H
hopesiris
Guest
I am taking the same approach as Nicole. I do my neb in the livingroom watching tv. Last week Amelia noticed my neb cup so I told her "this is mommies neb cup" and let her look at it. My husband brings Amelia into our bedroom when I do my vest. He sits her on my shoulders and we laugh as she gets her "ride" and I play with her tiny feet. We move her away when I huff and cough though-she goes with daddy to another room. Since she is noticing these things as a newborn baby, I think openness will benefit us when it comes time that she asks about my CF.
Amelia does look distressed when I cough loudly/repeatedly and when my husband said something about it I just shrugged my shoulders. Yes, she will know I'm sick (meaning I have CF and need my treatments) but she also sees me exercise and live my life as fully as possible.
You and I are very close in age, both mothers, see the same doctor and do a couple of the same treatments but our health is very different and of course I know I can't advise you on what is best for your little one. I'm basing my approach with Amelia on what my husband and I can manage to do every day, and on our approach to my CF so far.
Bonnie
Amelia does look distressed when I cough loudly/repeatedly and when my husband said something about it I just shrugged my shoulders. Yes, she will know I'm sick (meaning I have CF and need my treatments) but she also sees me exercise and live my life as fully as possible.
You and I are very close in age, both mothers, see the same doctor and do a couple of the same treatments but our health is very different and of course I know I can't advise you on what is best for your little one. I'm basing my approach with Amelia on what my husband and I can manage to do every day, and on our approach to my CF so far.
Bonnie