new diagnostic criteria specifically states that everyone with even one copy of a CF gene needs to be checked annually, especially since I have had symptoms of no known cause for decades. I am so tired of having to figure things out on my own!!! Maybe I will finally get a medication that can thin my chest mucous, and perhaps a proper look at whatever bacteria or fungus may be causing the stink? Since my parents were both unaffected (as far as can be seen), my own mother is dubious! We have no people with CF in the family (that we know of), but since finding this out, I have told everyone to be screened for this specifically if they think they might have issues.
azdesertrat
New member
Oh man, I remember those days all too well.
Pre-transplant my breath seemed like it was just awful. I used to chew tobacco too, so I'm sure that didn't help.
Gave up the Copenhagen (tobacco) back in '99.
Since I had to have something in my mouth all the time, I started chewing gum all my waking hours. I'm pretty sure it's the mucous you're coughing up.
Post-trans, my breath isn't nearly as bad, as often as it was. Hope this helps.
Pre-transplant my breath seemed like it was just awful. I used to chew tobacco too, so I'm sure that didn't help.
Gave up the Copenhagen (tobacco) back in '99.
Since I had to have something in my mouth all the time, I started chewing gum all my waking hours. I'm pretty sure it's the mucous you're coughing up.
Post-trans, my breath isn't nearly as bad, as often as it was. Hope this helps.
U
uwrong1053
Guest
I also believe whe I am getting an infection my breath is worse.
cheerfulpuppies
Member
My mother used to say to me. You have an infection your breath stinks. She didn't say I always had bad breath only once in a while so maybe you are growing some more bacterial than usual.
athletixbc
New member
The fact of the matter is sputum stinks! Consider where the air you breathe out is coming from... The inside of your lungs where the sputum is. Naturally, when you breathe out, your breath is going to take on the smell of the sputum. This is going to hold true even if your dental hygiene is spotless, because the smell is not originating in your mouth but in your lungs.
Since you can't control the smell of your breath, the best you can do is mask it in some way. For the better part of my adult life I've always carried breath mints, gum, or some kind of throat lozenge (if I also have a sore throat from a worsening cough) with me whenever I go out in public.
That's the best thing you can do. That doesn't mean to forget the dental hygiene though! Bad teeth are a major cause of infection that can spread to the lungs.
Since you can't control the smell of your breath, the best you can do is mask it in some way. For the better part of my adult life I've always carried breath mints, gum, or some kind of throat lozenge (if I also have a sore throat from a worsening cough) with me whenever I go out in public.
That's the best thing you can do. That doesn't mean to forget the dental hygiene though! Bad teeth are a major cause of infection that can spread to the lungs.
CyrilCrodius
New member
Persistent bad breath is often caused by stuffed tonsils. You need to squeeze them with something to get the gunk out of them.
http://www.dailymail.co.uk/health/article-1213457/Bad-breath-It-nasty-case-tonsil-stones.html
http://www.dailymail.co.uk/health/article-1213457/Bad-breath-It-nasty-case-tonsil-stones.html
Melody Chaney
New member
Breath smells like hydrogen peroxide
My daughter has cf. I never noticed a problem with her breath until when she was 8 years old, we got a feeding tube out in. After that, I noticed a dramatic change in her breath. It smells horrible! It has a pungent chemical smell like some really strong smelling hydrogen peroxide. The doctors say that can just be caused by acid reflux (which she has), but I’m thinking it has something to do with the feeding tube seeing as how she’s has acid reflux her whole life. I’m wondering if maybe she’s aspirating at night since her feeding tube runs at night. We try to keep her propped up, but she moves around so much in her sleep, that in the mornings, I always find her laying flat at the foot of her bed not even in her pillows. Now that she just got approved for a medical program that provides for improvements in the home, I’m going to try to get her an inclining bed like they have at the hospitals, and see if that helps. Aspirating can be very serious and lead to death. Especially for someone with cf.
My daughter has cf. I never noticed a problem with her breath until when she was 8 years old, we got a feeding tube out in. After that, I noticed a dramatic change in her breath. It smells horrible! It has a pungent chemical smell like some really strong smelling hydrogen peroxide. The doctors say that can just be caused by acid reflux (which she has), but I’m thinking it has something to do with the feeding tube seeing as how she’s has acid reflux her whole life. I’m wondering if maybe she’s aspirating at night since her feeding tube runs at night. We try to keep her propped up, but she moves around so much in her sleep, that in the mornings, I always find her laying flat at the foot of her bed not even in her pillows. Now that she just got approved for a medical program that provides for improvements in the home, I’m going to try to get her an inclining bed like they have at the hospitals, and see if that helps. Aspirating can be very serious and lead to death. Especially for someone with cf.