Does anyone have chronic pain (joints etc ) and need medication to control?
My daughter has c.f.. Her lungs have always been healthy. She's 28 and has had several infections but can still get 100 percent lung function. Her issues are her gut. Her stomach only functions at 45 percent and her bowel motility is very slow at best. They say she probably has fibromyalgia. She just hurts all over. Her doctors are not sure what to do for her gut. Trying different meds but nothing works for long. Anyone else deal with this? My heart goes out to all of you. You have obviously dealt with more serious issues but its to the point she can't eat. She's in the hospital now on TPN til it starts moving again.