CF ROUTINES

becca23

New member
I incorporate my treatment into mine and my kids life. they seem to enjoy it. we ussually play games or watch tv while I do my treatments, if they are up. My oldest one is a big help when I am on IV's, she will go get me supplies if I forget them.

I have noticed here recently that Lacie(8) has started to notice the difference in me and other moms but she really has not said much. She knows that I have something wrong with my lungs but I have not really explained everything to her. I answer her questions when she asks them, giving her enough information to satisfy her curosity.

In all reality, it is actually up to u and your family and what u think Jazz can handle.
 

becca23

New member
I incorporate my treatment into mine and my kids life. they seem to enjoy it. we ussually play games or watch tv while I do my treatments, if they are up. My oldest one is a big help when I am on IV's, she will go get me supplies if I forget them.

I have noticed here recently that Lacie(8) has started to notice the difference in me and other moms but she really has not said much. She knows that I have something wrong with my lungs but I have not really explained everything to her. I answer her questions when she asks them, giving her enough information to satisfy her curosity.

In all reality, it is actually up to u and your family and what u think Jazz can handle.
 

becca23

New member
I incorporate my treatment into mine and my kids life. they seem to enjoy it. we ussually play games or watch tv while I do my treatments, if they are up. My oldest one is a big help when I am on IV's, she will go get me supplies if I forget them.

I have noticed here recently that Lacie(8) has started to notice the difference in me and other moms but she really has not said much. She knows that I have something wrong with my lungs but I have not really explained everything to her. I answer her questions when she asks them, giving her enough information to satisfy her curosity.

In all reality, it is actually up to u and your family and what u think Jazz can handle.
 

becca23

New member
I incorporate my treatment into mine and my kids life. they seem to enjoy it. we ussually play games or watch tv while I do my treatments, if they are up. My oldest one is a big help when I am on IV's, she will go get me supplies if I forget them.

I have noticed here recently that Lacie(8) has started to notice the difference in me and other moms but she really has not said much. She knows that I have something wrong with my lungs but I have not really explained everything to her. I answer her questions when she asks them, giving her enough information to satisfy her curosity.

In all reality, it is actually up to u and your family and what u think Jazz can handle.
 

becca23

New member
I incorporate my treatment into mine and my kids life. they seem to enjoy it. we ussually play games or watch tv while I do my treatments, if they are up. My oldest one is a big help when I am on IV's, she will go get me supplies if I forget them.

I have noticed here recently that Lacie(8) has started to notice the difference in me and other moms but she really has not said much. She knows that I have something wrong with my lungs but I have not really explained everything to her. I answer her questions when she asks them, giving her enough information to satisfy her curosity.

In all reality, it is actually up to u and your family and what u think Jazz can handle.
 

JazzysMom

New member
I am starting to think that I am making a bigger deal out of the whole thing then Jazz might be.

She has seen everything from helping me with iv setup to my choking & throwing up from coughing so hard. She doesnt appear upset during any of it.

It is just a part of our routine & lives. NO different then cooking dinner or shoveling dog poop <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

JazzysMom

New member
I am starting to think that I am making a bigger deal out of the whole thing then Jazz might be.

She has seen everything from helping me with iv setup to my choking & throwing up from coughing so hard. She doesnt appear upset during any of it.

It is just a part of our routine & lives. NO different then cooking dinner or shoveling dog poop <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

JazzysMom

New member
I am starting to think that I am making a bigger deal out of the whole thing then Jazz might be.

She has seen everything from helping me with iv setup to my choking & throwing up from coughing so hard. She doesnt appear upset during any of it.

It is just a part of our routine & lives. NO different then cooking dinner or shoveling dog poop <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

JazzysMom

New member
I am starting to think that I am making a bigger deal out of the whole thing then Jazz might be.

She has seen everything from helping me with iv setup to my choking & throwing up from coughing so hard. She doesnt appear upset during any of it.

It is just a part of our routine & lives. NO different then cooking dinner or shoveling dog poop <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 

JazzysMom

New member
I am starting to think that I am making a bigger deal out of the whole thing then Jazz might be.

She has seen everything from helping me with iv setup to my choking & throwing up from coughing so hard. She doesnt appear upset during any of it.

It is just a part of our routine & lives. NO different then cooking dinner or shoveling dog poop <img src="i/expressions/face-icon-small-tongue.gif" border="0">
 
T

TonyaH

Guest
Cooking dinner and shoveling dog poop...Nice comparison, Mel!! Tehe!
 
T

TonyaH

Guest
Cooking dinner and shoveling dog poop...Nice comparison, Mel!! Tehe!
 
T

TonyaH

Guest
Cooking dinner and shoveling dog poop...Nice comparison, Mel!! Tehe!
 
T

TonyaH

Guest
Cooking dinner and shoveling dog poop...Nice comparison, Mel!! Tehe!
 
T

TonyaH

Guest
Cooking dinner and shoveling dog poop...Nice comparison, Mel!! Tehe!
 

Scarlett81

New member
Interesting conversation....and kudos to all for keeping it calm.

I plan on being very open with my kid(s) about it. For now, I try to do nebs when she's asleep just so I can do a thorough pt and not get interrupted, but when she's awake and cranky she sits in a bouncy seat near me and I make funny vest voices which makes her laugh.
All I can do is make a judgement call on my experience with cf, and I know that if my parent tried to conceal my cf I'd be upset so I'll do the same for my child. I realize this isn't the same thing but the general principal is.
Growing up, when I had chest pt that was family tv time-dealing with the noise from it taught my brothers patience-and we'd watch old movies and my mom would tell us the names of all the old movie stars and old movie trivia. Thats where I get my love of them. And I plan on doing the same with my daughter.
I know what you mean, Mel. You are open with her, but you don't want every second to be putting this in her face. I think it takes coming up with creative things you can do together during these times that include the kids but you can still do while trying to get therapy done.
Like one mom above said-iv time was the best heart-to heart time for her. You'll figure it out. Youve done wonderfully so far.
I think too that this can teach kids of cfers-patience, care, compassion and determination. They see us taking care of ourselves-as adults that will help them to care for their responsibilities.
Personally, I don't want my cf to be a taboo subject ever. I want it to be just another part of mama's routine. And kids do pick up on things and start to go with the flow. My little neices, 6 and 4, say-oh, I can't kiss you aunt christian, I have a cold....When they ask questions-I give age appropriate replies and they think for about 3 seconds...and go back to Barbie. I don't make it a big deal-and they don't. But they are still aware. Its a balance.
I often think about how will I deal with hospitalizations, ect...I just have to go with the flow and deal with each separate occasion as it comes. I think moms have instincts that serve them well.
 

Scarlett81

New member
Interesting conversation....and kudos to all for keeping it calm.

I plan on being very open with my kid(s) about it. For now, I try to do nebs when she's asleep just so I can do a thorough pt and not get interrupted, but when she's awake and cranky she sits in a bouncy seat near me and I make funny vest voices which makes her laugh.
All I can do is make a judgement call on my experience with cf, and I know that if my parent tried to conceal my cf I'd be upset so I'll do the same for my child. I realize this isn't the same thing but the general principal is.
Growing up, when I had chest pt that was family tv time-dealing with the noise from it taught my brothers patience-and we'd watch old movies and my mom would tell us the names of all the old movie stars and old movie trivia. Thats where I get my love of them. And I plan on doing the same with my daughter.
I know what you mean, Mel. You are open with her, but you don't want every second to be putting this in her face. I think it takes coming up with creative things you can do together during these times that include the kids but you can still do while trying to get therapy done.
Like one mom above said-iv time was the best heart-to heart time for her. You'll figure it out. Youve done wonderfully so far.
I think too that this can teach kids of cfers-patience, care, compassion and determination. They see us taking care of ourselves-as adults that will help them to care for their responsibilities.
Personally, I don't want my cf to be a taboo subject ever. I want it to be just another part of mama's routine. And kids do pick up on things and start to go with the flow. My little neices, 6 and 4, say-oh, I can't kiss you aunt christian, I have a cold....When they ask questions-I give age appropriate replies and they think for about 3 seconds...and go back to Barbie. I don't make it a big deal-and they don't. But they are still aware. Its a balance.
I often think about how will I deal with hospitalizations, ect...I just have to go with the flow and deal with each separate occasion as it comes. I think moms have instincts that serve them well.
 

Scarlett81

New member
Interesting conversation....and kudos to all for keeping it calm.

I plan on being very open with my kid(s) about it. For now, I try to do nebs when she's asleep just so I can do a thorough pt and not get interrupted, but when she's awake and cranky she sits in a bouncy seat near me and I make funny vest voices which makes her laugh.
All I can do is make a judgement call on my experience with cf, and I know that if my parent tried to conceal my cf I'd be upset so I'll do the same for my child. I realize this isn't the same thing but the general principal is.
Growing up, when I had chest pt that was family tv time-dealing with the noise from it taught my brothers patience-and we'd watch old movies and my mom would tell us the names of all the old movie stars and old movie trivia. Thats where I get my love of them. And I plan on doing the same with my daughter.
I know what you mean, Mel. You are open with her, but you don't want every second to be putting this in her face. I think it takes coming up with creative things you can do together during these times that include the kids but you can still do while trying to get therapy done.
Like one mom above said-iv time was the best heart-to heart time for her. You'll figure it out. Youve done wonderfully so far.
I think too that this can teach kids of cfers-patience, care, compassion and determination. They see us taking care of ourselves-as adults that will help them to care for their responsibilities.
Personally, I don't want my cf to be a taboo subject ever. I want it to be just another part of mama's routine. And kids do pick up on things and start to go with the flow. My little neices, 6 and 4, say-oh, I can't kiss you aunt christian, I have a cold....When they ask questions-I give age appropriate replies and they think for about 3 seconds...and go back to Barbie. I don't make it a big deal-and they don't. But they are still aware. Its a balance.
I often think about how will I deal with hospitalizations, ect...I just have to go with the flow and deal with each separate occasion as it comes. I think moms have instincts that serve them well.
 

Scarlett81

New member
Interesting conversation....and kudos to all for keeping it calm.

I plan on being very open with my kid(s) about it. For now, I try to do nebs when she's asleep just so I can do a thorough pt and not get interrupted, but when she's awake and cranky she sits in a bouncy seat near me and I make funny vest voices which makes her laugh.
All I can do is make a judgement call on my experience with cf, and I know that if my parent tried to conceal my cf I'd be upset so I'll do the same for my child. I realize this isn't the same thing but the general principal is.
Growing up, when I had chest pt that was family tv time-dealing with the noise from it taught my brothers patience-and we'd watch old movies and my mom would tell us the names of all the old movie stars and old movie trivia. Thats where I get my love of them. And I plan on doing the same with my daughter.
I know what you mean, Mel. You are open with her, but you don't want every second to be putting this in her face. I think it takes coming up with creative things you can do together during these times that include the kids but you can still do while trying to get therapy done.
Like one mom above said-iv time was the best heart-to heart time for her. You'll figure it out. Youve done wonderfully so far.
I think too that this can teach kids of cfers-patience, care, compassion and determination. They see us taking care of ourselves-as adults that will help them to care for their responsibilities.
Personally, I don't want my cf to be a taboo subject ever. I want it to be just another part of mama's routine. And kids do pick up on things and start to go with the flow. My little neices, 6 and 4, say-oh, I can't kiss you aunt christian, I have a cold....When they ask questions-I give age appropriate replies and they think for about 3 seconds...and go back to Barbie. I don't make it a big deal-and they don't. But they are still aware. Its a balance.
I often think about how will I deal with hospitalizations, ect...I just have to go with the flow and deal with each separate occasion as it comes. I think moms have instincts that serve them well.
 

Scarlett81

New member
Interesting conversation....and kudos to all for keeping it calm.

I plan on being very open with my kid(s) about it. For now, I try to do nebs when she's asleep just so I can do a thorough pt and not get interrupted, but when she's awake and cranky she sits in a bouncy seat near me and I make funny vest voices which makes her laugh.
All I can do is make a judgement call on my experience with cf, and I know that if my parent tried to conceal my cf I'd be upset so I'll do the same for my child. I realize this isn't the same thing but the general principal is.
Growing up, when I had chest pt that was family tv time-dealing with the noise from it taught my brothers patience-and we'd watch old movies and my mom would tell us the names of all the old movie stars and old movie trivia. Thats where I get my love of them. And I plan on doing the same with my daughter.
I know what you mean, Mel. You are open with her, but you don't want every second to be putting this in her face. I think it takes coming up with creative things you can do together during these times that include the kids but you can still do while trying to get therapy done.
Like one mom above said-iv time was the best heart-to heart time for her. You'll figure it out. Youve done wonderfully so far.
I think too that this can teach kids of cfers-patience, care, compassion and determination. They see us taking care of ourselves-as adults that will help them to care for their responsibilities.
Personally, I don't want my cf to be a taboo subject ever. I want it to be just another part of mama's routine. And kids do pick up on things and start to go with the flow. My little neices, 6 and 4, say-oh, I can't kiss you aunt christian, I have a cold....When they ask questions-I give age appropriate replies and they think for about 3 seconds...and go back to Barbie. I don't make it a big deal-and they don't. But they are still aware. Its a balance.
I often think about how will I deal with hospitalizations, ect...I just have to go with the flow and deal with each separate occasion as it comes. I think moms have instincts that serve them well.
 
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