does cf affect your social lfe

Priceless

New member
I am very well off with my CF and it dosent affect my social life at all really. The only time i can recall that it has "cramped my style" was when i was in a band and played at smoky bars, that got me sick once but i got smart. I purchased a half face respirator to filter out the smoke fixed the problem. The main thing i struggle with is schedule managment, taking my meds and doin my treatments at the right times so i can do everything a 17 year old can do. To those who are affected by their CF in social settings i hope it gets better for you. Peace.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

karenanne99

New member
CF does affect some aspects of my social life.  In high school
I missed a lot of time because of "tune-ups". It affected
not only my grades but what people thought of me.  It was a
small high school so everyone knew where I was and why. Although
most were understanding, some weren't so much.  CF has a
definate  impact on the "love life" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> . I had a
boyfriend for the past few years and he was so understanding and
supportive but when I left for university we went our separate
ways. I find it so hard to tell any guys about my CF.  When
they come to my place and see the aerosols or the meds they kinda
get freaked out. I hate that I get attached to a guy and they see
my "cf stuff" and think I am messed up....I know those
guys aren't worth it if they act that way but it doesn't seem fair.
 If I didn't have the CF they would have stuck
around!..........Boys <img src="i/expressions/face-icon-small-disgusted.gif" border="0">   lol.........<br>
<br>
<br>
Karen    18 w CF  Dx birth
 

karenanne99

New member
CF does affect some aspects of my social life.  In high school
I missed a lot of time because of "tune-ups". It affected
not only my grades but what people thought of me.  It was a
small high school so everyone knew where I was and why. Although
most were understanding, some weren't so much.  CF has a
definate  impact on the "love life" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> . I had a
boyfriend for the past few years and he was so understanding and
supportive but when I left for university we went our separate
ways. I find it so hard to tell any guys about my CF.  When
they come to my place and see the aerosols or the meds they kinda
get freaked out. I hate that I get attached to a guy and they see
my "cf stuff" and think I am messed up....I know those
guys aren't worth it if they act that way but it doesn't seem fair.
 If I didn't have the CF they would have stuck
around!..........Boys <img src="i/expressions/face-icon-small-disgusted.gif" border="0">   lol.........<br>
<br>
<br>
Karen    18 w CF  Dx birth
 

karenanne99

New member
CF does affect some aspects of my social life.  In high school
I missed a lot of time because of "tune-ups". It affected
not only my grades but what people thought of me.  It was a
small high school so everyone knew where I was and why. Although
most were understanding, some weren't so much.  CF has a
definate  impact on the "love life" <img src="i/expressions/face-icon-small-tongue.gif" border="0"> . I had a
boyfriend for the past few years and he was so understanding and
supportive but when I left for university we went our separate
ways. I find it so hard to tell any guys about my CF.  When
they come to my place and see the aerosols or the meds they kinda
get freaked out. I hate that I get attached to a guy and they see
my "cf stuff" and think I am messed up....I know those
guys aren't worth it if they act that way but it doesn't seem fair.
 If I didn't have the CF they would have stuck
around!..........Boys <img src="i/expressions/face-icon-small-disgusted.gif" border="0">   lol.........<br>
<br>
<br>
Karen    18 w CF  Dx birth
 

JazzysMom

New member
It never use to, but it most definitely does now. Not necessarily because I cant do it, but because often times when I do something, I tend to overdo & it back fires. I yield to caution & pick very carefully what I do. My neighbor told me yesterday that "I NEED TO TAKE MY DAUGHTER TO A PUMPKIN PATCH" for her to get the true spirit of Halloween. I said that isnt happening. One reason is I, personally, am not up to it. The other is that hubby & her already picked & out & brought home a pumpking. Which we carved already. She was thrilled with the choice her & her Dad made. Its the biggest pumpking we have had yet. ANYWAY this is just an example that popped into my head.
 

JazzysMom

New member
It never use to, but it most definitely does now. Not necessarily because I cant do it, but because often times when I do something, I tend to overdo & it back fires. I yield to caution & pick very carefully what I do. My neighbor told me yesterday that "I NEED TO TAKE MY DAUGHTER TO A PUMPKIN PATCH" for her to get the true spirit of Halloween. I said that isnt happening. One reason is I, personally, am not up to it. The other is that hubby & her already picked & out & brought home a pumpking. Which we carved already. She was thrilled with the choice her & her Dad made. Its the biggest pumpking we have had yet. ANYWAY this is just an example that popped into my head.
 

JazzysMom

New member
It never use to, but it most definitely does now. Not necessarily because I cant do it, but because often times when I do something, I tend to overdo & it back fires. I yield to caution & pick very carefully what I do. My neighbor told me yesterday that "I NEED TO TAKE MY DAUGHTER TO A PUMPKIN PATCH" for her to get the true spirit of Halloween. I said that isnt happening. One reason is I, personally, am not up to it. The other is that hubby & her already picked & out & brought home a pumpking. Which we carved already. She was thrilled with the choice her & her Dad made. Its the biggest pumpking we have had yet. ANYWAY this is just an example that popped into my head.
 

MiniBlind89

New member
Come on man...
We're talking about CF affecting our social life not step dads beating us and dislexia affecting it.....My brother has dislexia so I know what your talking about...but I also dont see it stopping him from having a healthy social life...
I am just saying....dont let things mess up your social life...there is always a way around problems you have in your life...
THINK POSITIVE!!!
God Bless
 

MiniBlind89

New member
Come on man...
We're talking about CF affecting our social life not step dads beating us and dislexia affecting it.....My brother has dislexia so I know what your talking about...but I also dont see it stopping him from having a healthy social life...
I am just saying....dont let things mess up your social life...there is always a way around problems you have in your life...
THINK POSITIVE!!!
God Bless
 

MiniBlind89

New member
Come on man...
We're talking about CF affecting our social life not step dads beating us and dislexia affecting it.....My brother has dislexia so I know what your talking about...but I also dont see it stopping him from having a healthy social life...
I am just saying....dont let things mess up your social life...there is always a way around problems you have in your life...
THINK POSITIVE!!!
God Bless
 

dude

New member
i agree you have to positive but you have to be a realist as
well.The fact is if people have a difficult family upbringing
coupled with cf  and are affected by mental problems they are
going to be affected in social settings whether they like it or
not.To understand someones problems you have to put youreself in
their shoes to fully comprehend their situation.  That is why
there exists so much ignorance in the world .People judge others
from their perspective
 

dude

New member
i agree you have to positive but you have to be a realist as
well.The fact is if people have a difficult family upbringing
coupled with cf  and are affected by mental problems they are
going to be affected in social settings whether they like it or
not.To understand someones problems you have to put youreself in
their shoes to fully comprehend their situation.  That is why
there exists so much ignorance in the world .People judge others
from their perspective
 

dude

New member
i agree you have to positive but you have to be a realist as
well.The fact is if people have a difficult family upbringing
coupled with cf  and are affected by mental problems they are
going to be affected in social settings whether they like it or
not.To understand someones problems you have to put youreself in
their shoes to fully comprehend their situation.  That is why
there exists so much ignorance in the world .People judge others
from their perspective
 

JesseBrennan

New member
Lol partied alot ehh. Me too and i still do. Im in highschool grade 11 and
I always go out late nights and live the normal life.. and i havnt only been in the
hospitial once with sutamonis that was when i was 7 years old.. im 16 going
to be 17 in june.
Soo nahhh it doesnt affect my life at all

Jesse.
 

JesseBrennan

New member
Lol partied alot ehh. Me too and i still do. Im in highschool grade 11 and
I always go out late nights and live the normal life.. and i havnt only been in the
hospitial once with sutamonis that was when i was 7 years old.. im 16 going
to be 17 in june.
Soo nahhh it doesnt affect my life at all

Jesse.
 

JesseBrennan

New member
Lol partied alot ehh. Me too and i still do. Im in highschool grade 11 and
I always go out late nights and live the normal life.. and i havnt only been in the
hospitial once with sutamonis that was when i was 7 years old.. im 16 going
to be 17 in june.
Soo nahhh it doesnt affect my life at all

Jesse.
 

Nygbk5

New member
Earlier in my life it did affect my social life but as I grew older I started arranging meds in the morning and at night before bed to allow time for myself to hang out with friends. My mom was very helpful in this in the fact that when i had meds to do and IVS to do after a hospital visit she would invite a bunch of my friends over to hang out at the house so that I could still live or at least try to live the full teenage experience. Now that I am 19 and graduated from high school I still make time to hang out with friends and go out to parties just like anybody else would but I make sure to use my head and make sure its not going to be something that may run me down or affect my health in any negative way.
 

Nygbk5

New member
Earlier in my life it did affect my social life but as I grew older I started arranging meds in the morning and at night before bed to allow time for myself to hang out with friends. My mom was very helpful in this in the fact that when i had meds to do and IVS to do after a hospital visit she would invite a bunch of my friends over to hang out at the house so that I could still live or at least try to live the full teenage experience. Now that I am 19 and graduated from high school I still make time to hang out with friends and go out to parties just like anybody else would but I make sure to use my head and make sure its not going to be something that may run me down or affect my health in any negative way.
 

Nygbk5

New member
Earlier in my life it did affect my social life but as I grew older I started arranging meds in the morning and at night before bed to allow time for myself to hang out with friends. My mom was very helpful in this in the fact that when i had meds to do and IVS to do after a hospital visit she would invite a bunch of my friends over to hang out at the house so that I could still live or at least try to live the full teenage experience. Now that I am 19 and graduated from high school I still make time to hang out with friends and go out to parties just like anybody else would but I make sure to use my head and make sure its not going to be something that may run me down or affect my health in any negative way.
 

loveee12

New member
nope, i've been lucky to be healthy enough that i can do pretty much whatever i want. my good friends know of it but otherwise i take care of my cf in private. i'm in college now and i hate it because i miss all my friends so much - and my old life. seriously, i went out or went to events all the time. last summer i worked, partied, and hung out on my lake like you wouldn't believe. then college came & screwed up my life... but cf definately didn't.
 
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