Children affected by CF

point

New member
Does anyone know the backstory for this CNN link? I posted this on the Families portion of the forum as well.

<a href="http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12">http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12</a>
 

point

New member
Does anyone know the backstory for this CNN link? I posted this on the Families portion of the forum as well.

<a href="http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12">http://cnnphotos.blogs.cnn.com/2012/05/05/children-affected-by-cystic-fibrosis/?hpt=hp_bn12</a>
 

BlueBeam

New member
nice photos, i find the last one a tad ironic and humoristic... a chubby cfer with tons of enzymes in her hands lol
 

BlueBeam

New member
nice photos, i find the last one a tad ironic and humoristic... a chubby cfer with tons of enzymes in her hands lol
 
K

Kaethe108

Guest
i dont like this! so cf children have to wear black and look depressive while doing their treatments? the photographer made them look like little vampyres...
i can see the point of showing the sad side of the disease but i dont see the strong, full of willpower, enjoying their active life children that most cf chldren are! i would rather see inspiring pictures of children doing their treatment also having fun, like somebody wrote in another thread that while wearing the vest he and his friends played being astronauts, laughing their heads off. that would be a great picture!!!
 
K

Kaethe108

Guest
i dont like this! so cf children have to wear black and look depressive while doing their treatments? the photographer made them look like little vampyres...
i can see the point of showing the sad side of the disease but i dont see the strong, full of willpower, enjoying their active life children that most cf chldren are! i would rather see inspiring pictures of children doing their treatment also having fun, like somebody wrote in another thread that while wearing the vest he and his friends played being astronauts, laughing their heads off. that would be a great picture!!!
 
i think it's great to make the public opinion notice... for parents with cf kids its sad and maybe heartbreaking - but the aim was to make the public notice the problem and give a little heart and help:

there a link to the story in the left upper corner
his the begining
After meeting a friend's nephew who was suffering from cystic fibrosis, Kyle Monk participated in a fundraising event called Great Strides, sponsored by the Cystic Fibrosis Foundation.

Motivated to further help and bring attention to those with the disease, the Los Angeles-based photographer decided to photograph portraits of those with CF.

"I felt by creating these dark, dramatic but silent and pretty images it would hopefully draw some attention (to the disease)," he said.
 
i think it's great to make the public opinion notice... for parents with cf kids its sad and maybe heartbreaking - but the aim was to make the public notice the problem and give a little heart and help:

there a link to the story in the left upper corner
his the begining
After meeting a friend's nephew who was suffering from cystic fibrosis, Kyle Monk participated in a fundraising event called Great Strides, sponsored by the Cystic Fibrosis Foundation.

Motivated to further help and bring attention to those with the disease, the Los Angeles-based photographer decided to photograph portraits of those with CF.

"I felt by creating these dark, dramatic but silent and pretty images it would hopefully draw some attention (to the disease)," he said.
 

beleache

New member
As long as the children/parents were ok w/ the photos then so am I.. Bringing attention to the cause is important .. <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

beleache

New member
As long as the children/parents were ok w/ the photos then so am I.. Bringing attention to the cause is important .. <img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 

Rebjane

Super Moderator
Actually, I like the pictures. Cystic Fibrosis is not lollipops and roses. I often have even people very close to me forget that CF can rear it's ugly head at any minute, and it's serious and there is no cure.

I try to be very positive, my daughter excels at lots of things, but CF can wear us down. She gets tired of doing her treatments and VEST and swallowing pills and still not feeling great.
 

Rebjane

Super Moderator
Actually, I like the pictures. Cystic Fibrosis is not lollipops and roses. I often have even people very close to me forget that CF can rear it's ugly head at any minute, and it's serious and there is no cure.

I try to be very positive, my daughter excels at lots of things, but CF can wear us down. She gets tired of doing her treatments and VEST and swallowing pills and still not feeling great.
 

JennyCoulon

New member
I do not like the pictures because they are making them looking so sad and depressed. No one is happy that they have CF but mostchildren aren't like this. They do this for pictures of people with cancer, autism, etc. to make everyone feel sorry for them. I can tell you either I or my children want you to feel sorry for them as they are just living their life the best way they can.
 

JennyCoulon

New member
I do not like the pictures because they are making them looking so sad and depressed. No one is happy that they have CF but mostchildren aren't like this. They do this for pictures of people with cancer, autism, etc. to make everyone feel sorry for them. I can tell you either I or my children want you to feel sorry for them as they are just living their life the best way they can.
 

Printer

Active member
Affected means influnced or acted upon. People with CF are not INFLUENCED BY CF, nor does CF ACT UPON US.
 

Printer

Active member
Affected means influnced or acted upon. People with CF are not INFLUENCED BY CF, nor does CF ACT UPON US.
 

point

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> i think it's great to make the public opinion notice... for parents with cf kids its sad and maybe heartbreaking - but the aim was to make the public notice the problem and give a little heart and help: there a link to the story in the left upper corner his the begining After meeting a friend's nephew who was suffering from cystic fibrosis, Kyle Monk participated in a fundraising event called Great Strides, sponsored by the Cystic Fibrosis Foundation. Motivated to further help and bring attention to those with the disease, the Los Angeles-based photographer decided to photograph portraits of those with CF. "I felt by creating these dark, dramatic but silent and pretty images it would hopefully draw some attention (to the disease)," he said.</end quote>

Thanks for the additional info. I tried clinking on the story link yesterday but it just became held up on my computer without posting the info. i was curious to know why the photos were put together and by whom. I thought the pictures were sad as well as dramatic. I am indifferent to whether I think it is good or bad. As a kid, I was definitely not somber b/c of my disease though I understand the value in showing through childrens' expressions the serious side to this disease. Thanks for all the posts, it is interesting to read people's gut responses to the pictures.
 

point

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> i think it's great to make the public opinion notice... for parents with cf kids its sad and maybe heartbreaking - but the aim was to make the public notice the problem and give a little heart and help: there a link to the story in the left upper corner his the begining After meeting a friend's nephew who was suffering from cystic fibrosis, Kyle Monk participated in a fundraising event called Great Strides, sponsored by the Cystic Fibrosis Foundation. Motivated to further help and bring attention to those with the disease, the Los Angeles-based photographer decided to photograph portraits of those with CF. "I felt by creating these dark, dramatic but silent and pretty images it would hopefully draw some attention (to the disease)," he said.</end quote>

Thanks for the additional info. I tried clinking on the story link yesterday but it just became held up on my computer without posting the info. i was curious to know why the photos were put together and by whom. I thought the pictures were sad as well as dramatic. I am indifferent to whether I think it is good or bad. As a kid, I was definitely not somber b/c of my disease though I understand the value in showing through childrens' expressions the serious side to this disease. Thanks for all the posts, it is interesting to read people's gut responses to the pictures.
 
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