Cf and living

Rickengelage

New member
Hey guys

So im wondering, how do you live?

Since I feel like im just surviving lately and not able to really live at all since my desease always keeps getting in the way of what ever I do.
I dont know how to deal with it.

I feel frustrated because all these knew medicines are comming out, that could actually be very helpful and wayy wayy better than what We and I have now. but it feels like a lifetime for these medicines to arrive. And become available.
 
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