I am spending considerable time researching, studying and gathering CF news items and sharing important findings on our Facebook and Twitter pages. I want to start bringing in the main items of interest into a weekly blog with outbound links to the different news sources. Please like and share on your social media profiles and let me know if there are any specific topics you would like me to focus on. Any feedback, ideas, suggestions are all welcome! So please feel free to comment and share your thoughts below.
Ok, so its been a busy week in the Media! This is a pretty comprehensive list of everthing that happened this week:
Note: To get this news in your facebook feeds please like our FB page here and follow us on Twitter. You can also friend me on Facebook to get all my thoughts and experiences as I journey through CF.
Cheers
Chris Baldwin
Ok, so its been a busy week in the Media! This is a pretty comprehensive list of everthing that happened this week:
Note: To get this news in your facebook feeds please like our FB page here and follow us on Twitter. You can also friend me on Facebook to get all my thoughts and experiences as I journey through CF.
- CFTrust aims to inspire as it shifts focus to engagement with @olilewington http://t.co/FwOqOs5KJt
- Vertex's high-cost cystic fibrosis drug is at the center of Medicaid lawsuit via @FortuneMagazine http://t.co/YWyuu3zCfT
- Cystic fibrosis biotech ProQR Therapeutics files for a $75 million IPO - http://t.co/ehFAhwYvCT http://t.co/dSNk5LUThh
- Another A-levels student with CF - It may affect your lungs, GI and tones of other things...but not your BRAIN!! http://t.co/wqceN5ALAF
- Student Jenny enjoys A-level grades despite cystic fibrosis battle - http://t.co/IOUKwBf9wl
- Lexington teen fighting cystic fibrosis by raising thousands of dollars http://t.co/U5oktWWA3T
- 87% of Babies With Cystic Fibrosis are Aborted, But We Could Never Kill This Bundle of Joy http://t.co/A83fl5ydpI
- Pancreatitis link could be key to CF drug development and financing - *Watch this space!* - http://t.co/FkyrTCJIFL
- Why a Trial for a Vertex Cystic Fibrosis Drug Combo Sent Mixed Signals http://t.co/5IDZyzvUHp
- Football legends play in the name of CF to support 16-month-old Rylee Ferro - diagnosed with CF at Birth - http://t.co/nYL5yjltfm
- Synthetic ion transporter that binds to chloride ions could benefiting patients with cystic fibrosis - http://t.co/ixvUzsXDXb
- Original Cystic Fibrosis Song - What a beautiful song by Wendy Wood! http://t.co/xOjvUloMaf
- Cystic fibrosis unit for children opens at University Hospital Galway http://t.co/ZP75fG0lk1
- Novel Device Preserves Donated Lungs For Cystic Fibrosis, Lung Disease Patients In Need of Transplant http://t.co/21kCn4L4jC
- Every Bit Counts! - Cash For Cystic Fibrosis Research http://t.co/m5zmX0WHt1
- Check out "Genia - Collaboration in Care"- tailored to the CF patient and their family! http://t.co/BGqkMY4QhN @AndreasHager
- Florida institute to provide funds for Powers Medical... http://t.co/t4WvQ4lH2r
- Insmed Inc. raising 80M in funds for CF drug ARIKAYCE for PA treatment: http://t.co/UzHTTik00O
- Cystic Fibrosis Documentary - Go Beau Rich! Your doing a great thing...keep it up. http://t.co/015yH5FTzi
- Cystic Fibrosis Might Be 2 Diseases **MUST READ** http://t.co/WaI2kSSbN1
- Cystic fibrosis patients in Australia reported they could breathe more easily after surfing http://t.co/NPUhAt71CR
- Despite incurable Cystic fibrosis Nathan Charles set to fulfil childhood Wallabies dream http://t.co/kBZbFBnORi
- Surfing as a natural cure for CF. The salty spray from the ocean helps clear mucus from the lungs ... Inspiring: http://t.co/U5Ll1S3VFq
- 7th Annual “Pipeline to a Cure” CF Foundation Event Raises Record $1.2 Million in Donations http://t.co/bmHJBO99B8
- work has begun on a new in-patient, adult cystic fibrosis (CF) unit at CUH, funded by Kerry based charity Build4Life http://t.co/SFmgu0z7uq
- Family talks about 4-year-old's battle with cystic fibrosis http://t.co/JOqpk2F6vP
- Have a great idea? Vertex wants to fund it. http://t.co/TbEOGck2Lk
- Gastric lipase: n-3 polyunsaturated fatty acid (PUFA) supplementation - Blogs - Cystic Fibrosis http://t.co/2VDb7TUQhN
- Rugby: Breathless rise to the top - Sport - NZ Herald News http://t.co/rds9DPzY4E
- Woman with cystic fibrosis using 1st-ever drug to treat underlying cause - Blogs - Cystic Fibrosis http://t.co/M9CDNuQx2M
Cheers
Chris Baldwin