All of you out there who have been through this please help. I am really frustrated today<img src="i/expressions/face-icon-small-smile.gif" border="0"> You would think that with all of the issues involved in considering a lung tranplant (ie medical, insurance, financing) that one of those things would have put me in tears first. No, I am a trooper. The thing that brought me to tears today was the rude scheduling person at the Cleveland Clinic who is so short and unaccomodating when I try to schedule a follow-up. I am still well and not desperate. I am considering this early so it is not at emergency level<img src="i/expressions/face-icon-small-smile.gif" border="0"> Cleveland just schedules your couple of days and sends the appointment DHL. I am very very flexible and usually only have one or two places in a month that I can not make the 4-5 hour drive. The woman there is totally not compassionate about a re-schedule. Is this the way all centers work?? I have nothing to compare it to. I can also count on sitting in their waiting room for sometimes at least 2 hours to see the physician and extra waiting time for all other things. Is that to be expected?
I know Cleveland has an excellent reputation but I just wonder what other people have experienced. I am also considering Duke University. I wanted to go to Chapel Hill but they are not in-network for me. Does anyone know anything about Duke? I am concerned about having to move near Duke before transplant. That sounds soooo difficult. Cleveland has air transportation so you can live at home up until time. Am I making too big of a deal out of having to move before surgery. I just have a picture of me living by myself away from my husband and daughter for 4 or more months. Is that what happens? Also, does anyone know what the wait time is like at Duke?
Please anyone that has been to Duke University or Cleveland, I would love your input!
I know Cleveland has an excellent reputation but I just wonder what other people have experienced. I am also considering Duke University. I wanted to go to Chapel Hill but they are not in-network for me. Does anyone know anything about Duke? I am concerned about having to move near Duke before transplant. That sounds soooo difficult. Cleveland has air transportation so you can live at home up until time. Am I making too big of a deal out of having to move before surgery. I just have a picture of me living by myself away from my husband and daughter for 4 or more months. Is that what happens? Also, does anyone know what the wait time is like at Duke?
Please anyone that has been to Duke University or Cleveland, I would love your input!