Exercise

[Skye]

Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a decline after working so hard at walking daily or other forms of exercise.

How can we stay motivated to keep exercise in the mix when the CF routine is already very difficult to maintain?

 

[Skye]

Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a decline after working so hard at walking daily or other forms of exercise.

How can we stay motivated to keep exercise in the mix when the CF routine is already very difficult to maintain?

 

[Skye]

Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a decline after working so hard at walking daily or other forms of exercise.

How can we stay motivated to keep exercise in the mix when the CF routine is already very difficult to maintain?

 

[Skye]

Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a decline after working so hard at walking daily or other forms of exercise.

How can we stay motivated to keep exercise in the mix when the CF routine is already very difficult to maintain?

 

[Skye]

Can you point us to any good research articles or compelling evidence that exercise is good for our lungs? Common sense tells us it is; ufortunately, we all get hung up on the numbers and it makes it difficult to continue exercising when we don't see changes in lung function or we may even see a decline after working so hard at walking daily or other forms of exercise.
<br />
<br />How can we stay motivated to keep exercise in the mix when the CF routine is already very difficult to maintain?

 

[Shelbyville]

Hello Skye:
I posted in the exercise & fitness section on this but did not know lung function numbers until last week at my quarterly appt. If you knew my history I have run for the past 15 years at least. I began running for other health reasons and back then did not know I had CF. Around 4 or 5 years ago running became harder each month and the short of the story goes my former PCP knew I carried one CF gene (CAVD) but treated me for depression. If you don't need those drugs and take them WOW do the screw you up but he claimed we had to keep trying them until I found the correct one. So along with that my back was killing me and sleep was hard to get so the downward spiral started. He did refer me to a pain clinic and that doctor did get me some relief. This helped with sleep but that's about it. I could no longer run 5 miles w/o extreme effort. After 2 bouts of panktus and hospital stays in January of 2008 I decided to call Penn Lung and explained all the known facts and asked if I need to see the CF clinic. I have CF. I have been under their care for almost 2 years and I went in with 90% lung function and FEV1 98 I think (not good for someone running 3x a week 3 miles +). Fast forward to this summer after one and one half years of cleaning out the junk I trained for and completed the (Island Run) 18 miles of Long Beach Island in 3 hours and 13 minutes about 10:46 / mile. I placed 603 out of 800. My lungs were not my down fall rather a very arthritic knee cap made the last 4 miles hell, had to walk some to finish. So the point is I now have 98% lung function and FEV1 of 113. Exercise and treatments are key in fighting this monster and I damn lucky I ran all those other years or I'd be screwed. Sometimes ya get lucky and the harder you work the luckier ya get! I'm damn lucky the clinic accepted me w/o a referral although they did look at me like is he one of those people (likes to go to the doctor).

Long story but I don't think you will find what your looking as far as study material. Your time may better spent is how to prove this old guy wrong by working your ass off and posting that after a year of hard work you did not improve your quality of life. Set some goals and crush each one until the balance of effort and results are in balance for you!

BTW I'm rehabbing my knee and have not run since the race (10/11) maybe I shot a little high. The good part is my rehab is going great and I expect to be back to my 3 to 5 miles 3x a week. The doctor at Penn Sports Medicine said your not a marathon runner as was my CF doc's advice. So don't shoot too high or low.

Best of luck, Steve

 

[Shelbyville]

Hello Skye:
I posted in the exercise & fitness section on this but did not know lung function numbers until last week at my quarterly appt. If you knew my history I have run for the past 15 years at least. I began running for other health reasons and back then did not know I had CF. Around 4 or 5 years ago running became harder each month and the short of the story goes my former PCP knew I carried one CF gene (CAVD) but treated me for depression. If you don't need those drugs and take them WOW do the screw you up but he claimed we had to keep trying them until I found the correct one. So along with that my back was killing me and sleep was hard to get so the downward spiral started. He did refer me to a pain clinic and that doctor did get me some relief. This helped with sleep but that's about it. I could no longer run 5 miles w/o extreme effort. After 2 bouts of panktus and hospital stays in January of 2008 I decided to call Penn Lung and explained all the known facts and asked if I need to see the CF clinic. I have CF. I have been under their care for almost 2 years and I went in with 90% lung function and FEV1 98 I think (not good for someone running 3x a week 3 miles +). Fast forward to this summer after one and one half years of cleaning out the junk I trained for and completed the (Island Run) 18 miles of Long Beach Island in 3 hours and 13 minutes about 10:46 / mile. I placed 603 out of 800. My lungs were not my down fall rather a very arthritic knee cap made the last 4 miles hell, had to walk some to finish. So the point is I now have 98% lung function and FEV1 of 113. Exercise and treatments are key in fighting this monster and I damn lucky I ran all those other years or I'd be screwed. Sometimes ya get lucky and the harder you work the luckier ya get! I'm damn lucky the clinic accepted me w/o a referral although they did look at me like is he one of those people (likes to go to the doctor).

Long story but I don't think you will find what your looking as far as study material. Your time may better spent is how to prove this old guy wrong by working your ass off and posting that after a year of hard work you did not improve your quality of life. Set some goals and crush each one until the balance of effort and results are in balance for you!

BTW I'm rehabbing my knee and have not run since the race (10/11) maybe I shot a little high. The good part is my rehab is going great and I expect to be back to my 3 to 5 miles 3x a week. The doctor at Penn Sports Medicine said your not a marathon runner as was my CF doc's advice. So don't shoot too high or low.

Best of luck, Steve

 

[Shelbyville]

Hello Skye:
I posted in the exercise & fitness section on this but did not know lung function numbers until last week at my quarterly appt. If you knew my history I have run for the past 15 years at least. I began running for other health reasons and back then did not know I had CF. Around 4 or 5 years ago running became harder each month and the short of the story goes my former PCP knew I carried one CF gene (CAVD) but treated me for depression. If you don't need those drugs and take them WOW do the screw you up but he claimed we had to keep trying them until I found the correct one. So along with that my back was killing me and sleep was hard to get so the downward spiral started. He did refer me to a pain clinic and that doctor did get me some relief. This helped with sleep but that's about it. I could no longer run 5 miles w/o extreme effort. After 2 bouts of panktus and hospital stays in January of 2008 I decided to call Penn Lung and explained all the known facts and asked if I need to see the CF clinic. I have CF. I have been under their care for almost 2 years and I went in with 90% lung function and FEV1 98 I think (not good for someone running 3x a week 3 miles +). Fast forward to this summer after one and one half years of cleaning out the junk I trained for and completed the (Island Run) 18 miles of Long Beach Island in 3 hours and 13 minutes about 10:46 / mile. I placed 603 out of 800. My lungs were not my down fall rather a very arthritic knee cap made the last 4 miles hell, had to walk some to finish. So the point is I now have 98% lung function and FEV1 of 113. Exercise and treatments are key in fighting this monster and I damn lucky I ran all those other years or I'd be screwed. Sometimes ya get lucky and the harder you work the luckier ya get! I'm damn lucky the clinic accepted me w/o a referral although they did look at me like is he one of those people (likes to go to the doctor).

Long story but I don't think you will find what your looking as far as study material. Your time may better spent is how to prove this old guy wrong by working your ass off and posting that after a year of hard work you did not improve your quality of life. Set some goals and crush each one until the balance of effort and results are in balance for you!

BTW I'm rehabbing my knee and have not run since the race (10/11) maybe I shot a little high. The good part is my rehab is going great and I expect to be back to my 3 to 5 miles 3x a week. The doctor at Penn Sports Medicine said your not a marathon runner as was my CF doc's advice. So don't shoot too high or low.

Best of luck, Steve

 

[Shelbyville]

Hello Skye:
I posted in the exercise & fitness section on this but did not know lung function numbers until last week at my quarterly appt. If you knew my history I have run for the past 15 years at least. I began running for other health reasons and back then did not know I had CF. Around 4 or 5 years ago running became harder each month and the short of the story goes my former PCP knew I carried one CF gene (CAVD) but treated me for depression. If you don't need those drugs and take them WOW do the screw you up but he claimed we had to keep trying them until I found the correct one. So along with that my back was killing me and sleep was hard to get so the downward spiral started. He did refer me to a pain clinic and that doctor did get me some relief. This helped with sleep but that's about it. I could no longer run 5 miles w/o extreme effort. After 2 bouts of panktus and hospital stays in January of 2008 I decided to call Penn Lung and explained all the known facts and asked if I need to see the CF clinic. I have CF. I have been under their care for almost 2 years and I went in with 90% lung function and FEV1 98 I think (not good for someone running 3x a week 3 miles +). Fast forward to this summer after one and one half years of cleaning out the junk I trained for and completed the (Island Run) 18 miles of Long Beach Island in 3 hours and 13 minutes about 10:46 / mile. I placed 603 out of 800. My lungs were not my down fall rather a very arthritic knee cap made the last 4 miles hell, had to walk some to finish. So the point is I now have 98% lung function and FEV1 of 113. Exercise and treatments are key in fighting this monster and I damn lucky I ran all those other years or I'd be screwed. Sometimes ya get lucky and the harder you work the luckier ya get! I'm damn lucky the clinic accepted me w/o a referral although they did look at me like is he one of those people (likes to go to the doctor).

Long story but I don't think you will find what your looking as far as study material. Your time may better spent is how to prove this old guy wrong by working your ass off and posting that after a year of hard work you did not improve your quality of life. Set some goals and crush each one until the balance of effort and results are in balance for you!

BTW I'm rehabbing my knee and have not run since the race (10/11) maybe I shot a little high. The good part is my rehab is going great and I expect to be back to my 3 to 5 miles 3x a week. The doctor at Penn Sports Medicine said your not a marathon runner as was my CF doc's advice. So don't shoot too high or low.

Best of luck, Steve

 

[Shelbyville]

Hello Skye:
<br />I posted in the exercise & fitness section on this but did not know lung function numbers until last week at my quarterly appt. If you knew my history I have run for the past 15 years at least. I began running for other health reasons and back then did not know I had CF. Around 4 or 5 years ago running became harder each month and the short of the story goes my former PCP knew I carried one CF gene (CAVD) but treated me for depression. If you don't need those drugs and take them WOW do the screw you up but he claimed we had to keep trying them until I found the correct one. So along with that my back was killing me and sleep was hard to get so the downward spiral started. He did refer me to a pain clinic and that doctor did get me some relief. This helped with sleep but that's about it. I could no longer run 5 miles w/o extreme effort. After 2 bouts of panktus and hospital stays in January of 2008 I decided to call Penn Lung and explained all the known facts and asked if I need to see the CF clinic. I have CF. I have been under their care for almost 2 years and I went in with 90% lung function and FEV1 98 I think (not good for someone running 3x a week 3 miles +). Fast forward to this summer after one and one half years of cleaning out the junk I trained for and completed the (Island Run) 18 miles of Long Beach Island in 3 hours and 13 minutes about 10:46 / mile. I placed 603 out of 800. My lungs were not my down fall rather a very arthritic knee cap made the last 4 miles hell, had to walk some to finish. So the point is I now have 98% lung function and FEV1 of 113. Exercise and treatments are key in fighting this monster and I damn lucky I ran all those other years or I'd be screwed. Sometimes ya get lucky and the harder you work the luckier ya get! I'm damn lucky the clinic accepted me w/o a referral although they did look at me like is he one of those people (likes to go to the doctor).
<br />
<br />Long story but I don't think you will find what your looking as far as study material. Your time may better spent is how to prove this old guy wrong by working your ass off and posting that after a year of hard work you did not improve your quality of life. Set some goals and crush each one until the balance of effort and results are in balance for you!
<br />
<br />BTW I'm rehabbing my knee and have not run since the race (10/11) maybe I shot a little high. The good part is my rehab is going great and I expect to be back to my 3 to 5 miles 3x a week. The doctor at Penn Sports Medicine said your not a marathon runner as was my CF doc's advice. So don't shoot too high or low.
<br />
<br />Best of luck, Steve

 

[mneville]

Sweden has done studies on this and has found that jumping on a trampoline for a certain amount of time per day was as effective to other airway clearance techniques. I printed out the info but will have to find the link. All their CF patients get mini-trampolines at the age of 18 months or so. My 5 year old does ice skating, swimming, soccer and t-ball but we would never substitute it for the hour of the VEST he does daily.

Megan,mom to Aidan 5 CF and Gavin 2 no CF (thanks to IVF/PGD)

 

[mneville]

Sweden has done studies on this and has found that jumping on a trampoline for a certain amount of time per day was as effective to other airway clearance techniques. I printed out the info but will have to find the link. All their CF patients get mini-trampolines at the age of 18 months or so. My 5 year old does ice skating, swimming, soccer and t-ball but we would never substitute it for the hour of the VEST he does daily.

Megan,mom to Aidan 5 CF and Gavin 2 no CF (thanks to IVF/PGD)

 

[mneville]

Sweden has done studies on this and has found that jumping on a trampoline for a certain amount of time per day was as effective to other airway clearance techniques. I printed out the info but will have to find the link. All their CF patients get mini-trampolines at the age of 18 months or so. My 5 year old does ice skating, swimming, soccer and t-ball but we would never substitute it for the hour of the VEST he does daily.

Megan,mom to Aidan 5 CF and Gavin 2 no CF (thanks to IVF/PGD)

 

[mneville]

Sweden has done studies on this and has found that jumping on a trampoline for a certain amount of time per day was as effective to other airway clearance techniques. I printed out the info but will have to find the link. All their CF patients get mini-trampolines at the age of 18 months or so. My 5 year old does ice skating, swimming, soccer and t-ball but we would never substitute it for the hour of the VEST he does daily.

Megan,mom to Aidan 5 CF and Gavin 2 no CF (thanks to IVF/PGD)

 

[mneville]

Sweden has done studies on this and has found that jumping on a trampoline for a certain amount of time per day was as effective to other airway clearance techniques. I printed out the info but will have to find the link. All their CF patients get mini-trampolines at the age of 18 months or so. My 5 year old does ice skating, swimming, soccer and t-ball but we would never substitute it for the hour of the VEST he does daily.
<br />
<br />Megan,mom to Aidan 5 CF and Gavin 2 no CF (thanks to IVF/PGD)

 

[hmw]

I'd love to see that link about the tramp too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (haha I bet my kids would as well, they've been hitting me up for one for years!)

I'd have to think that any form of aerobic exercise would be great for pulmonary health as a whole- it benefits anyone's respiratory function- and anything that really gets them moving and coughing a lot would benefit them as well. Emily takes a 90min dance class that is very active and the girls are often pretty out of breath and sweaty when they pause for water... so I figure anything that active is great for her!

 

[hmw]

I'd love to see that link about the tramp too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (haha I bet my kids would as well, they've been hitting me up for one for years!)

I'd have to think that any form of aerobic exercise would be great for pulmonary health as a whole- it benefits anyone's respiratory function- and anything that really gets them moving and coughing a lot would benefit them as well. Emily takes a 90min dance class that is very active and the girls are often pretty out of breath and sweaty when they pause for water... so I figure anything that active is great for her!

 

[hmw]

I'd love to see that link about the tramp too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (haha I bet my kids would as well, they've been hitting me up for one for years!)

I'd have to think that any form of aerobic exercise would be great for pulmonary health as a whole- it benefits anyone's respiratory function- and anything that really gets them moving and coughing a lot would benefit them as well. Emily takes a 90min dance class that is very active and the girls are often pretty out of breath and sweaty when they pause for water... so I figure anything that active is great for her!

 

[hmw]

I'd love to see that link about the tramp too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (haha I bet my kids would as well, they've been hitting me up for one for years!)

I'd have to think that any form of aerobic exercise would be great for pulmonary health as a whole- it benefits anyone's respiratory function- and anything that really gets them moving and coughing a lot would benefit them as well. Emily takes a 90min dance class that is very active and the girls are often pretty out of breath and sweaty when they pause for water... so I figure anything that active is great for her!

 

[hmw]

I'd love to see that link about the tramp too. <img src="i/expressions/face-icon-small-smile.gif" border="0"> (haha I bet my kids would as well, they've been hitting me up for one for years!)
<br />
<br />I'd have to think that any form of aerobic exercise would be great for pulmonary health as a whole- it benefits anyone's respiratory function- and anything that really gets them moving and coughing a lot would benefit them as well. Emily takes a 90min dance class that is very active and the girls are often pretty out of breath and sweaty when they pause for water... so I figure anything that active is great for her!