I have always tried to do my treatments & iv's when Jazz is in school or went to bed. It hasnt always been easy at bedtime especially when I was on 3 ivs meds.
I usually go to bed shortly after Jazz so having to stay up late was a task at times. I would stress if she wanted to stay up later because in my mind that meant my treatments got done later.
I guess the reason I would "avoid" my treatments in front of her was because she already had enough "reminders" of CF so why throw it in her face daily.
Then there were times that I just couldnt avoid it. My vest & nebs I have to do in the living room because I was not moving it from one place to another. BUT there was no reason I couldnt go my iv's in another room. Why couldnt I watch a movie with her or do arts/crafts in the dining room while hooked up? There was none except for my mind set.
The odd thing is that she is more then happy to "help" by flushing my iv's, setting up the tubing etc so to avoid it in front of her almost makes it seem worse.
SO my ?? is to those CFers who are parents......do you avoid doing your treatments, iv's, care etc in front of your child OR do you just incorporate what you want to do or can do with your child while doing them?
I realize how much value time I waste by "hiding" a part of our life that isnt going away........
I usually go to bed shortly after Jazz so having to stay up late was a task at times. I would stress if she wanted to stay up later because in my mind that meant my treatments got done later.
I guess the reason I would "avoid" my treatments in front of her was because she already had enough "reminders" of CF so why throw it in her face daily.
Then there were times that I just couldnt avoid it. My vest & nebs I have to do in the living room because I was not moving it from one place to another. BUT there was no reason I couldnt go my iv's in another room. Why couldnt I watch a movie with her or do arts/crafts in the dining room while hooked up? There was none except for my mind set.
The odd thing is that she is more then happy to "help" by flushing my iv's, setting up the tubing etc so to avoid it in front of her almost makes it seem worse.
SO my ?? is to those CFers who are parents......do you avoid doing your treatments, iv's, care etc in front of your child OR do you just incorporate what you want to do or can do with your child while doing them?
I realize how much value time I waste by "hiding" a part of our life that isnt going away........